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CharleElgwyn1
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Member Since: Feb 2021
Location: Hartford
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Default Oct 03, 2021 at 04:22 PM
  #1
My AVM is about 2.2 cm and about 28 cm into my brain. Of course, it’s shutting O2 off from my brain. My wife hopes surgery will not result in greater disability.
Chuck Elgwyn.

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Yaowen
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Default Oct 03, 2021 at 05:03 PM
  #2
Oh, I am so sorry. Wish I knew what to say that would help. I hope your surgery will be successful and lead to the best possible outcome for you. Sadly, I don't know much about AVM and so will have to do some reading. Any kind of surgery is scary to me. Not getting enough oxygen to the brain is even scarier. You must be an incredibly strong individual. I would be a mess in that situation. Sending you only the very, very best of wishes!
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CharleElgwyn1
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Location: Hartford
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Default Oct 03, 2021 at 06:05 PM
  #3
I am 70 and walk 3 to 6 blocks every day and pull in and out on red bands PT (Austin) gave m. I’m getting ready for brain surgery and I try to sweat a little each day. The key is good shape. I’m not too worried about surgery! I know it’s going to happen as soon as insurance is in order. The surgeon is competent and well recommended by my primary doctor. I’m sure surgery has researched my psychiatrist and Therapist well enough, and some comes from my own life and my heart is strong though I have a one wire Pacemaker and kidney disease. I’m told I have a 65% chance with the surgery. 35% chance without. I’m playing the odds. I’m working hard to optimize my full recovery I have an AVM in the Right Temporal Lobe of my brain. Surgery to be scheduled. My Int*🩹. I’m very well educated with BA and three masters including an MFA from Colorado State University. My publication records are good with only two books of poetry in three colleges. I believe I am well informed about wold events. Though i take medication for bipolar disorder and depression. These three medications are well in the normal dosing. I’m happy and well adjusted. Married 39 years, 32-year-old daughter who is a Fulbright scholar ABD Washington University, St Louis. We own our home and live in a small town near a big city. Our old age is secure and we just bought a new car. This Pandemic has been difficult in isolation. We have all amenities and my wife and I are best friends. I have a wish that we be scattered in the same cemetery in the same flowers. This affordable and maintains our dream of being together. I’m actually in good health for my age. Our daughter says, “Dad act your age!” I think I am likely to live in the brain surgery. My odds are closer to 97% ask my primary doctor. He knows me and my ability. I am not worried much. I’m asking what you can do to help me? Sometimes I feel weak and sometimes I am afraid. I’m sorry but I am so grateful to a Higher Power and loving family I am a blessed man and recovering alcoholic with 34 years total sobriety and 20 yeas away from tobacco. Thank goodness I am happy I have an AVM in the Right Temporal Lobe of my brain. Surgery to be scheduled. My Int Please pray I have an AVM in the Right Temporal Lobe of my brain. Surgery to be scheduled. My Int and tell me that I will be happy after surgery.
Charles Elgwyn

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