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*Beth*
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Default Sep 13, 2022 at 10:23 PM
  #1
Since mid-July I have been sick. At first, I felt like I had just a slightly upset stomach. That went on to become queasiness, which progressed to full-blown, almost constant nausea. Throughout July and part of August I also had a bad headache that never went away. The headache finally did stop in mid-August. Then I couldn't eat without having to head for the toilet. I was cutting down the foods I was eating more and more, but it didn't matter what I ate or drank (except water). My stomach was a wreck. About 2 weeks ago I began to have body aches. My legs, arms, hands. At the same time I began throwing up. I also felt very fatigued.

I thought I had picked up a virus, but because it had been going on so long I started thinking that maybe I had covid - although I didn't have any respiratory symptoms and no fever. I took a covid test, which was negative.

I was feeling awful. Really sick. I figured maybe I had developed an ulcer but that didn't really account for the body aches, although I will often get achiness when I don't feel well in general, or if I don't sleep enough.

Then I had a blessing of an insight. In July my PA had prescribed Luvox (fluvoximine), an SSRI, but apparently it is an unusual SSRI in some way or another. Last night I cut the Luvox in half (50mg.). Today, for the first time in months, I have not had any stomach problems. My legs are still somewhat achy, but moving around, stretching, and roller skating will help the achiness. I've not been able to move around very much due to the feeling that I had the flu. Also, I am still taking 50mg. of that horrible drug, which I will be reducing as quickly as I can without causing a bad withdrawal.

I feel remarkably better; I am sure that the Luvox was causing me to be "sick."

Does anyone else here have experience with Luvox?

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*Beth*
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Default Sep 14, 2022 at 03:56 PM
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I guess no one here has been on Luvox...no wonder. The stuff has been awful for me, anyway.

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Default Sep 14, 2022 at 05:05 PM
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I thought I read it was discontinued? Wasn’t this the one that they said caused a kid to kill others? I’m thinking of a L & O based on the news so maybe I’m wrong.

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Default Sep 14, 2022 at 08:00 PM
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That sounds awful. I was never on Luvox. But I have been on Paxil and Lexapro; I am currently on Lexapro.
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Default Sep 14, 2022 at 09:14 PM
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Quote:
Originally Posted by Nammu View Post
I thought I read it was discontinued? Wasn’t this the one that they said caused a kid to kill others? I’m thinking of a L & O based on the news so maybe I’m wrong.
It was one of the kids who carried out the Columbine shooting. I remember because I was on ADs (not Luvox) and not exactly happy about it. That scared me that I could become violent too.

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*Beth*
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Default Sep 14, 2022 at 11:34 PM
  #6
I've been on all the SSRI's and SSNI's at one time or another, but never been sick like I've been. The worst I've had from the other ones are migraines (which are bad enough, but this is ridiculous). Heck, I've been on around 30 meds and never been sick like this on any one of them. I'm trying to come off this garbage medication as quickly as possible. I have never been so sick in my life, except when I had scarlet fever.

You're correct, Rainbow. I just read this: "Luvox was removed from the US market in 2002 following press coverage related to the Columbine Massacre in 1999."

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Default Feb 14, 2023 at 03:30 PM
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I almost went on Luvox; there were some early reports that it was helping long COVID, which I have. But once I did my research, it doesn’t seem to pan out, so I decided not to.

I’m glad you figured out the problem and are feeling better!
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Default Mar 05, 2023 at 08:49 PM
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Originally Posted by AncientMelody View Post
I almost went on Luvox; there were some early reports that it was helping long COVID, which I have. But once I did my research, it doesn’t seem to pan out, so I decided not to.

I’m glad you figured out the problem and are feeling better!

Thank you, AM. I stopped the Luvox soon after I made this post and the physical illness entirely went away. After doing some research on it, I think there's something odd about Luvox, at least for many people.

I'm so sorry you have long covid. I imagine that must feel frightening. Is there anything to treat it?

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Default Mar 15, 2023 at 03:42 PM
  #9
Thank you for your concern! So my specific symptoms are post viral gastroparesis ( loss of appetite, nausea, vomiting) and insomnia.

My gastroparesis is ongoing since my infection in November 2020, and I’ve tried many different things. The medication Reglan which helps the stomach digest food more effectively, worked great for a year and it has unfortunately stopped working . I’m doing acupuncture now, which has helped me go from daily vomiting to vomiting about once every 1-2 weeks, so huge improvement there though I still have some other symtoms.

The insomnia is a weird thing… I had it for nine months after my first bout of COVID. I actually attributed more to the stress of my husband’s hospitalization at the time . I relied on Benadryl and melatonin quite a bit. But then it just resolved spontaneously

However I had a second very mild infection of COVID December 2022 with no other stressors… and the insomnia is right back. So I think the infection itself affects my sleep somehow.

Ativan has been the best thing for my sleep this time because it doesn’t make me groggy. Both hydroxyzine and Benadryl leave me groggy…. But I’m also trying to discontinue the Ativan. So I’ve kind of been in a tough spot there. Valerian root was useless but I’m going to try melatonin again soon.

It’s so weird because historically I am NOT someone who struggles to sleep.
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Default Mar 19, 2023 at 03:24 PM
  #10
I'm so sorry @AncientMelody, the long covid sounds awful. I have done acupuncture in the past with great success. I had recurring kidney infections and western medicine wasn't helping, at all (strong antibiotics that had side-effects but wasn't curing the infections). Acupuncture completely stopped the cycle of infection.


I do tend to have insomnia, but have also found valerian useless. Melatonin, though, is very helpful.

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Default Mar 19, 2023 at 06:14 PM
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How are you now, beth?
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