[jrae]

after 2 1/2 months of waiting, the ball is finally rolling. i have no clue where this journey is gonna go, just only that it's gonna be one h**l of a ride! will likely need all the prayers and support i can get

i have my brain scans on the 31st, and there seems to be a growing chance that they will actually show something!!


back-story:
this summer while i was having my 'extra stuff' going on [post titled 'the journey ahead'], i started to notice a few 'other' symptoms occurring. i labeled these things as 'outside' of my brain injury symptoms (which are still on-going).
then i realized in August that what i was noticing were actually neurological symptoms (all but two of the new 'other' symptoms). so in early September, i had a virtual appt with my local physician to discuss these things i was noticing. it was advised i see an internal medicine doctor/specialist to figure out what was going on.

i saw the internal medicine doctor in early November, and he thought it best to get some MRI scans and nerve-testing tests done. at this time, he wanted to hold off on putting those orders thru until the neurologist saw me. he ordered some blood tests to see if that showed anything. a few of my numbers were a little low, so he said they would be re-checked at the follow-up appt.

i saw my B.I. doctor (brain injury doc i've been seeing since early last year) in early December, who upon hearing about these 'other' symptoms, went ahead and right away put in the order for my MRI scans. at this time, my 'other' symptoms included 5 neurological ones plus 2/3 other symptoms. the only ideas i had as to 'what might' be going on was this: a) the local physician said 'with two of my symptoms, they would look at something along the lines of MS; but given my 'head' history, it could be something like brain lesions'; b) the internal medicine doc said it could be related to my brain injuries.

now last week, what my optometrist told me made me worry more. he told me that the two new-visual-things i described, meant i was having "neurologic reactions manifesting as visual symptoms". he added, that is in an area of the brain 'outside of the visual pathways'. he also told me that if you take away my brain injuries, he would think my symptoms would be from a brain tumor! [he admitted that's happened twice with patients of his] and this is looking at only my visual symptoms, nothing else!!!
this now adds 1/2 additional symptoms to my list of 5 neurological symptoms!


i feel terrified and alone and scared out of my mind and so much more! i have known for many months that something 'more' was going on, but i was thinking something like an auto-immune disease. i was in NO way thinking about MS or a brain tumor......

[TunedOut]

The possibility of MS or a brain tumor does seem very scary. Maybe it will just (I know this is NOT good either ) be a brain lesion. I know that not knowing when it could be something so serious is very hard to handle. I said a prayer for you. Thank you for letting us know what is happening.

[*Beth*]

Hiya jrae, I just dropped by to let you know that I am sending good vibes your way. Keep us posted.