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Student of Life
Member Since Mar 2014
Location: South America
Posts: 4,701
10 2,916 hugs
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#1
Post away! About your struggles or successes with this illness. Or anything you think is salient to post.
__________________ "Whatever you can do, or dream you can, begin it. Boldness has genius, power, and magic in it!” |
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Breaking Dawn
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Breaking Dawn
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
5 42.2k hugs
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#2
Thank you. I have voices.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
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mote.of.soul, WastingAsparagus
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Student of Life
Member Since Mar 2014
Location: South America
Posts: 4,701
10 2,916 hugs
given |
#3
I'm doing okay today. My olanzapine was recently increased. So that's good. Hopefully I'll stop having some of the troubling symptoms I've been having because of that.
__________________ "Whatever you can do, or dream you can, begin it. Boldness has genius, power, and magic in it!” |
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Breaking Dawn
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
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5 42.2k hugs
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#4
I've had some nightmares lately, & one really bad. I woke up screaming, so that was how I got away from the terrifying situation. Any of you having nightmares?
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
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SlumberKitty, WastingAsparagus
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Legendary
Member Since Apr 2012
Location: Earth
Posts: 15,132
(SuperPoster!)
12 5,544 hugs
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#5
I don't have dreams.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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Breaking Dawn, Brego, SlumberKitty, WastingAsparagus
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
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6 117.7k hugs
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#6
I had bad agitation yesterday. I don't get that often but it was very disabling as I was going through it. I was having paranoia and anxiety as well. I took Lybalvi and the agitation, anxiety, and paranoia went away but I forgot how the side effects of that medicine are. I felt really dizzy, had trouble walking, felt like Zombie chill and had trouble thinking. I was super sedated.
__________________ Dum Spiro Spero IC XC NIKA |
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Breaking Dawn, MuddyBoots, stahrgeyzer
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Magnate
Member Since Feb 2018
Location: literally hell
Posts: 2,357
6 5,660 hugs
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#7
My T said I have schizoaffective disorder (among many other disorders). I don't believe her even though I have unusual thoughts such as nobody is real.
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Breaking Dawn, MuddyBoots, SlumberKitty, Victoria'smom
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Veteran Member
Member Since Sep 2020
Location: Wichita, KS
Posts: 606
4 55 hugs
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#8
I denied the invitation to take Clozapine, was this a bad decision? There are practically miraculous results and its said to treat suicidal ideation in Schizophrenics. I honestly did not want to do a blood test every week. I am not terribly suicidal all the time and the feeling passed off. When I told my doctors I was going through these suicidal feelings, the feelings themselves were really minor. I may have exaggerated the entire thing. One of these docs said that the Clozapine could help with cognitive symptoms of Schizoaffective disorder. But I did not want to take it still. I was so happy and it was running through my mind that my movements and moves themselves were so unlike me. They must have been fluid, like water or something. I was just willy nilly doing whatever all it was during a few days. So, I think I was right in having turned down that Clozapine.
__________________ Hi, I'm a Schizoaffective with an attitude adjustment, nice to meet ya Things aren't as pretty on the inside I never wanna leave / I'll never say goodbye |
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Breaking Dawn, MuddyBoots, SlumberKitty
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Breaking Dawn
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
(SuperPoster!)
6 117.7k hugs
given |
#9
I've had a really tough week: paranoia, lack of impulse control, agitation, hallucinations, stress intolerance, distressing images, difficulty communicating, difficulty managing emotions, anxiety, depression, and suicidal ideation. I feel a little better today so I am a little hopeful that maybe the worst is behind me (for now!)
__________________ Dum Spiro Spero IC XC NIKA |
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Breaking Dawn, MuddyBoots, Victoria'smom
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Breaking Dawn, Victoria'smom
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,279
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#10
@Brego I was on clozapine for about a year and it was very effective. Side effects were sedation, drooling and weight gain. I stopped it because I had to go to a special pharmacy for it every week and they would have trouble getting my labs so I always had to go through withdrawals every time I got a refill (which were awful as most AP withdrawals are). If you have any questions about it feel free to PM me.
@SlumberKitty I'm sorry you've been struggling so much. Hopefully you're right and things keep getting better __________________ [Insert thought-provoking and comedic quote here] |
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Breaking Dawn, SlumberKitty
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SlumberKitty
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
5 42.2k hugs
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#11
Voices are the usual difficulty. I wish so much that I could have my mind & my private thinking room back again.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
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AClearRetrospect, SlumberKitty
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SlumberKitty
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
(SuperPoster!)
6 117.7k hugs
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#12
Doing better this week.
__________________ Dum Spiro Spero IC XC NIKA |
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Breaking Dawn
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Breaking Dawn, MuddyBoots
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Junior Member
Member Since May 2022
Location: Hiawatha, Iowa
Posts: 13
2 |
#13
So nice to find an online community of schizoaffectives. We are a rare group but also a diverse group of people.
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Breaking Dawn, SlumberKitty
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Breaking Dawn, SlumberKitty
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
(SuperPoster!)
6 117.7k hugs
given |
#14
__________________ Dum Spiro Spero IC XC NIKA |
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Breaking Dawn
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Veteran Member
Member Since Sep 2020
Location: Wichita, KS
Posts: 606
4 55 hugs
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#15
I quit cigarettes in like December or something. I found a pack of cigarettes in the pocket of my non-smoking mother's jacket she gave to me. I went in there to tell her I was going to smoke it, and she totally said "Nope!!" so that I wouldn't smoke again.She took the cigarettes from me......
__________________ Hi, I'm a Schizoaffective with an attitude adjustment, nice to meet ya Things aren't as pretty on the inside I never wanna leave / I'll never say goodbye |
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Breaking Dawn, SlumberKitty
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
5 42.2k hugs
given |
#16
I did better most of today & yesterday. I actually managed to fulfill a few goals I had been putting off. So that lifted my outlook a little.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
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SlumberKitty
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
(SuperPoster!)
6 117.7k hugs
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#17
I'm okay. I'm just really anxious. I have a Pdoc appointment here in a little bit.
__________________ Dum Spiro Spero IC XC NIKA |
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Breaking Dawn
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
(SuperPoster!)
6 117.7k hugs
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#18
I want to try to get off of one A/P. I'm on three. I've been relatively stable except for like a week when I was having a lot of symptoms. So maybe Pdoc will let me try to not take one of them.
__________________ Dum Spiro Spero IC XC NIKA |
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Breaking Dawn
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
5 42.2k hugs
given |
#19
I'm ok at the moment. I followed through on a few goals today. I still have something harder I need to do & hoping I will do it.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
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SlumberKitty
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
5 42.2k hugs
given |
#20
I actually managed to do the harder goal this morning that I was worried about yesterday. I have harder goals I need to get to, but I should give myself a pat on the back for any amount of progress that comes from effort, so I'm doing that this morning. It's weird though, I feel sad at the same time.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
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SlumberKitty
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