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#1
Merry Christmas to all my friends. I miss chatting with you all dearly.
I am still living at the South residence here at Skyland Trail. I theoretically have 1 week left, but my treatment team will be asking for more time (don't know how much more time, but they are wanting at least another month or so). The past 2 weeks have been crazy, and I know several of you have been asking for updates of me through onwards and mom through text. So I thought I'd post an update on here as I do sometimes have access to the internet at the residence (we have 2 computers with internet access for 24 of us, so you can imagine how difficult it is to get online...and the computers won't let me open the chat...I've tried D I'll try to see if I can get a group Skype call on my phone sometime...but I'm not sure how that works yet, so we'll see lol. Anyways, I moved in to the residence 2 weeks ago and all hell broke loose. I have the energy of a 5 year old. The first week was pretty fun. I was on observation for the first weekend so I was confined to the house and wasn't allowed to go anywhere, but I hung out with the staff and just ran through the house and chain smoked my lungs out and watched a ton of movies. I all ready knew most of the patients since I'd been going to treatment for 5 weeks, so I didn't really have to meet many people. On Tuesdays and Thursdays we go back to the hospital from 6pm - 8pm for LEAP (not sure what it stands for) but pretty much it's just to have supervised free time outside of the residence so we can work out, do art, play with the XBOX kinect, etc etc etc. This past week was pretty crap, though. Last weekend a few of us at the house thought it would be really super awesome to go buy some nerf guns at walmart to play with. We asked the weekend staff to take us to go buy them, and the even helped us pick some awesome ones out. We unpackaged them and started shooting them. The staff set down ground rules for playing with them. Pretty much, ask before shooting someone, don't shoot people that don't want to get shot, don't shoot each other in the face. All acceptable rules. The staff gave us targets to shoot and even played with the guns with us. They were bright yellow and orange guns. They were tons of fun. It was my new favourite thing. On Monday we brought them to the hospital to shoot our counselors in the butts. The weekend staff gave us permission. 3 minutes in to Monday morning my counselor snatched it out of my hand and yelled at me for it and it turned in to this massive issue. Apparently it's a "huge trigger". And they wouldn't look at my side of it. They wouldn't look at my logic of it. They take us on outings to laser tag. They let us watch Law and Order, CSI, and Horror Movies with explicit.....abuse scenes (I'm sure you know what I'm talking about). But no, a toy meant for a 3 year old is what's triggering. And the thing is, every patient in the residence loved the guns, everyone was playing with it, the staff helped me buy it. We asked if everyone was okay with it. But suddenly it was an issue. I don't understand why it was so wrong. My counselor did later approach me and say she was sorry for getting so abrasive about the gun because that was triggering for me, but I'm still upset about them taking my gun. It was a stress reliever for me and everyone in the house. We're also trying to figure out a way to talk to the staff and patients of the hospital on how to approach me about my verbal impulsivity. As you all obviously notice in chat, I have great difficulty with cursing and inappropriate language. I don't do this for attention and shock value. It's not tourettes. It's an impulse control problem. And it's much, much worse when it's spoken rather than typed. Staff is generally better with it than patients. I have loads of people that just start screaming at me when I start getting crude. The thing is, most of the time, I have absolutely no clue what's coming out of my mouth. I don't hear myself. It just kind of happens, and it's happened for so long that I don't hear it anymore. And I've grown up getting screamed at, that it's super triggering. And I know that my language is triggering for people. So all that ends up happening is that you have two people massively triggering each other and then we get super violent. So it's a lose lose situation. So that's kind of where we're at. Trying to convince patient's to maybe try to be a little bit patient with me or maybe like make me aware of my language because I think that if I can hear myself that I can stop, at least for a few minutes ya know? It's a start. I don't like triggering people. It just happens. I'm going home in a few hours to spend part of the day with my family for christmas. My brother is in town for a few weeks, and it really sucks that I won't get to see him very much but hey, it is what it is. I was extremely upset on Friday because I'd put in for my christmas day pass 2 weeks ago. So I call my mom Friday morning and she says to me, "I hope you're not upset with me, but we didn't want to stress you out until we got all the information but your dad went in for surgery for stage 1 melanoma. They think they got it all out and he doesn't need chemo so he's