Couch 240: The Vanadis Couch

ArtieTheSequal · Oct 05, 2022 at 07:04 PM

Oh Mobius, I'm so sorry. I agree with LT can you consult with a different neurologist?

ScarletPimpernel · Oct 05, 2022 at 07:48 PM

I feel violated! That was excruciatingly painful. They should use anesthesia or something numbing. It felt like a serrated knife being twisted inside me. And now I have this thing inside me. I feel like I betrayed myself and my body.

I'm physically okay now. Definitely cramping, but it's manageable. I feel like I have to be careful. I'm scared of it moving and going through the wall.

I just have to keep reminding myself that this is to get healthier. This is for the possibility of having a baby one day: from birth or adoption.

I'm just depressed and feel disgusted right now. It sucks...

ArtieTheSequal · Oct 05, 2022 at 07:50 PM

oh Scarlet I'm so very sorry it was so awful. sending more hugs.

LonesomeTonight · Oct 05, 2022 at 08:28 PM

Hugs, Scarlet, I'm sorry it was so painful. They should have given you something.

NP_Complete · Oct 05, 2022 at 08:55 PM

I've read stories about doctors not believing women when they tell them how painful the procedure is or basically telling them to just suck it up. I guarantee if it was men having it done, it'd be done under some sort of anesthesia.

ScarletPimpernel · Oct 05, 2022 at 11:51 PM

Physically, I'm feeling better. Minor cramping. And mentally, I'm coping. However, I'm trying to stay in denial as much as possible because I know emotionally I'm a mess. I haven't cried since the drive home. I'm also babying myself right now. I'm barely moving. I'm scared of it tbh. I'm scared of it moving or falling out.

Overall, I think I'm doing the best I can do.

ScarletPimpernel · Oct 06, 2022 at 10:42 AM

Still crampy and now bloated. Still afraid to move too much or to go to the bathroom. But I think I'm doing really well considering. Least better than what I thought.

MobiusPsyche · Oct 06, 2022 at 11:12 AM

Thanks, Artie and LT. I could go to a different neurologist but I live in a rural area. To get outside this health system I'd have to drive at least 4 hours round trip each time. Still, it might be worth it! It's something I am considering.

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stopdog · Oct 06, 2022 at 01:14 PM

Quote:

Originally Posted by MobiusPsyche

Thanks, Artie and LT. I could go to a different neurologist but I live in a rural area. To get outside this health system I'd have to drive at least 4 hours round trip each time. Still, it might be worth it! It's something I am considering.

Sent from my SM-S908U using Tapatalk

I would try at least a consultation with another one just to see if they have any useful ideas. Good luck

LonesomeTonight · Oct 06, 2022 at 01:28 PM

Quote:

Originally Posted by MobiusPsyche

Thanks, Artie and LT. I could go to a different neurologist but I live in a rural area. To get outside this health system I'd have to drive at least 4 hours round trip each time. Still, it might be worth it! It's something I am considering.

Sent from my SM-S908U using Tapatalk

I wonder if it would be at all possible to do telehealth for an initial appointment? I imagine neurologists want to do certain in-person tests, but if it's more of a consultation, it could be a possibility. Then they could send you for bloodwork, imaging, etc. closer to you.

ArtieTheSequal · Oct 06, 2022 at 01:38 PM

Made these while waiting for h's GI procedures to be done this morning (as I had to drive him home). Much to his credit, and for once, he did not say any negative things about my driving. The wiggle worms are supposed to be like pumpkins; not sure if I succeeded!

unaluna · Oct 06, 2022 at 02:14 PM

They are butternut squash! A seasonal gourd.

LonesomeTonight · Oct 06, 2022 at 03:16 PM

Quote:

Originally Posted by ArtieTheSequal

Made these while waiting for h's GI procedures to be done this morning (as I had to drive him home). Much to his credit, and for once, he did not say any negative things about my driving. The wiggle worms are supposed to be like pumpkins; not sure if I succeeded!

Love the orange worms!

ArtleyWilkins · Oct 06, 2022 at 05:22 PM

Quote:

Originally Posted by MobiusPsyche

I am so very upset right now. Yesterday I finally got to see my neurologist about my worsening memory issues and not only did she not help... she gave me the old brush-off. She said my tests (an MRI and neuropsych testing) were normal so I was fine. Gee, sorry I cannot demonstrate my symptoms during a 15-minute appointment while you are starting at the damned computer screen. Did you notice that I brought a printed, typed list of what I wanted to talk about? Gee, maybe that is why I didn't have huge observable problems with word-finding?

She said to continue to work on my depression, reduce stress, and not worry about it. "I know you will be fine." Lady, I have had a stroke and hand mal seizures in the past. I am currently having memory loss and worsening aphasia. You cannot possibly know that I will be "fine." The best you could possibly do is say that I'm fine now... but I just told you that I am not, in fact, fine.

She always says to reduce stress... every damn time I've seen her since 2014. I told her 3 things I had done to reduce stress but she didn't pay any attention to that. She practically patted me on the f@#$ing head, she was so patronizing.

My T did talk to me last night but she sort of took the doctor's side. T said the MD was trying to help but didn't know. Maybe not, but she should at least try not making it WORSE by belittling my concerns.

Then this morning, I was in a meeting and was confused about something. A friend was talking about a symposium, but i didn't know it was called that...I thought it was called something else and the symposium happens in April (not November). Oh no, that is called the Expo, she says. I teared up and said I'm sorry I can't keep the difference between an Expo and a symposium straight. It turns out, both events have the word Symposium in the title because people are dumb. But I was about to walk out because I was thinking back on the neurologist telling me I was fine.

