[moon66]

I literally went through hell over my medications. I had to go to an ER and get an injection to stop the medication I'm currently on. Then I visited my Psychiatrist and she still kept me on it. I didn't go in angry and I think I should have. Now I'm getting a newer psychiatrist that is less stringent. I had peeling fingers which my nurse said wasn't from that medication. That was when I got over the Akathisia and couldn't sleep. I was in motion all over my house and couldn't lay down or stop. Now presently I rub my thumb against my ring finger. I can stop it but it will happen most of the day. I can stop it but it will still keep doing it. I also had vision problems where I couldn't read up close. It's gotten better. I'm still having peeing problems where I have to wait and stand there and eventually it comes out. It's just where it slow and it comes out slow too. Then it comes out normal. Now I'm meeting a newer Psychiatrist that doesn't like a lot of medications. They said he is good and I will be seeing him tomorrow. I also had peeling on my feet and that is still getting better. I went to my primary care physician and they said it's an allergic reaction to the medication I'm taking. They also took me off of clozapine/clozaril. When I had that akathisia is probably one of the worst experiences. Then my nurse really didn't agree with my primary care physician. I do have skin problems like Psoriasis. I'm also seeing a Dermatologist tomorrow. I'm on a number of medications. I also know that all medications do have side effects. It's just that the peeling fingers they are thinking came from the side effects. It started out as a funny feeling on my finger tips. Then it got worse and started to peel my finger tips and fingers. There a lot better now since my PCP gave me special lotion to put on them. Same with my feet and under the foot.

[Ocean5]

I can relate. Every new problem that comes up is a side-effect. It's very frustrating. And I went to a psychiatrist that realized I was sensitive to medicine after first 2 given, and then gave me low doses of anything else. Even then problems. Even with off-label medicines.

I've had skin problems in past, but good past several years until these medicines, but never dry hands and blisters. Try Cetaphil moisturizing lotion. (The CVS brand is just as good as original from my experience, and cost less.)

Let's just say I'm getting off these medicines, and will be extra careful before I ever take anything again.

[joshuas-mommy]

It doesn't hurt to see another psychiatrist.

[vital]

Originally Posted by moon66

I literally went through hell over my medications. I had to go to an ER and get an injection to stop the medication I'm currently on. Then I visited my Psychiatrist and she still kept me on it. I didn't go in angry and I think I should have. Now I'm getting a newer psychiatrist that is less stringent. I had peeling fingers which my nurse said wasn't from that medication. That was when I got over the Akathisia and couldn't sleep. I was in motion all over my house and couldn't lay down or stop. Now presently I rub my thumb against my ring finger. I can stop it but it will happen most of the day. I can stop it but it will still keep doing it. I also had vision problems where I couldn't read up close. It's gotten better. I'm still having peeing problems where I have to wait and stand there and eventually it comes out. It's just where it slow and it comes out slow too. Then it comes out normal. Now I'm meeting a newer Psychiatrist that doesn't like a lot of medications. They said he is good and I will be seeing him tomorrow. I also had peeling on my feet and that is still getting better. I went to my primary care physician and they said it's an allergic reaction to the medication I'm taking. They also took me off of clozapine/clozaril. When I had that akathisia is probably one of the worst experiences. Then my nurse really didn't agree with my primary care physician. I do have skin problems like Psoriasis. I'm also seeing a Dermatologist tomorrow. I'm on a number of medications. I also know that all medications do have side effects. It's just that the peeling fingers they are thinking came from the side effects. It started out as a funny feeling on my finger tips. Then it got worse and started to peel my finger tips and fingers. There a lot better now since my PCP gave me special lotion to put on them. Same with my feet and under the foot.

That sounds just like what happened to Gwen Olsen

My understanding is that akathisia reactions are dangerous and can become permanent. If I were you, I would really think about getting off whatever is giving you an akathisia reaction.