okay." I'm very, very happy they waited to tell me with everything that's gone on the past few months. So I go to treatment that morning and they tell me my pass has been denied and I just start bawling. And guilt trip the crap out of them. So they felt bad and decided to let me go. It's difinitely been a rollercoaster of emotions here. I think in many aspects I'm starting to get better. I'm finally starting to get a bit better. They started me back on topamax. However this past week my caloric intake has been much, much lower than it has been in months because I wasn't able to go to the grocery store to get snacks, which I heavily rely on because I don't like the meals here. So I got the side effect from topamax where my limbs get tingly and due to my diet this week it kinda made it worse and when I went for a run my limbs would just completely go numb and I fell asleep xD. Needless to say my diet is getting concerning for the staff, but it's making me both happy and miserable. My counselor wants to send me to an eating disorder treatment center, but I've convinced them to let me stay here so long as I continue to try to work on it. I love you all so much and I hope the holidays are treating you well! I'll be online on and off!!!! |
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hanners, iamspecial, Nemo39122, Onward2wards
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dinosaurs, googley, hanners, iamspecial, Nemo39122, Onward2wards
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Wise Elder
Member Since Jan 2009
Posts: 7,516
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#2
Hi AANGA!!!!!!!!!
Thank you so much for updating us about what is going on with you. You are very missed. I hope that you and the staff and other patients are able to find a way to help you with your impulsivity without triggering you. I hope that you continue working on your challenges. |
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Poohbah
Member Since Apr 2011
Location: Io. Near Jupiter
Posts: 1,034
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#3
Angaaaaaaaaaaaaaaaaaaaaaaaaaaaaa... so much stuff.
I hug you aanga....you are my best friend.. __________________ The opposite of a correct statement is a false statement . But the opposite of profound truth maybe another profound truth. (Niels Bohr) Nobel Prize Winner for Physics. The universe started with an 'E'. The universe will end with a 'K'. (lyrics Acid House) Its the truth even if it did not happen. (Ken Kesey) One Flew Over The Cuckoo's Nest. Real science can be far stranger than science fiction and much more satisfying.
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Poohbah
Member Since Apr 2011
Location: Io. Near Jupiter
Posts: 1,034
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#4
annga, dont let meds or anything get in your way...kk.
((aanaga)) __________________ The opposite of a correct statement is a false statement . But the opposite of profound truth maybe another profound truth. (Niels Bohr) Nobel Prize Winner for Physics. The universe started with an 'E'. The universe will end with a 'K'. (lyrics Acid House) Its the truth even if it did not happen. (Ken Kesey) One Flew Over The Cuckoo's Nest. Real science can be far stranger than science fiction and much more satisfying.
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Guest
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#5
Thanks for all the hugs and well wishes! You are all amazing!!
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Elder
Member Since Jan 2011
Location: Hell
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#6
((((((((((((((((((((((((((aanga)))))))))))))))))))))))))) miss you in chat!!!! Thank you for the update!! Hope things pick up soon and i'm sending massive hugs till you are able to come back into chat and chat with us all again!! We really do miss you!! Hope you had a good Christmas!! Massive hugs special
__________________ Don't get caught up in what could be, instead appreciate what is. Appreciate what you have & who you have, because the future can take it away from you. iamspecial is thinking....when all else fails....sit back...look at it....then re-think and start again |
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Magnate
Member Since Jun 2010
Location: USA
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#7
Thanks for the update. That really sucks about the whole nerf gun thing and having to deal with setting people off verbally without being aware of it at the time.
I'm really happy that Skyland is largely turning out well for you. ((((( Aanga ))))) Once again, Merry Christmas! Stay amazing. ♥ |
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metamorphosist
Member Since Oct 2010
Location: Southern US
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#8
((((((Anga)))))
I noticed you weren't in chat, and am glad to know that you are still thinking of your friends at PC. The nerf gun thing sounds like the staff person's problem. They certainly send a mixed message about buying them for you, then freaking out about it. I'm glad they found out about your dad's cancer early. I hope he'll be OK. Best wishes for getting and staying well. |
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