[Kiya]

Has any one been through this?
I have been having numbing tingling icy hot pain sporadically through my body. Starts on the left (all but the trunk of the body) and moves to the right.

During a scheduled EEG, I went into a non-eplictic seizure. Brain waves were normal, but my muscles were seizing up sending me from a curled up ball to a stretched out jerking with closed air way, gagging, moments of rigidity and catatonia.

They unhooked me and sent me down to ER, but it said “ psychiatric” on it and I was ignored for the next two hours even while my body went through several more episodes of involuntary movements, including shutting off my air way.
Scariest thing ever.
“Tests are fine, go home”
Even with temporary partial paralysis.
Anyone?

[possum220]

I am very sad to hear that this has reared it's ugly head in your life kiya.

https://www.epilepsy.com/connect/for...seudo-seizures

I am aware of a person that has them. It affects her life in a horrid and very constant way. She is very brave.

"The signs and symptoms of pseudoseizures resemble those of epileptic seizures. A person suffering from pseudoseizures may experience falls and shaking of the body (similar to convulsions found in epileptic seizures). They may also experience a temporary loss of focus or attention and engage in staring behavior, also signs of epileptic seizures. Memory lapses, body tremors, fainting, and confusion are also harbingers of both pseudoseizures and epileptic seizures."


I think the phrase pseudo-seizures is a very poor name to give this event. They are not fake at all but very real. Painful. Tiring. The loss of body control is not the fault of the person who is having them. There seems to be a many things that can trigger them. At this point in time they are saying the root of it is stress. Stress can come from 'bad' events and 'happy events'. And yet there are other things that can also bring them on.

They are more common than people are aware of. https://www.epilepsy.com/article/201...eptic-seizures

I am trying to find the page on another site where the causes are listed but it is eluding me right now.