![]() |
FAQ/Help |
Calendar |
Search |
Legendary
Member Since Mar 2011
Location: USA
Posts: 12,603
(SuperPoster!)
13 5,459 hugs
given ![]() |
#21
Quote:
As I understand it, Parkinsons is not easy to diagnose. Just yesterday I heard from a relative whose elderly friend is suspected of maybe having it, but doctors aren't sure. Compare Parkinsons with a CVA or "stroke." Having had a CVA is usually pretty obvious. But the symptoms of Parkinsons can go on for years before the diagnosis is arrived at. At least, that used to be true. Maybe it's changed. Muhammed Ali had what was eventually diagnosed as Parkinsonism, probably related to head trauma. In retrospect, we can now hear on taped interviews that his speech clearly showed neuro-degeneration years before he was given any diagnosis. Perhaps the Parkinson's Syndrome that he displayed was not true Parkinson's disease, but does it really matter? It was disabling and severely worsened over time. Somewhere in Wikipedia, I read that drug induced Parkinsonism is quite stable and does not progress in severity as does Parkinson's disease, which seems to accord with what your neurologist is saying. Another article from 2012 says that DIP tends to look different in about half the people who have DIP. Then it says that in the other 50 % of patients with known DIP, the symptoms are indistinguishable from true Parkinson's disease. Also, the symptoms may persist for years after discontinuing the offending medication. I just read that "postural instability" does not present until late in the course of true Parkinson's disease. So, if it occurs as an early feature of a patient's Parkinson-like symptoms, then the disorder is more likely Parkinsonism, rather than actual P.D. That also seems to accord with what your neurologist is saying. I also just read that persons with DIP usually recover, after stopping the causitive drug, though recovery sometimes takes up to 2 years. In conclusion, I guess your doctor knows what he's talking about. Still, I'm unconvinced that doctors can always, reliably distinguish Parkinsonism from true Parkinson's disease. It may be that such a distinction is clear in some cases and not so clear in others. |
|
![]() |
![]() |
![]() Tart Cherry Jam
|
Legendary
Member Since Mar 2011
Location: USA
Posts: 12,603
(SuperPoster!)
13 5,459 hugs
given ![]() |
#22
TCJ - I just read in 2 places that cigarette smoking reduces the likelihood of developing Parkinsons. I think I'ld stick with the vitamins.
|
![]() |
![]() |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#23
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#24
I also talked to my neurologist about dance as a therapy for P.D. He agrees that it is very beneficial but does not believe that it slows the progression of the disease. My relative's husband was recently diagnosed (he is in his late 60) and I recommended dancing to him and he will go to a special dance class for P.D. So my neurologist added to that the recommendation of no-contact boxing, again specifically for P.D. See Page not found - Rock Steady Boxing it started in Indianapolis and now is everywhere. And he added a recommendation of a local personal trainer who comes to the homes of patients with P.D. All of these things, per my neurologist, are great to make the disease functionally less debilitating, but they do not slow the progression.
I guess in the end what is important is the burden of the disease, how a person can function and to what extent the person can still enjoy life. __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#25
This is not about P.D. but about Alzheimer's, but I thought I'd post anyway. The neurologist explained that reading is better than listening to audiobooks because listening is passive. He told me it is OK to listen to audiobooks when I am in the car or when I am falling asleep and there is nothing wrong in audiobooks, but to really engage my brain intellectually, I should read.
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Rose76
|
Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 73,238
(SuperPoster!)
14 55.7k hugs
given ![]() |
#26
Quote:
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
|
![]() |
![]() |
![]() Rose76
|
Legendary
Member Since Mar 2011
Location: USA
Posts: 12,603
(SuperPoster!)
13 5,459 hugs
given ![]() |
#27
Quote:
I heard that doing math actually improves how the brain is wired. I'm not good at math, but when school forced me to do math exercises, it did make me feel better mentally. Working math problems is like calisthenics for the mind. I wonder if mathematicians have a lower incidence of cognitive impairment when they age. At least with audio books, you can be doing something else while you listen. Sitting in front of a television screen puts you in a state of passivity that I'm sure can't be good for the brain. It's the ultimate passive activity. You sit motionless and just stare and listen. Well, I think I'll iron in front of the TV. I've done enough sitting today. |
|
![]() |
![]() |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#28
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Nammu, Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#29
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Nammu
|
![]() Nammu, Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#30
Quote:
I am excited that you consider writing, including writing on this forum, a mind-stimulating activity. It definitely is for me, but I did not think of categorizing it this way. Thank you! I have Alzheimer's on both sides of the family and I carry a gene mutation that slightly increases my risk, so anything that can be intellectually stimulating should be a bonus. Yes to writing! __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
|
![]() |
![]() |
![]() Nammu
|
![]() Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#31
I have talked to my sleep psychologist (a PhD) whom I see infrequently. She is a skeptic and very science-based. She said that she was skeptical about the idea that audiobooks are not as good for us. There simply has not been as nearly as much research into audiobooks, but as a largely unstudied medium, they are not necessarily worse. And she and I talked about how some narrators are so amazing that your mind works at high speed imagining everything that is happening in the book, even more so than you imagine when you read. And imagination can't be a bad thing, right?
Still, I have finally started reading a paper book and I am enjoying it for a change. I have not a read a real thick book in years. It is a non-fiction book, but still. __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#32
Quote:
He has been using cannabis to treat bipolar. He is somebody who believes that cannabis can cure stage IV cancer. So yes, his beliefs are crazy overall, but in terms of finding treatment for himself, he seems to be pretty effective. Now, I have never seen his medical records and that "he has bipolar" is based on his own words. I do not know whether that is his valid diagnosis. *** I have another friend with Bipolar II whose diagnosis is most certainly valid, who is on a cocktail of physician-prescribed medications but who also, on his own but with the physician's endorsement, vapes marijuana, primarily on weekends. I find that he lacks a social life, rarely goes out to events and gatherings, does not do any physical workouts etc., and from what I can see, escapes reality into cannabis-induced pleasant states. But again, whatever works for him. He has been doing it for decades and there has not been any worsening in his bipolar but in fact there have been improvements, most likely due to medication combinations finessed via trial and error. *** That is all I know from second hand knowledge of people IRL who have been on cannabis with a bipolar diagnosis, except in the first case I do not know if the diagnosis has been properly verified. __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
|
![]() |
![]() |
![]() Rose76, unaluna
|
Legendary
Member Since Mar 2011
Location: USA
Posts: 12,603
(SuperPoster!)
13 5,459 hugs
given ![]() |
#33
I'm finding that cannabis gummies are excellent as sleeping pills.
|
![]() |
![]() |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#34
As long as they keep working, enjoy!
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Rose76
|
Member
Member Since Oct 2017
Location: Boston Massachusetts
Posts: 250
6 1 hugs
given |
#35
Line were like little anxiety pills, I so wish they worked. They did help me sleep and when I woke I saw weird geometric patterns.
Sent from my iPhone using Tapatalk |
![]() |
![]() |
![]() Rose76
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,687
(SuperPoster!)
3 1,211 hugs
given |
#36
I wonder if anyone has studied how mathematicians age, in terms of cognition. I will ask thr neurologist next time I see him.
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
![]() |
![]() |
![]() Rose76
|
Reply |
|
![]() |
||||
Thread | Forum | |||
Anyone try medical cannabis for Bi polar/ ADHD/ Sleep | Bipolar | |||
Medical cannabis For Bipolar | Other Treatments | |||
Medical Cannabis/Marijuana (legal use) | Psychiatric Medications |