Hubby recently entered hospice care, which changes everything

Yes, there is a social worker. I'll just say he wasn't helpful for me. Hubby enjoys his visits, so, good enough, I suppose. Although he hasn't been here in three weeks. I'll ask the nurse about it when she comes back next week. Having a single point of contact for the family for updates worked well in the past, when dealing with acute issues. Not so much now. That caring bridge website seems to be working out for me.

I've also set up a weekly schedule for us. Well for me, really. It's got lots of flexibility into it, but also designated ME days, too. I'm struggling a little with the guilt, in that I'm not giving him my entire focus for every day, every minute. I tried doing that. He was happier, but my bitterness and resentment went overboard, and I had to pull back. Struggling too with his push back, his anger, over stuff like I'll sit outside in nice weather, rather than inside with him. He chooses to not go outside, so I'm trying to let him live with his choices.

I've point blank told his entire family that what he needs is contact from them. Visits if they can, calls if they can't. There was an uptick for about two weeks....and now, silence again from them all. Yet when a friend of his called recently, he refused to speak with him.