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Member
Member Since Dec 2011
Location: United Kingdom
Posts: 215
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#1
hi.
this medication has been a miracle for me. but im experiencing tardive dyskynsia. i got stable on 1.5mg a very low dose. but now ive reduced to 1.25mg and my eyes are twitching all over and my tongue is overactive i dont know what to do.... im terrified these sideeffects will be permanent but the medication is a life saver and i need it.. __________________ DX: BDD, OCD, Avoidant Personality Disorder, C-Ptsd RX: 4mg Diazepam daily ___ |
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Magnate
Member Since Feb 2016
Location: Appalachian Mountains
Posts: 2,040
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#2
I was on it (10 mg) for five years before I developed tardive dyskinesia. I had facial twitches that I couldn't control. I started tapering off immediately, even though the medication had been really helpful with my depression and anxiety. It's been six months and I've been twitch-free for four weeks now, so I hope they're gone for good. Fingers crossed.
I would definitely work with your psychiatrist to taper off the medication because the risk of the tardive dyskinesia becoming permanent is much higher if you stay on the medication. Unfortunately, once you've developed t.d., almost all of the antipsychotic drugs are off-limits for you because they'll all cause the t.d. to recur or get worse. At least that's what my psychiatrist said to me. __________________ "I would rather have questions that can't be answered than answers which can't be questioned." --Richard Feynman |
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*Beth*
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 4,128
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#3
Definitely tell your pdoc so you can taper off it asap. TD can get worse and be permanent and the risk of that happening increases if you stay on it. There may be other treatments that don't have much of a TD risk that will work for you (Abilify has a pretty high risk of movement disorders compared to other atypical antipsychotics).
__________________ Live life for nothing but that sweet sweet melody. |
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*Beth*
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