Its Lupus!!!!!

I should say, I THINK its lupus! If I interpreted my doctors secret code correctly. And I believe I did! Its not official--I got this through our special communication process--but next time I go in to see him it should be and I'll be sent to a dermatologist probably because the rheumatic doc I saw years ago wouldn't do anything. I just love my doc--he is so awesome!!!! Finally there really is hope! The cause to all my health problems--the kidneys, the heart, nerves, everything! I get so many moods because of everything. Getting this treated should mean fewer bad/sad/anxious moods! And probably make it easier for me about my regular mental health issues! Yippee!!!

Oh inky!!!! so glad to see you. Well, you know, I can't say I am happy that you might have lupus, but I AM happy you might be getting some resolution finally

Is there any chance of you getting disability if this is the case?

I've no idea about disability for something like this. It might be possible. I'll probably find out. If nothing else, maybe I could for psych. It's not official yet but I look forward to getting the real, final Dx!

my best wishes for this to be your answer so you will start to feel better...
if it is Lupus, there is a Lupus Foundation website with good information to help you.
Catherine

I hope the best for you Ink in your future endeavours. Take care. PM anytime. Soidhonia

Thanks, everyone. I still need the real, official diagnosis. Problem is I am still scared to talk at appointments. I was told years ago I had some sort of antibody or antibodies, and seemed to have polymyositis, dermatomyositis, lupus or fibromyalgia. I have been suffering all this time and heard so many times that "the tests are normal" because they have been doing the wrong tests and looking for the wrong things! Because of all the problems developing gradually the doctors didn't believe my complaints for a long time and it has scarred me emotionally and mentally. The only one who does believe me is my own doctor because of the emails I send him off-the-record. But he can't use them and I somehow have to get EVERYTHING from all these years to come out all at once at one, single appointment. It's scary! It takes me back to the first time a few years ago when one doctor repeatedly told me "nothings wrong". Well, SHE was wrong. It sounds like she missed what would possibly be a key sign of lupus on one of the tests. I don't know. I just know that all I care about right now is to finally get everything treated. I have so much pain sometimes, and problems with my heart, kidneys, nerves and more because of it all. I don't care if there is a cure at this point. I just want to feel better.