[Angelwngs25]

I just read my results "Full report" thing and it says on the Bilirubin test "See comment" and under that it says..."Presumptive positive bilirubin. Consider confirmation by serum bilirubin if clinically indicated." Um, should I be worried? I didn't come up positive on the ANA I came up Negative but could the fact that I have a possibility of a positive Bilirubin mean I still have Lupus with Kidney involvement? Also I have a high Sed Rate at 41 and a Low Vitamin D. Which as I have read plenty of times. Most people with Lupus have Low Vitamin D. Someone please help. Now I'm scared.

[Crazy Hitch]

(((Angelwngs25)))

I do not know enough about your test results (as I do not personally have Lupus with Renal involvement)

but I wanted to say hang in there.

I know that this has been a very trying time for you.

I understand your fear.

Deep breaths.

How has your doctor explained these results to you?

Normally I don't get any results back unless they are explained to me?

I can't interpret my blood results to work out what I may / may not have?

Not sure what the procedure is like where you are though.

[kiwi33]

Hi Angelwngs25

My understanding is that low serum bilirubin levels can, but need not be, part of the differential diagnosis of SLE.

You might find the information in this (slightly technical) link helpful when you talk about things with your doctor: Bilirubin levels in patients with systemic lupus erythematosus: inc... - PubMed - NCBI .

Asking him/her lots of questions is a good plan.

[Angelwngs25]

Originally Posted by Hooligan

(((Angelwngs25)))

I do not know enough about your test results (as I do not personally have Lupus with Renal involvement)

but I wanted to say hang in there.

I know that this has been a very trying time for you.

I understand your fear.

Deep breaths.

How has your doctor explained these results to you?

Normally I don't get any results back unless they are explained to me?

I can't interpret my blood results to work out what I may / may not have?

Not sure what the procedure is like where you are though.

I have not seen my Rheumatologist about these test results yet. But I am allowed to see them per the lab website for the lab they were done at. I don't see my Rheumatologist until like sometime next week.

[Angelwngs25]

Originally Posted by kiwi33

Hi Angelwngs25

My understanding is that low serum bilirubin levels can, but need not be, part of the differential diagnosis of SLE.

You might find the information in this (slightly technical) link helpful when you talk about things with your doctor: Bilirubin levels in patients with systemic lupus erythematosus: inc... - PubMed - NCBI .

Asking him/her lots of questions is a good plan.

Thanks for the link...but I actually read that on that website. But thanks for trying to help.

[SnakeCharmer]

AngelWings, as far as I know "presumptive positive bilibrubin" (in a urine test?) is not a big indicator of lupus with kidney involvement. The statement, "Consider confirmation by serum bilirubin if clinically indicated" is a suggestion for a blood test if other symptoms indicate it. High levels of bilirubin in the blood can indicate a gastrointestinal issue much more than kidney involvement.

But presumptive positive bilirubin in the urine may turn out to be completely negative when a more thorough blood test is given. So it's too early to panic or give yourself a diagnosis.

The sed rate is not specific for any particular disorder. It measures markers for inflammation, which can come from many different things in any part of the body. But the test can't tell what's causing the elevated sed rate.

Most North Americans and Europeans have lower than optimum blood Vitamin D levels. The darker a person's natural skin pigment and the less time skin is exposed to the unblocked sun, the more likely people are to have low Vitamin D levels. Natural Vitamin D is absorbed into the body through natural skin oils that must sit on the skin for 24-48 hours and it's theorized that one of the reasons modern people suffer so much from low Vitamin D levels is because we bathe frequently and not as many people work in the sun.

If you have any worries or concerns about these tests, it's important for you to talk to the doctor who ordered them. The negative ANA test is something to take comfort in. It's way too early to jump to any conclusions about the other tests. But they don't necessarily point to lupus, much less lupus with kidney involvement. But I'm not a doctor and you do need to have your tests interpreted by the doctor who ordered them. Hope you talk to your doctor soon and then come back and tell us the official news on your results. I wish you the best.

[cakeladie]

The problem is lupus affects everyone differently. One of the worst things you can do is go on the web and look up stuff. You will drive yourself crazy.

Originally Posted by Angelwngs25

I just read my results "Full report" thing and it says on the Bilirubin test "See comment" and under that it says..."Presumptive positive bilirubin. Consider confirmation by serum bilirubin if clinically indicated." Um, should I be worried? I didn't come up positive on the ANA I came up Negative but could the fact that I have a possibility of a positive Bilirubin mean I still have Lupus with Kidney involvement? Also I have a high Sed Rate at 41 and a Low Vitamin D. Which as I have read plenty of times. Most people with Lupus have Low Vitamin D. Someone please help. Now I'm scared.

you have to be dx wit lupus first

[Gavinandnikki]

Originally Posted by Angelwngs25

I just read my results "Full report" thing and it says on the Bilirubin test "See comment" and under that it says..."Presumptive positive bilirubin. Consider confirmation by serum bilirubin if clinically indicated." Um, should I be worried? I didn't come up positive on the ANA I came up Negative but could the fact that I have a possibility of a positive Bilirubin mean I still have Lupus with Kidney involvement? Also I have a high Sed Rate at 41 and a Low Vitamin D. Which as I have read plenty of times. Most people with Lupus have Low Vitamin D. Someone please help. Now I'm scared.

Presumptive positive bili in the urine means nothing. Happens all the time, usually when the urine is concentrated. It has no significance, especially as regards to the kidney. A negative ANA suggests that you do not have SLE. Many women have low Vit D. Low Vit D levels are most common in normal women and has no direct link with lupus.