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Dec 05, 2007 at 06:02 PM
#1
At this point.. I will try about anything to get relief... something has to give...
Have had...very bad trouble since Oct... soo.. I take Advair..500/50... nasonext... and claritin.. I have air cleaners.. I wash my bedding.. 2 times a week.. and I am still sick as can be... it wears on me... the 14th is the PF.. doctors appoint.. a new one... Please.. please... what should I be asking him for.. what should he be checking me for... I feel... like.. they say.. ahh.. you are still breathing.. that is enough.... sorry...this is really the first day that I have been completely fever free....all day... I know I have fibro... and that hurts alot too... |
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Pandita-in-training
Member Since Sep 2006
Location: Maryland
Posts: 27,289
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Dec 05, 2007 at 06:24 PM
#2
Don't know what could help. Sounds like all your other things are messing with your lungs/asthma. That happens to me too. Does prednisone ever help you? Last time that only helped as long as I was taking it; a couple days from the end when I was tapering, the asthma was coming back just as fast.
Sounds like you have a systemic thing happening. With my background, I'd have my "gut" checked, intestines, etc.? They can throw your system off (too many antibiotics, etc.) just like bad teeth can. __________________ "Never give a sword to a man who can't dance." ~Confucius |
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Grand Member
Member Since Jan 2007
Location: NY
Posts: 748
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Dec 05, 2007 at 06:45 PM
#3
i agree with the prednisone and you need a nebulizer at home
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Grand Member
Member Since Jan 2006
Posts: 841
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Dec 05, 2007 at 11:10 PM
#4
My husband has very severe asthma and prednisone at one point was the only medication that helped. He took it daily for almost 18 yrs
 . Now he is on the medication "Xolair" (pronounced: zolair). Every 2 weeks he gets a shot in each arm and it has been a miracle medication for him!!! It is very expensive, but our insurance covers it, probably because the long term affects of daily prednisone can be even more expensive to the body in the long run. If you don't need to go quite that far yet, nebulizers are so portable these days maybe that would help. Also, make sure you are with a good doctor, preferably a pulmonoligist. Good luck!!! |
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Grand Member
Member Since Jan 2007
Location: NY
Posts: 748
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Dec 05, 2007 at 11:49 PM
#5
xolair is only indicated for the presence of certain antibodies which indicate an autoimmune involvement.
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Grand Member
Member Since Jan 2006
Posts: 841
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Dec 06, 2007 at 12:52 AM
#6
After 18 yrs of numerous drs and tons of different medications including the use of a daily nebulizer...my husband was diagnosed with eosinophilic puenimonia. It is a chronic condition that only responded to the prednisone or the new med xolair.
The drs seem to think that he now has this because he was not treated completely in those earlier years. Gotta love Kaiser ins. He now only uses an advair inhaler and occasionaly some prednisone Point is that you need to make sure that you doctor checks for EVERYTHING |
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Legendary Wise Elder
Member Since Dec 2003
Location: Coram Deo
Posts: 35,474
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Dec 06, 2007 at 01:01 AM
#7
Go to an ENT that does sensitivity testing (allergy)...and also pick up the how to allergen free your home and your life and whatever it says.
It isn't easy, but you can find out what is making you sick. Keep a record of everything that goes into your mouth... toothpaste, breath mint, brands of food... and note any increase in symptoms afterwards (food allergies become worse at night, during sleep, inhalent allergies tend to be more immediate.) Eliminate everything you can and begin again. Soaps, shampoos, laundry detergents etc. (I just used ALL which I never had a problem with before, and each thing I washed in it itched me. They must have changed the formula. The FTC doesn't require them to tell us that, btw. )good wishes! __________________ |
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New Member
Member Since Jul 2008
Location: USA
Posts: 3
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Jul 14, 2008 at 02:09 AM
#8
ask your doctor about xolair..I lived in misery until I was lucy enough to find a doc that took the TIME to look after me!! it burns going in but now, I am outside, running, planting flowers, NO inhalers..IM< ALIVE!!! aside of the depresiion....
__________________ Just another degree away from sanity... |
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New Member
Member Since Jul 2008
Location: USA
Posts: 3
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Jul 14, 2008 at 02:11 AM
#9
the prednisone put 5lbs on me weekly and kept me awake for days...made me feel like my bones were jumpin under my skin!! the xolair was the answer!!
__________________ Just another degree away from sanity... |
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Grand Member
Member Since Jan 2006
Posts: 841
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Jul 15, 2008 at 01:37 AM
#10
My husband is on xolair also and what a blessing.
He was on daily prednisone for 18 yrs. along with various inhalers and other meds. After 3 hospitalizations, one status asmaticus attack, and just over all feeling like #$%@, were giving up hope. Along came the clinical study and he tried the xolair....8 yrs + and he has been doing wonderful. He gets 2 shots every two weeks. That and one puff on his inhaler in the am, and he is like a new man! Talk to your doc about Xolair! It really works! |
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Wisest Elder Ever
Member Since Nov 2002
Location: Cave.
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Jul 22, 2008 at 06:17 PM
#11
((((((((((((((( freewill ))))))))))))))
 
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Grand Member
Member Since Jan 2006
Posts: 841
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Jul 22, 2008 at 08:19 PM
#12
Hey freewill, how is your asthma doing? How are you doing?
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