- vital

[pinkflower17]

Originally Posted by moon66

I literally went through hell over my medications. I had to go to an ER and get an injection to stop the medication I'm currently on. Then I visited my Psychiatrist and she still kept me on it. I didn't go in angry and I think I should have. Now I'm getting a newer psychiatrist that is less stringent. I had peeling fingers which my nurse said wasn't from that medication. That was when I got over the Akathisia and couldn't sleep. I was in motion all over my house and couldn't lay down or stop. Now presently I rub my thumb against my ring finger. I can stop it but it will happen most of the day. I can stop it but it will still keep doing it. I also had vision problems where I couldn't read up close. It's gotten better. I'm still having peeing problems where I have to wait and stand there and eventually it comes out. It's just where it slow and it comes out slow too. Then it comes out normal. Now I'm meeting a newer Psychiatrist that doesn't like a lot of medications. They said he is good and I will be seeing him tomorrow. I also had peeling on my feet and that is still getting better. I went to my primary care physician and they said it's an allergic reaction to the medication I'm taking. They also took me off of clozapine/clozaril. When I had that akathisia is probably one of the worst experiences. Then my nurse really didn't agree with my primary care physician. I do have skin problems like Psoriasis. I'm also seeing a Dermatologist tomorrow. I'm on a number of medications. I also know that all medications do have side effects. It's just that the peeling fingers they are thinking came from the side effects. It started out as a funny feeling on my finger tips. Then it got worse and started to peel my finger tips and fingers. There a lot better now since my PCP gave me special lotion to put on them. Same with my feet and under the foot.

What meds are you on. Those effects combined w certain meds can be really dangerous.

[moon66]

I'm on a number of different medications. The big one that might be causing all of this is Perphenazine. I will tell you the medications in a little bit since there is a lot. Now I'm dealing with pill rolling of my fingers. They have said that Perphenazine is one of the best. I was taken off of Clozaril since it was very sedating. It's just that I don't want the pill rolling to be permanent. I just got over Akathisia and had to go to the emergency room to get an injection of Cogentin. Also this new Psychiatrist said he isn't a pill pusher. He is cutting and taking away Vyvanse. He's cutting some of the other medications I'm on. It's just that I don't want to be going around pill rolling my fingers when I could be taken off of Perphenazine. He's also a lot younger than any of the other Psychiatrist I've had. He's a lot nicer and doesn't seem like the rest of the psychiatrist I've had.

[moon66]

Medications

PM
Depakote 500 E
Depakote 500 E
Benztrophine MES
Perphenazine 16

AM
Benztrophine MES
Bupropion HCL XL
Escitalopram 10
Escitalopram 20
Escitalopram 20
Vyvanse 60mg

All I can really say is that I don't want to have serious side effects. I understand every medicine has side effects. it's just that I don't want to have permanent side effects. I also would like to have this new psychiatrist understand me more. I'm going to provide him with my history and what happened to me. My diagnosis is Schizoaffective Bipolar type with OCD. I've been in numerous hospitalizations and everything. It's just that I don't want permanent side effects. I'm with a group called the ACT Team. I've also told them about the pill rolling. If it wasn't for me calling in and complaining about the Akathisa it wouldn't have went well. It was a very scary experience. I just feel that if a certain medication is going to cause something then I want off of it. I don't care how good it is or if it's the best medication. If it's causing something I would like to be off of it completely and get on something else.

[moon66]

I've also been on this message board and have had other people tell me that Perphenazine is an old school medication. I really don't have a choice. I go to the psychiatrists they give me and they put me on whatever. Also I haven't had the same psychiatrist and they finally got one to stay for awhile. I've seen a lot of different psychiatrists and not the same one. I really don't request my medications and I wouldn't know what to ask for. They also really didn't want to take me off of Clozaril and it took them awhile to agree to it. I do understand I have a mental condition and if I'm not on medications it won't be good for me.

[moon66]

I also went to my Dermatologist and they said that it wasn't the medications doing that to me. They said it was Psoriasis and they're going to put me on Soriatane for Psoriasis. The Dermatologist also requested blood work. I then went to my new Psychiatrist and liked him. I hope he stays and I'm not completely sure if that will happen or not. The group has said that he could be permanent. I hate seeing different Psychiatrists and I am glad he is possibly staying. Also I've noticed with the pill rolling I can stop it. However, it will do it on it's own. When I have my hands on a steering wheel it only does it a little bit and I can drive with it. I just don't want it if the medication is causing it to happen. I hope this helps you guys on this message board understand what is going on.

[moon66]

They are cutting the cogentin since it might be causing the peeing hesitation problem. That medication was given to stop the Akathisia from the Perphenazine. They are taking me off of Vyvanse. I think they're cutting the perphenazine. It's just that it's one thing after the other. You think one thing is going to help and then it causes something else. I get these medicines specially packaged and sent to me since it's hard to assort them myself. It's just that it does anger me cause It's scary and I don't want to be stuck with something.