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Grand Poohbah
Member Since Feb 2012
Location: Eastern MD
Posts: 1,513
12 22 hugs
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#1
My insurance covers caplyta but the cost is $700! Pharmacist said caplyta costs $17,000! I called maker of caplyta to see if I can get a discount and they said maybe if I get a voucher from my Dr. I want to take it REALLY badly. My Dr. said it should help me.
I've been on disability 20 yrs and have Medicare and Humana for prescription coverage. Prozac completely destroyed me 8 mths ago and all of my 6-7 symptoms have been very severe and out of control ever since including giving me insomnia. Dr stopped prozac 6 mths ago and nothing changed! Tried to kill myself 6 mths ago because my mood was absolute torture every second so I had to do something and it didn't work! I've taken every psych med the last 35 yrs with 99.9% no relief including 5 ECT trials which destroyed my energy and can barely do anything anymore! __________________ Forget the night...come live with us in forests of azure - Jim Morrison |
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![]() Yaowen
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Grand Magnate
Member Since Jan 2020
Location: USA
Posts: 3,653
(SuperPoster!)
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#2
$700 is a lot for a medication. A long time ago I was on a medication that was very expensive and I couldn't afford to pay for it. I hope you will be able to get help from the maker of Caplyta. So sorry that you have been so heavily burdened with distress in your life. That is really heartbreaking. It is also heartbreaking that all the treatments you have tried have not worked. How awful. Wish I knew what to say to help!
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![]() cool09
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Grand Poohbah
Member Since Feb 2012
Location: Eastern MD
Posts: 1,513
12 22 hugs
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#3
Thanks for reply.
I took saphris in the hospital 1.5 yrs ago for my acute anxiety and it stopped my anxiety completely and couldn't believe it. I got home and started to enjoy myself, started playing the guitar again, started to like myself (which I haven't done since I started dissociating at 13 yrs old - and I'm 60 now) and stopped ruminating about my problems. Then saphris abruptly stopped working after a mth. So I went back to the hospital and Dr said he was going to stop and restart it and I was on it for 6 mths and it didn't do anything. It was expensive and I couldn't afford it and I got it free from the manufacturer. My anxiety's been acute since I was 13 and nothing's really helped. Been on klonopin last 20 yrs and didn't do much for anxiety or panic attacks but it did stop my tremors. But for some odd reason I haven't been anxious at all the last 8 mths - I can't figure it out! It's a relief because it used to totally overwhelm me and incapacitate me and I would end up in the ER. I saw a lousy Dr in Baltimore several yrs ago and told her about my anxiety and she said "Have you made friends with your anxiety?". I couldn't believe it! So I never went back to her! And my therapist just used to say "You have to manage it" and I had NO clue what she was talking about (and deep breathing never helped me). But anxiety is not my problem at the moment. It's my energy, mood and sleep. Nothing's helped my energy since I had ECT in 1992, even extensive exercise all my life. Part of my day has been decent last 3 wks after I started 3 new meds (lithyronine, vibrid, ritalin) and symptoms are manageable and I can go out now (I couldn't get out of bed last 8 mths) but my afternoons are pretty bad and have to lay down and I told my Dr that this isn't acceptable and I can't go on like this anymore. I want to feel good the whole day! There are some things I want to do and I can't do them - I want to pick up the guitar again and I want to start a hobby but don't have the energy or concentration. Dr told me in December he couldn't help me anymore because he gave me a test and my testosterone and adrenal levels were high and he said I needed to see an endocrinologist badly. And he's been hesitant to do anything since then. And he's the best Dr I've had in 35 yrs - he's young and bright and cares about me and says he wants to help but constantly changes his mind. I've begged him last 5 mths to give me something for my mood and 2 mths ago he said "Sure, come on in" and I went in and he said "I'm not going to give you anything". It took me 4 mths to see an Endo and she didn't get back to me after 2 mths with blood test results and never told me when she wanted me to take another test. Finally took urinalysis 2 wks ago and her office told me this week that all my tests were OK. 3 wks ago Dr finally decided to do something and said "I have to do something because Endo isn't doing anything". So he gave me 3 new meds and part of my day has improved. And this wk he wanted to add caplyta and said it will help me and I REALLY want to take it. I really hope I can get it somehow! I was sick before prozac 8 mths ago but not nearly this sick. I can't figure it out. I was sick like this in 2017-18 and 1990-1994 and spent all the time in the hospital. All hospitals have done since 1990 is abuse and ignore me and I have PTSD from the hospital now and refuse to go back to one. Take care. __________________ Forget the night...come live with us in forests of azure - Jim Morrison Last edited by cool09; Jun 15, 2024 at 06:14 PM.. |
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