Home Menu

Menu


Reply
Thread Tools Display Modes
  #1  
Old Jun 08, 2020, 08:20 AM
Crook32's Avatar
Crook32 Crook32 is offline
Grand Poohbah
 
Member Since: Apr 2013
Location: USA
Posts: 1,897
I have heard from some people about clozapine. I know there are weekly blood test for six months. Is it worth the hassle of blood test and so many trips to the pharmacy? This drug scares me a bit. I heard it is like a last resort.
Hugs from:
bpcyclist, princesscookie19, WastingAsparagus, Yaowen
Thanks for this!
bpcyclist, princesscookie19

advertisement
  #2  
Old Jun 10, 2020, 11:07 AM
WastingAsparagus's Avatar
WastingAsparagus WastingAsparagus is offline
Philosopher
 
Member Since: Mar 2014
Location: South America
Posts: 4,745
I have taken it only briefly, but it caused some serious side effects for me. I know for many it is a lifesaver though. It is, to my knowledge, the first atypical antipsychotic. Meaning it is different, chemically speaking, than the older, first generation antipsychotics (to my layperson brain). Some doctors once suggested that I take it again to help with my impulsivity, but I think that lifestyle changes will help with that more, perhaps. But if you're considering taking clozapine, it might be wise to get a full medical exam before. Just to confirm that clozapine won't exacerbate any other medical things. I don't know, that is just what the doctors suggested I do before I took clozapine. Wishing you well.
Hugs from:
bpcyclist
Thanks for this!
bpcyclist
  #3  
Old Jun 12, 2020, 05:01 PM
Crook32's Avatar
Crook32 Crook32 is offline
Grand Poohbah
 
Member Since: Apr 2013
Location: USA
Posts: 1,897
Well I am going to start clozapine as soon as I can get the bloodwork done. A little nervous but hopefully this will end up being good for me.
Hugs from:
*Beth*, bpcyclist, WastingAsparagus
Thanks for this!
bpcyclist, Sometimes psychotic, WastingAsparagus
  #4  
Old Jun 12, 2020, 05:08 PM
WastingAsparagus's Avatar
WastingAsparagus WastingAsparagus is offline
Philosopher
 
Member Since: Mar 2014
Location: South America
Posts: 4,745
Good deal. I might start it too as soon as I get an appointment with a different psychiatrist. My regular pdoc today did not like the idea of clozapine, but I like the idea of it since I have had so many struggles with doubting things and what not. I am seeing a different pdoc now.
Hugs from:
bpcyclist
Thanks for this!
bpcyclist
  #5  
Old Jun 12, 2020, 06:24 PM
bpcyclist's Avatar
bpcyclist bpcyclist is offline
Legendary
 
Member Since: Sep 2019
Location: Portland
Posts: 12,681
Quote:
Originally Posted by WastingAsparagus View Post
Good deal. I might start it too as soon as I get an appointment with a different psychiatrist. My regular pdoc today did not like the idea of clozapine, but I like the idea of it since I have had so many struggles with doubting things and what not. I am seeing a different pdoc now.
Almost everyone I have talked to who has taken it has had good results with it, I think, all but one person that I talked with.
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield
  #6  
Old Jun 18, 2020, 05:22 PM
Crook32's Avatar
Crook32 Crook32 is offline
Grand Poohbah
 
Member Since: Apr 2013
Location: USA
Posts: 1,897
The lab didn’t send the results to the pharmacy. My pdoc only works part time so I had to wait until today to get my prescription in. Then the pharmacy didn’t have it so they say I might get it Monday. So I will basically get my second blood test before I get any medicine. I can tell this is going to be a frustrating experience.
Hugs from:
bpcyclist, SlumberKitty
Thanks for this!
bpcyclist
  #7  
Old Jun 25, 2020, 06:06 PM
Crook32's Avatar
Crook32 Crook32 is offline
Grand Poohbah
 
Member Since: Apr 2013
Location: USA
Posts: 1,897
Have had 3 25mg doses. I am very tired, tremors have gotten worse and my vision is a little blurry I have to squint to see my computer. But I also feel less erratic but anxiety and ptsd are still there. This is the calmest I have felt in a long time. Can’t wait to see what happens next week when I up the dose and start lowering the Seroquel.
Hugs from:
bpcyclist, princesscookie19, SlumberKitty
Thanks for this!
bpcyclist
  #8  
Old Jun 25, 2020, 10:32 PM
bpcyclist's Avatar
bpcyclist bpcyclist is offline
Legendary
 
