 |
| FAQ/Help |
| Calendar |
| Search |
|
#1
Sep 10, 2008, 01:17 PM
|
||||
|
||||
|
For those of you who are U.S. residents, would you take a moment to fill this out? It would mean a lot to me.
I very nearly did not live through a severe bout of aplastic anemia. Call it grace of God, luck, chance, whatever you will, but there is no cure, just treatment that might or might not work and then lead to remission. It is known to return years later. People over 40 have a much worse outcome, because bone marrow transplants tend to work best in the young. Because it is very rare, there is not a lot of attention given to it by medical researchers. 20 years ago, it was nearly 100% fatal, but what treatments have developed have increased the odds somewhat. A U.S. Rep. from California is sponsoring a bill to increase funding for all bone marrow failure disorders, including aplastic anemia, and it is scheduled for a vote soon. If you would follow the link below and send it to your legislators, it would mean a lot to me. You can write your own message or change the one they give you to say "as a constituent who is a friend of someone with bone marrow failure disease." You guys really are more my family than my family is. Everybody here was so wonderful while I was going through this -- let's help some other folks as well as me.   -- Candyhttp://tinyurl.com/6oolqs |
|
#2
Sep 10, 2008, 03:34 PM
|
||||
|
||||
|
There you go (((Candy))). Don't know how much help it'll do I think they see my name or email address and go "oh crap, not again." Went on a rampage last year about the Virtual school thing last year. Sent it to EVERYONE!
__________________
I've been married for 24 years and have four wonderful children. |
 lenjan
|
|
#3
Sep 11, 2008, 06:39 AM
|
|||
|
|||
|
signed sealed and delivered
|
| lenjan
|
|
#4
Sep 11, 2008, 04:22 PM
|
||||
|
||||
|
I cant get to it.
__________________
 Happy fall my friends
|
|
#5
Sep 11, 2008, 09:57 PM
|
||||
|
||||
|
OK, I will try to get a working link for you -- thanks for letting me know.
 (and for being willing to help!)
|
|
#6
Sep 12, 2008, 07:52 PM
|
||||
|
||||
|
That link worked for me, but the "issue" has been deactivated.
__________________
|
|
#7
Sep 12, 2008, 08:23 PM
|
||||
|
||||
|
Hmmm. I'll look into that too. Perhaps they've voted on it now, I dunno. I have enough to do keeping up with politics in my own city, much less DC.
I'll take a look at the AA&MDS site and see if they've posted any news. |
|
#8
Sep 12, 2008, 09:05 PM
|
||||
|
||||
| Reply |
This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
|
My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
Linear Mode