Then, a different coworker asked me to explain something I had reported someone from another unit saying. "What do they mean by that?" FFS, how do I know? No, I said, I cannot explain their reasoning. You would have to talk to them.

So angry at being dismissed and yet still so clearly having problems with thinking and memory. Oh, that is caused by the depression. Damn it, I am telling you that my depression did not start to get worse until May! The memory problems and aphasia worsening started in January!

TL;DR My neurologist sucks and dismissed my problems as only being due to depression.

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Find a psychologist who specializes in assessment of memory loss issues. They will do testing more specific to the issue.

When my husband was being assessed for disability, they sent him for this type of testing specifically. It took about three hours and he was diagnosed with early onset dementia.

SlumberKitty · Oct 06, 2022 at 05:26 PM

Last night of music therapy tonight. They have had it via Zoom for the whole time I was in the program, approx 13 months. But next week they move everything to onsite and it is simply way too far for me to try to drive there and back and it would be really late at night that I would be getting home. I'm going to miss having it. I'm not sure I am going to attend tonight. I'm like of like, don't want to be sad about it ending so if I don't go, I won't have the sadness.

SlumberKitty · Oct 06, 2022 at 05:28 PM

I sent my pdoc my labs that I had done at my GP's request. I always send him my labs. The past two months that I have been on Olanzapine/Zyprexa, my A1c has skyrocketed. The hospital put me on this medicine but he needs to take me off. I hope he replies to either the message on the fax or the message I put in the portal because even though I am kind of stable on this med, I cannot be on this med if it is just going to make me another kind of sick. My friend who is a retired nurse told me to stay on it until I hear from him and don't discontinue the medicine until I hear from him, so hopefully I hear from him.

ScarletPimpernel · Oct 06, 2022 at 06:08 PM

If you have a high A1C, it's important to control it with meds. There are a lot of meds out there, so if one doesn't work, another might.

My H cannot take Metformin. It causes him cramps and stomach upsets. He's now on two better meds which his stomach is fine with.

The only way to get off diabetic meds completely is to fix your diet and exercise, or get off the meds that are causing the increase.

atisketatasket · Oct 06, 2022 at 10:24 PM

Literally spent ten hours today on estate business. And am still on Step 1 of this part.

The hour I didn’t spend on estate business was spent at acupuncture for the first time since May. It helped.

SlumberKitty · Oct 07, 2022 at 11:30 AM

Quote:

Originally Posted by ScarletPimpernel

If you have a high A1C, it's important to control it with meds. There are a lot of meds out there, so if one doesn't work, another might.

My H cannot take Metformin. It causes him cramps and stomach upsets. He's now on two better meds which his stomach is fine with.

The only way to get off diabetic meds completely is to fix your diet and exercise, or get off the meds that are causing the increase.

Thanks. My pdoc doesn't want to pull me off of Olanzapine so he is adding Metformin. Great another pill to take.

SlumberKitty · Oct 07, 2022 at 11:34 AM

I've always wanted to try acupuncture. I'm glad it helped @@

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Couch 240: The Vanadis Couch

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ArtieTheSequal Writing my way through... Member Since Feb 2020 Location: In the desert Posts: 7,236 (SuperPoster!) 4 5,766 hugs given	Oct 05, 2022 at 07:04 PM #161 Oh Mobius, I'm so sorry. I agree with LT can you consult with a different neurologist?

ArtieTheSequal Writing my way through... Member Since Feb 2020 Location: In the desert Posts: 7,236 (SuperPoster!) 4 5,766 hugs given	Oct 05, 2022 at 07:50 PM #163 oh Scarlet I'm so very sorry it was so awful. sending more hugs.

LonesomeTonight Always in This Twilight Member Since Feb 2015 Location: US Posts: 20,754 (SuperPoster!) 9 75k hugs given	Oct 05, 2022 at 08:28 PM #164 Hugs, Scarlet, I'm sorry it was so painful. They should have given you something.

NP_Complete Grand Magnate Member Since Feb 2017 Location: the upside down Posts: 3,808 7 6,352 hugs given	Oct 05, 2022 at 08:55 PM #165 I've read stories about doctors not believing women when they tell them how painful the procedure is or basically telling them to just suck it up. I guarantee if it was men having it done, it'd be done under some sort of anesthesia.

ScarletPimpernel Wise Elder Member Since Nov 2013 Location: US Posts: 8,410 (SuperPoster!) 10 6,418 hugs given	Oct 06, 2022 at 10:42 AM #167 Still crampy and now bloated. Still afraid to move too much or to go to the bathroom. But I think I'm doing really well considering. Least better than what I thought. __________________ "Odium became your opium..." ~Epica

unaluna Elder Harridan x-hankster Member Since Jun 2011 Location: Milan/Michigan Posts: 39,866 (SuperPoster!) 12 66.4k hugs given	Oct 06, 2022 at 02:14 PM #172 They are butternut squash! A seasonal gourd.

atisketatasket Child of a lesser god Member Since Jun 2015 Location: Tartarus Posts: 19,149 (SuperPoster!) 8 12.4k hugs given	Oct 06, 2022 at 10:24 PM #178 Literally spent ten hours today on estate business. And am still on Step 1 of this part. The hour I didn’t spend on estate business was spent at acupuncture for the first time since May. It helped. __________________ The secret to eternal youth is arrested development.—Alice Roosevelt Longworth

SlumberKitty Legendary Wise Elder Member Since Jul 2018 Location: CA Posts: 27,329 (SuperPoster!) 5 117.7k hugs given	Oct 07, 2022 at 11:34 AM #180 I've always wanted to try acupuncture. I'm glad it helped @@ __________________ Dum Spiro Spero IC XC NIKA