Member Since: Sep 2019
Location: Portland
Posts: 12,681
Quote:
Originally Posted by Crook32 View Post
Have had 3 25mg doses. I am very tired, tremors have gotten worse and my vision is a little blurry I have to squint to see my computer. But I also feel less erratic but anxiety and ptsd are still there. This is the calmest I have felt in a long time. Can’t wait to see what happens next week when I up the dose and start lowering the Seroquel.
Hang in there, Crook.
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield
  #9  
Old Jul 27, 2020, 07:13 AM
princesscookie19's Avatar
princesscookie19 princesscookie19 is offline
Member
 
Member Since: Aug 2019
Location: Ireland
Posts: 459
I'mm on clozapine and it keeps your mood stable that's all
__________________
VISIT MY WEBSITE

Clozapine

Clozapine
Hugs from:
bpcyclist
Thanks for this!
bpcyclist
  #10  
Old Aug 22, 2020, 06:40 AM
Lunatyc Lunatyc is offline
Account Suspended
 
Member Since: May 2020
Location: UK
Posts: 1,200
I don't wish to scare you, but when I was put on clozopine, I had tachycardia and was transferred to the heart ward of the hospital. If I'd been on it much longer I may have died from heart failure. It's the most heavy duty medication on the market. A nurse told me to refuse it and try another medication but they had me on Risperidone which wasn't working so I decided to give it a trial. I know the medical community see it as a miracle drug. The blood test monitors your white blood cell count. Its the only medication that depletes these cells. It causes about the same weight gain as quetiapine and olanzapine.
Never the less, I went back on quetiapine. So out of Clozopine, Olanzapine, Risperidone and Quetiapine, its the last that worked best for me. Abilify didn't help me either. But I know we are all physiologically different and even people with the same diagnosis experience different symptoms and differences in the severity of symptoms.
I personally believe that Clozopine should be abolished. The reports of deaths from the drug don't appear as clear cut as they should be. I don't have an underlying heart condition. It was strictly the Clozopine that sped up my heart rate. I could feel my heart racing, it was horrible. I could have died. It is a last resort for some people. So if you have tried everything else then I can see why you may consider Clozopine. The dangers are real.
Hugs from:
bpcyclist
Thanks for this!
bpcyclist
  #11  
Old Aug 22, 2020, 06:53 AM
bpcyclist's Avatar
bpcyclist bpcyclist is offline
Legendary
 
Member Since: Sep 2019
Location: Portland
Posts: 12,681
Do you recall the name of the arrhytmia you had by chance? SVT maybe? A fib?
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield
  #12  
Old Aug 22, 2020, 08:18 AM
Lunatyc Lunatyc is offline
Account Suspended
 
Member Since: May 2020
Location: UK
Posts: 1,200
They suspected it was sinus tachycardia. However it was recorded in my notes as "clozopine sensitivity."
Hugs from:
bpcyclist
Thanks for this!
bpcyclist
  #13  
Old Aug 22, 2020, 09:49 PM
Crook32's Avatar
Crook32 Crook32 is offline
Grand Poohbah
 
Member Since: Apr 2013
Location: USA
Posts: 1,897
They are taking away the one drug that stopped the thoughts and lifted my mood. It is so cruel to give me a glimpse of the past and now take it away.
Hugs from:
bpcyclist, WastingAsparagus
Thanks for this!
bpcyclist
  #14  
Old Aug 23, 2020, 10:16 AM
bpcyclist's Avatar
bpcyclist bpcyclist is offline
Legendary
 
Member Since: Sep 2019
Location: Portland
Posts: 12,681
Quote:
Originally Posted by Crook32 View Post
They are taking away the one drug that stopped the thoughts and lifted my mood. It is so cruel to give me a glimpse of the past and now take it away.
I am so sorry, Crook. Do you have good insurance? Have you read about Caplyta?
__________________
When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield
Reply
Views: 1522

attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




All times are GMT -5. The time now is 09:00 AM.
Powered by vBulletin® — Copyright © 2000 - 2025, Jelsoft Enterprises Ltd.




 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.