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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,217
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#1
I was dxd with rapid cycling bipolar for 11 years. I was recently hospitalized for 35 days where my dx was changed to schizoaffective which my psyd has suspected for over a year now.
It’s bittersweet, __________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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Blue_Bird, cptsdwhoa
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Legendary Wise Elder
Member Since Jun 2013
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#2
Hi Halliebeth, sorry about your recent hospitlization, hope your new dx provides some clarity for you and helps your treatment
I was initially diagnosed Bipolar about 7 years ago but then after 2 or 3 months it was changed to schizoaffective bipolar type and it's been that ever since. There's a lot of members with sza in the Schizophrenia forum here if you ever want to check it out, for some reason this particular board is never very active __________________ R.I.P mom 8/6/55-1/15/16 “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
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cptsdwhoa
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,217
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#3
Ok thanks
__________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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Poohbah
Member Since Dec 2004
Location: NM
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#4
Sorry about the hospitalization, although I hope it was helpful. I haven't been on here in a few years and it's nice to see a few familiar names still around.
__________________ God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. |
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Veteran Member
Member Since Jul 2018
Location: Somewhere in the 1990s
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#5
I'm so sorry about your hospitalization, but I hope that your dx helps to clarify things for you.
I know what you mean about it being bittersweet. It's taken me a very long time to accept my struggles with MI and this dx (dx with bipolar type). It does add up for me though and I'm learning to deal with it. |
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,217
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#6
I was ok for a few weeks
And then slipped Back into psychosis and ended Up In the hospital For 20’more Days __________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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Senior Chat Moderator
Member Since May 2012
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#7
hallie i am sorry about the hospitalization. but it was probably the best thing. Now you know you are sza, i have lived with sz for 47 yrs. you can get a handle on it for periods of time. it is a thankless dx but you can learn to manage it with some effort.
i am pulling for you to stabilize and prosper. tams __________________ Tams https://www.youtube.com/watch?v=6Whgn_iE5uc https://www.youtube.com/watch?v=6FOUqQt3Kg0 YOU LAUGH BECAUSE I AM DIFFERENT, I LAUGH BECAUSE YOU ARE ALL THE SAME Don't only practice your Art, But force your way through into its secrets, For it and Knowledge can Raise men to the Divine. Beethoven |
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still_crazy
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Legendary
Member Since Oct 2004
Location: usa
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#8
Thanks. I see my dr tomorrow. I’m just so depressed
__________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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Veteran Member
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#9
I'm so sorry about your hospitalization. I've learned to be really thankful that hospital support is there though.
I agree with Tamster. You can learn to manage it with some effort. I've learned to accept every bit of help I can get that will help me to manage it. You can definitely get a handle on it for periods of time. I'm currently in a stretch of almost four years with no hospital stays so that is great progress for me. It seemed like I was going in back to back for a long time. I'm pulling for you to get better and to have stability. |
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,217
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#10
Thanks. I’m hoping this depression will go away soon. I recently switched back to my old dr though because my new pushed ECT only and it hasn’t been helping even after 7 treatments. My old dr saw me today but he still maintains I have bipolar with psychotic features while my psychologist says sza. It’s whatever. I just want stability and this dr has helped me find it in the past.
__________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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cptsdwhoa, still_crazy
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cptsdwhoa
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New Member
Member Since May 2019
Location: AZ
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#11
I am late posting about your diagnosis. It did throw me for a loop when I got the diagnosis after being diagnosed with bipolar I for a while. It was discouraging for me. I have had the diagnosis for a long time. My schizoprenia part of me is worsening in a strange way. I have negative symptoms of it.
But one thing I am very grateful for is my meds and I never get tempted to get off of them. The price would be too high for me. You can and will get better but you DO HAVE TO ADVOCATE FOR YOURSELF all the time to make sure you get the right treatment. I am doing much better over the years. You also need therapy and as many support systems tthat you can get. |
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HALLIEBETH87
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Poohbah
Member Since Apr 2016
Location: NY
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#12
My diagnosis also shifted from bipolar to SZA. It led to much better treatment for me: clozapine. Mood stabilizers never touched my moods or psychosis.
__________________ dx: schizoaffective bipolar type; OCD; GAD rx: clozapine, clonazepam PRN |
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Veteran Member
Member Since Jul 2018
Location: Somewhere in the 1990s
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#13
Now that I think about it my SZA diagnosis lead to much better treatment as well which was latuda. I've switched to vraylar, but that seems to be doing well so far. I was also diagnosed last year with PTSD which I think has helped boost my recovery journey.
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still_crazy
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Student of Life
Member Since Mar 2014
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#14
I am interested in this post. I am currently taking Zyprexa and Abilify (as for the antipsychotics I take (I take antidepressants, too)) but was wondering if clozapine would help me more. I don't know. I am SZA and currently suffering from a lot of symptoms of irrational thinking, etc. I don't know if clozapine would help me more than my current meds. I am also taking four different medications. Effexor, Remeron, Zyprexa, and Abilify. Anyway, I thought I'd respond to this post. If anyone knows more about clozapine, it'd be nice if you could let me know your experience with it.
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#15
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WastingAsparagus
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,217
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#16
So fAr the antidepressant my pdoc added last week has helped! Except I got involuntary eye movements and we had to significantly decrease my haldol dose
__________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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cptsdwhoa
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cptsdwhoa
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Veteran Member
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#17
I'm so glad it's helping you so far! How are the involuntary eye movements now? Did the haldol decrease help that?
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,217
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#18
Yes it did! Hasn’t happened since and no psychotic symptoms! I feel great!!!’it’s a Christmas miracle!
__________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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cptsdwhoa
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cptsdwhoa
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Veteran Member
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#19
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HALLIEBETH87
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#20
i'm with spikes with the love hate relationship with clozopine. the blood work is weekly for some time before it changes to bi weekly the lab has to forward the results to the pharmacy before it can be picked up for the week. I made it 6 months and was so over the med. it didn't work well for me although i was on a high dose. the accompanying slurring words and drooling was like thorazine and i felt so confused often. I went to the pdoc one day and said i won't take it anymore and that was that now i take Seroquel and Geodon and its better than nothing for me. i know clozopine helps lots of ppl if you are having psychosis and have never tried it , then talk to your doctor it might be the med for you, it just wasn't for me.
__________________ Tams https://www.youtube.com/watch?v=6Whgn_iE5uc https://www.youtube.com/watch?v=6FOUqQt3Kg0 YOU LAUGH BECAUSE I AM DIFFERENT, I LAUGH BECAUSE YOU ARE ALL THE SAME Don't only practice your Art, But force your way through into its secrets, For it and Knowledge can Raise men to the Divine. Beethoven |
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WastingAsparagus
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