[Crook32]

My pdoc thinks it is med related because I am on so many. He had me start caffeine pills and drink caffeine through the day. I am still having trouble staying awake while driving and in meetings. So he is dropping some of the meds. I need to raise the Seroquel but he is afraid that will make it worse.

Any other suggestions? Energy drinks are all I can think of. Don’t want to do that though.

[Breaking Dawn]

Hi, Crook32 , I have tiredness almost all the time, but mostly because I'm not getting enough sleep. Probably your doctor checked your thyroid, because that can cause tiredness. One thing I thought I'd mention is that too much coffee can take a turnaround & instead of giving you that familiar pickup, it can cause tiredness. Too much of a good thing, as the saying goes. Also, have you considered seeing a nutritionist? Primary doctors don't usually have a lot of knowledge about nutrition. Good luck with this. I hope you find the answer.

[Crook32]

Already on thyroid meds and recently checked. Dropping 2 meds and will be starting another as soon as the pharmacy gets it. Not drinking too much coffee yet. Just bought a French press for work and trying to figure out the best ratio.

[bpcyclist]

Originally Posted by Crook32

My pdoc thinks it is med related because I am on so many. He had me start caffeine pills and drink caffeine through the day. I am still having trouble staying awake while driving and in meetings. So he is dropping some of the meds. I need to raise the Seroquel but he is afraid that will make it worse.

Any other suggestions? Energy drinks are all I can think of. Don’t want to do that though.

I have been on either Adderall or Provigil (modafinil) for twelve years or so for this very reason. Either one works for me, but I prefer the Provigil because it has no amphetamine euphoria with it and I am in recovery from a long time ago. So, it's safer for me. You should talk to your pdoc about this, in my opinion. Hopefully, they are not one of these pdocs stuck in 1943, who just want you to suffer with your exhaustion and refuse to treat you...

[sarahsweets]

Hey @Crook32 do you mind sharing what meds you are talking about? With seroquel, the lower the dose the more sedating. The higher the dose the more it works as an antipsychotic.

Originally Posted by Crook32

My pdoc thinks it is med related because I am on so many. He had me start caffeine pills and drink caffeine through the day. I am still having trouble staying awake while driving and in meetings. So he is dropping some of the meds. I need to raise the Seroquel but he is afraid that will make it worse.

Any other suggestions? Energy drinks are all I can think of. Don’t want to do that though.

[Crook32]

I tried Nuvigil and it didn’t help.

Levothyroxine 75mcg
Xanax XR 3mg
Lithium 300mg am 600mg pm
Seroquel 400mg
Mirapex 1mg
Metformin 1000mg
Propranolol 120mg extended release
Omeprazole DR 20mg
Xanax 0.5mg twice a day
Cholestyramine
Caffeine
B12
D3
Iron
Probiotic

Going to start rozerem once the pharmacy gets it in.

[bpcyclist]

Originally Posted by Crook32

I tried Nuvigil and it didn’t help.

Levothyroxine 75mcg
Xanax XR 3mg
Lithium 300mg am 600mg pm
Seroquel 400mg
Mirapex 1mg
Metformin 1000mg
Propranolol 120mg extended release
Omeprazole DR 20mg
Xanax 0.5mg twice a day
Cholestyramine
Caffeine
B12
D3
Iron
Probiotic

Going to start rozerem once the pharmacy gets it in.

Nuvigil is SEDATING. It's why the drug has done so badly. It makes a large percentage of people who take it actually fall asleep--including me. It was basically a sleep med for me. Complete joke. Horrible drug, just a patent scam attempt. It did not work. It is why they fought so hard to extend the patent on Provigil for so long--they knew it sucked.

Provigil is a completely different drug. It will work, pretty much guaranteed.

[sarahsweets]

Hey @bpcyclist This is interesting to hear you say. Here is something interesting as well...
My husband is narcoleptic. About 8-10 years ago he was on provigil. We switched insurances and the provigil was no longer covered and (surprise) there was no generic so we couldnt afford the 800$ a month. His doctor was trying to push him into nuvigil. Provigil is made by Cephlon and they had just applied to extend their patent, preventing any generic from making it. My husband refused because he's the kind of guy who wants to take exactly what he was prescribed and if it works he sticks with it and wont switch. Then the pharmacist one day told me that it was going generic. Ironically when we got his prescription through mail order the pills still said "cephlon" on them. Which means the company was making money in the front and at the back end with their drugs. I researched Nuvigil because I couldnt understand why they were pushing it. Provigil contains two isomers I forget what they are called but nuvigil is basically 1 isomer sort of like 1 half of what provigil is. I told him about the reports I read about people still being sleepy and how it did make them feel jittery when it was "working" but that was short lived and a lot of the narcoleptic patients were still struggling with daytime sleepiness. We had to switch insurances again and it wasnt covered again so now he is not on anything and is ok 75% of the time. The rest of the time, if he is in a low stimulus environment he could fall asleep. Not while driving or working just at home. I want him to go back on it but he refuses to have the sleep study again and doesnt want to. He says he didnt like the way it made him feel.
My opinion in a tin-foil-hat world is that the doctors were getting incentives and kickbacks to promote and prescribe nuvigil because cephlon knew its patent extension would fail and provigil would go generic. The patent game is nothing but favors in my opinion. All of a sudden out of the blue nuvigil was everywhere which is ironic because cephlon owns the subsidiary that makes both provigil and nuvigil. It is my opinion that nuvigil Kinda works for some, enough that it "competes" with provigil and at the time was the bigger money maker.

Originally Posted by bpcyclist

Nuvigil is SEDATING. It's why the drug has done so badly. It makes a large percentage of people who take it actually fall asleep--including me. It was basically a sleep med for me. Complete joke. Horrible drug, just a patent scam attempt. It did not work. It is why they fought so hard to extend the patent on Provigil for so long--they knew it sucked.

Provigil is a completely different drug. It will work, pretty much guaranteed.

[bpcyclist]

I am glad your husband seems to be doing better now. That is terrific.

Yeah, the whole patent/big pharma biz is just one massive American scam, in my opinion. I must have gotten like, maybe four months of free Nuvigil when they were pushing it on us so hard. Completely uselsess drug for me, anyway.

[Desoxyn]

Xanax and Seroquel are synergistic with each other along with the propranolol (Decreasing adrenaline and noreadrenaline) which is likely causing you to feel tired throughout the day.

I would start by lowering the Xanax faster than sooner. 4mg is a lot.