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Default May 19, 2022 at 11:50 PM
  #1
Anyone struggle with recurrent diverticulitis?

Anything you might wish to share . . . I'm all ears !

I am admitted to the hospital for the second time in 3 weeks with DV diagnosed by CT scan.

I feel so sick. I'm hopeful they can fix me up . . . . but for how long,?
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Default May 20, 2022 at 03:28 PM
  #2
I've only suffered one bout of diverticilitus but it was a living hell to go through. So I am so very, very sorry that you are afflicted. Anyone who hasn't been through it has no idea what a painful and crushingly heavy burden it is. I take fiber for my gut these days: psillium seeds, chia seeds, flax seeds and eat a lot of high fiber foods like cauliflower, radishes and such. Of course sometimes DV can be caused by mechanical problems in the gut. I hope you get better soon and that doctors can help you avoid ever suffering it again. My heart really goes out to you!
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Default May 20, 2022 at 04:17 PM
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Originally Posted by Yaowen View Post
I've only suffered one bout of diverticilitus but it was a living hell to go through. So I am so very, very sorry that you are afflicted. Anyone who hasn't been through it has no idea what a painful and crushingly heavy burden it is. I take fiber for my gut these days: psillium seeds, chia seeds, flax seeds and eat a lot of high fiber foods like cauliflower, radishes and such. Of course sometimes DV can be caused by mechanical problems in the gut. I hope you get better soon and that doctors can help you avoid ever suffering it again. My heart really goes out to you!
Clearly, you know exactly what I'm going through. I deeply appreciate your empathy. I'm in the hospital now.
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Default May 20, 2022 at 10:27 PM
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Rose,
I hope you are resting comfortably as possible. I have been hospitalized 8 times in the last two years for intestinal issues. The antibiotics I am sometimes on are worse than the diease. They sre poison in my body. The hospital environment is also tough on me. even on my best day.. My best advice

Best wishes for a total recovery. My best advice...use the pain meds!

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Default May 21, 2022 at 07:02 AM
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Rose,
I hope you are resting comfortably as possible. I have been hospitalized 8 times in the last two years for intestinal issues. The antibiotics I am sometimes on are worse than the diease. They sre poison in my body. The hospital environment is also tough on me. even on my best day.. My best advice

Best wishes for a total recovery. My best advice...use the pain meds!
I am so sorry for what you've been through. During the night, I turned a corner. Somehow I escaped hell. I don't have words to describe the way I felt yesterday. You're right about pain meds. They cut me off. I had a Vicodin in my purse that I carry for emergency back spasms. I took it. I slept. I awoke a changed person. Can't wait to leave here.
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Default May 21, 2022 at 09:05 AM
  #6
Could it be NBS?
The Narcotic Bowel Syndrome: Clinical Features, Pathophysiology and Management - PMC

I am such a chicken, i would try to avoid surgery if at all possible.
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Default May 21, 2022 at 10:43 AM
  #7
@unaluna - thank you. Very relevant

I am a chicken too.
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Default May 21, 2022 at 12:50 PM
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This has been so miserable. I've never known severe physical suffering like this. It makes life not worth living to me.

Also, I'm alone. My bf died 2 years ago. We moved so far from family. I thought I'ld have some good years to think about moving back to where I'm from. For 8 years I cared for my very sick bf. I was strong. Now, less than 2 years later, I'm in a hospital bed a mess. It's too much. Without health, there is nothing, esp when your love is gone.
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Default May 28, 2022 at 07:09 PM
  #9
Rose,
I hope you are feeling better today.

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Default May 29, 2022 at 01:25 AM
  #10
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Rose,
I hope you are feeling better today.
Today I felt poorly most of the day. In the past few hours, though, I've improved a lot and was able to eat and enjoy a small meal. I keep reading that recovery from episodes of diverticular infection can be rather slow. I have to cultivate patience. Thank you for asking.

I hope you've found success in managing your own tummy challenges. I am in awe of what others manage to survive. Hope you are having a good weekend.
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Default May 30, 2022 at 12:58 AM
  #11
What a rollercoaster ride. Today I felt pretty good all day. Enjoyed supper. That turned in a few hours to have been foolish. I ended up wracked with nausea. Then up it came. Now I'm thirsty, but afraid to sip anything.

The entire month of May I've been sick with this intestinal issue. At least I'm no longer sick like I was in the hospital. But neither am I normal. I wonder if I will ever be again. I know others go thru far worse. I've been fortunate and don't have a lot of experience with being sick. I just hate it. In the hospital, on the really bad days, I kept thinking, "I'ld rather face a firing squad." At least that would be over quick.

I thought of calling one of my sisters. But it's a holiday weekend. No one needs to hear me whining. So my whining stays here. I have to try to think positive.
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