[seesaw]

I posted this in the Premiere Poohbah forum but I wanted to share more widely and hear others' similar stories, if they want to share.

I feel like I'm fighting the world right now. I've had to have numerous fights with Kaiser about getting the right care. But finally today a small victory. After an urgent care visit, a GP visit, and a night in the ER, I had a phone appointment with a doctor today, and after having to argue with her, I finally got her to refer me to a neurologist. And they actually called me today and scheduled the appointment. July 18. Hopefully some answers around that time. I'm going to keep a detailed journal of symptoms between now and then. It could be debilitating migraines but that would leave out a long list of symptoms. Someone here mentioned CFS, and that seems likely. Also, I was researching neurological conditions in general, and strangely, M.S. seems to fit. I am not self-diagnosing, just making notes of things to ask the neuro doc about to either rule out or confirm. The other possibility which is likely is narcolepsy. Those three would actually cover all of my symptoms, even the weird outliers.

So that was a small win.

Just as I was celebrating that small win, my housekeeping service is trying to renege on their contract. The housekeeper is included in my rent as an amenity, but they have been unreliable, and I have given them feedback complaints about this unreliability and lack of communication that has resulted in more then minor inconveniences to me. Rather than reach out at all to address these problems and resolve them, they are saying they cannot meet my expectations (like seriously my expectation is that they be there before 5pm and that I don't have to supervise them, not a whole lot). I responded if they fail to provide service I will seek to have my lease voided with my apartment complex since I selected this place specifically for that amenity. And that is 100% true. I told the apartment manager when I looked at this place that I needed convenience due to my disability and work requirements. I told him specifically I was looking for a complex that could provide me support. I set up my weekly service with the housekeeper before I set up my water/power account. That should tell you something. So now I am dealing with that. Hopefully they will resolve these issues rather than just try to "fire" me as a client, since the resolution is pretty simple. Unfortunately they have complaints all over every review site exactly about this issue.

My housekeeper herself though is lovely and we communicate through Instagram since she can't give me her phone number. That was our loophole. She's always so sweet, the dogs love her, and if I'm not feeling well and need to sleep, she just does the chores in the kitchen and locks the door when she leaves. My complaints have always been about their lack of communicating from the office, not about the housekeeper herself, and she knows that. And, I also have pretty much never complained about the service provided itself. Aside from a couple of grocery receipts that had some other client's stuff on it, I've never complained about the quality of the chores done, except for yesterday when they sent a replacement housekeeper bc she was sick. And he had no clue what to do. I had to instruct him on how to put groceries away. I was polite to him and told him I wasn't feeling well and he could leave the rest of the chores. I did then follow up with customer service and explain that I had told him to leave because I am not able to supervise. So that is now a battle I have to fight. If they discontinue service then I have to pay another provider to do these things, which means I have to pay out of pocket. So I'm trying to puff up a bit and make my landlord lower my rent if the service cannot be provided as promised, especially when I had made it clear that was the deciding factor on signing this lease. We'll see. Kinda feels better just to talk about it here. I don't want it to ruin my whole weekend any more than my weekend is already ruined considering I've had an "episode" this whole week, starting Saturday night...hence the ER visit last night.

And then a dress I ordered online came in the mail, and of course it doesn't look anything like the picture, So I complained and asked to return it. Then they kept reaching out to "resolve" it and I'm just like, you know what, you had one chance and that's it. Let me return it for a refund and apologize for the mistake and let's be done. Then today while I'm trying to deal with doctor's stuff on the phone, and not feeling well, of course, someone from the company called and wanted to talk, and I was like, um, I'm sorry but I'm dealing with a thing right now, I can't talk to you. And I hung up. But then when I got through my doctor's stuff I emailed them and let them know they could call me back but that I had been in the middle of an urgent matter and waiting on a doctor's call and thought they were the doctor when they called (obviously that would irritate anyone waiting to try and get medical care, lol).

