[mzdiagnosis]

hi again...

sorry I don't post much. I've run into complications again. I just wanted to let people know about Ehlers Danlos Syndrome. I spent years trying to get a diagnosis and it causes havoc on your body. Many people get brushed off as hypochondriacs because regular docs just can't fathom a person having this much wrong. But a person really can.

If you fit the criteria ask your GP to send you to a rheumatologist and/or a geneticist for evaluation. You will likely need a bunch of tests. Don't let anyone put you off if you don't know any immediate relatives with it. MY geneticist says that it can be present in very mild ways that don't cause problems and then BOOM a family member gets hit with classic signs of it.

don't give up. you aren't imagining it all. The UK has a great EDS online forum.

keep on fighting.