I did talk to the leadership seminar I'm taking again this summer, in two weeks, in fact, and discussed accommodations with them, and they were totally willing to do a few things to help me get through these 2 weeks of 11+ hour days. And since I did the course last year they were also comfortable that I wouldn't miss a whole lot if I need a break. My hope is that knowing I can use the accommodation will give me relief to not need it.

So, I'm fighting with the world right now. At least that's what it feels like? Anyone else ever feel that way?

Thanks.

[seesaw]

I just need some support and validation right now. Fighting with providers to get them to listen and not write off my symptoms and the severity WHILE you're sick is so exhausting. And then trying to work at the same time. Then my home support, my housekeeping service, is trying to do some funny business. Not cool.

I'm really amped up right now. I need to do stuff to calm myself down. I can feel this physical episode is now triggering a sort of PTSD-related episode. Love how that all works. Well, at least I can know it and maybe deal with it that way.

[Crazy Hitch]

Sorry to hear that sees.

You’ve got a lot going on. I think you should “prioritise” in your mind right now what’s the most important and where you should be focusing your energy.

Your health matters most. You have that appointment set up. Tick.

Your housekeeper situation. Hopefully your regular housekeeper will be back. Don’t over stress over the newbie that you had to explain how to put groceries away. If you came to my place and I had groceries, you’d be asking questions too, if you know what I mean.

By all means speak to your landlord about lowering your rent if they can’t provide the service. Just don’t focus all your energy on that right now.

As for the outfit? In the bigger scheme of things that is just not a priority right now. By all means send it back to whatever address they provide but don’t spend your negative energy there. There’s too much else to think about.

[MickeyCheeky]

I'm so sorry you're dealing with so much stuff, seesaw Please hang in there. I agree with Crazy Hitch's wise advice. Just focus on one thing at the time. Your health must be the priority. Focus on your doctors' appointments right now. The rest can wait Hopefully you'll be able to solve those issues about your housekeeping and your dress. Right now just focus on providing the BEST possible self-care for yourself. I'm sure you'll get through this. We're here for you if you need support of ANY kind. Feel free to PM me anytime. You know I'm always here to listen to you or to anyone else. Don't hesitate to contact me if you need to. I'm sure others will gladly help as well. Hang in there! It DOES get better. I'm SURE of that. Just keep fighting and keep trying your best like you're already WONDERFULLY doing. Sending many safe, warm hugs to you, seesaw, and to ALL the people you Love and who truly Love you!

[seesaw]

I appreciate the support @Crazy Hitch and @MickeyCheeky.

I agree in prioritizing dealing with these issues. The dress thing is a nonissue, it was just adding stress onto an already overwhelming day.

The housekeeper thing is not so simple as that. They are supposed to provide this service when I'm away from home normally. The whole point is that I come home and the chores are done and groceries put away. This young man had mo domestic skills and needed complete supervision to simply put groceries in the appropriate place. I do not have capacity to oversee him and that they are causing stress versus convenience is a huge issue when I have limited capacity for anything due to my health condition right now. Please do not invalidate me by suggesting that asking them to provide a minimum standard of quality or even just the actual service paid for (I didnt even tell the whole story of what happened here) is unreasonable or that they deserve slack. They do not. So, no, I dont know what you mean when suggest that a housekeeper would need to be supervised on basic housekeeping chores. The whole point is that I don't have to deal with those things so I can deal with my health, and instead they make things more difficult or worse. But I will deal with that in steps. They are now in breach of contract.

What I really need is some support and validation from people who understand. I dont need to be told what to worry about or not or to cut slack to people I'm paying hundreds to to do a job (and also working my *** off to pay these bills).

My specific request was for people who have been here and understand to share their stories so I didnt have to feel so alone, but i did not ask for advice. I do not need nor wish to hear what anyone thinks I should or should not do. That's not what I need right now. Thanks.

[seesaw]

Moderators please close this thread. I was not seeking advice or suggestions, but validation and commiseration and now I feel even worse and completely invalidated.

[atisketatasket]

Thread closed at op’s request.

As a general request, please note what an op asks for in their posts and respect it. If they don’t want advice, please don’t give it.