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Old Apr 11, 2022 at 04:46 PM
  #1
 
Post away! About your struggles or successes with this illness. Or anything you think is salient to post.

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Old Apr 12, 2022 at 03:00 AM
  #2
 
Thank you. I have voices.

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Old Apr 12, 2022 at 01:51 PM
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I'm doing okay today. My olanzapine was recently increased. So that's good. Hopefully I'll stop having some of the troubling symptoms I've been having because of that.

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Old Apr 30, 2022 at 03:25 AM
  #4
 
I've had some nightmares lately, & one really bad. I woke up screaming, so that was how I got away from the terrifying situation. Any of you having nightmares?

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Old Apr 30, 2022 at 03:55 PM
  #5
 
I don't have dreams.

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Old May 11, 2022 at 10:30 AM
  #6
 
I had bad agitation yesterday. I don't get that often but it was very disabling as I was going through it. I was having paranoia and anxiety as well. I took Lybalvi and the agitation, anxiety, and paranoia went away but I forgot how the side effects of that medicine are. I felt really dizzy, had trouble walking, felt like Zombie chill and had trouble thinking. I was super sedated.

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Old May 15, 2022 at 07:34 PM
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My T said I have schizoaffective disorder (among many other disorders). I don't believe her even though I have unusual thoughts such as nobody is real.
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Old May 19, 2022 at 09:15 PM
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I denied the invitation to take Clozapine, was this a bad decision? There are practically miraculous results and its said to treat suicidal ideation in Schizophrenics. I honestly did not want to do a blood test every week. I am not terribly suicidal all the time and the feeling passed off. When I told my doctors I was going through these suicidal feelings, the feelings themselves were really minor. I may have exaggerated the entire thing. One of these docs said that the Clozapine could help with cognitive symptoms of Schizoaffective disorder. But I did not want to take it still. I was so happy and it was running through my mind that my movements and moves themselves were so unlike me. They must have been fluid, like water or something. I was just willy nilly doing whatever all it was during a few days. So, I think I was right in having turned down that Clozapine.

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Old May 20, 2022 at 10:14 AM
  #9
 
I've had a really tough week: paranoia, lack of impulse control, agitation, hallucinations, stress intolerance, distressing images, difficulty communicating, difficulty managing emotions, anxiety, depression, and suicidal ideation. I feel a little better today so I am a little hopeful that maybe the worst is behind me (for now!)

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Old May 20, 2022 at 06:09 PM
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@Brego I was on clozapine for about a year and it was very effective. Side effects were sedation, drooling and weight gain. I stopped it because I had to go to a special pharmacy for it every week and they would have trouble getting my labs so I always had to go through withdrawals every time I got a refill (which were awful as most AP withdrawals are). If you have any questions about it feel free to PM me.

@SlumberKitty I'm sorry you've been struggling so much. Hopefully you're right and things keep getting better

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Old May 21, 2022 at 05:45 AM
  #11
 
Voices are the usual difficulty. I wish so much that I could have my mind & my private thinking room back again.

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Old May 25, 2022 at 05:29 PM
  #12
 
Doing better this week.

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Old May 27, 2022 at 03:52 AM
  #13
 
So nice to find an online community of schizoaffectives. We are a rare group but also a diverse group of people.
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Old May 27, 2022 at 11:45 AM
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Quote:
Originally Posted by Silver49 View Post
So nice to find an online community of schizoaffectives. We are a rare group but also a diverse group of people.
I agree.....

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Old May 29, 2022 at 06:22 PM
  #15
 
I quit cigarettes in like December or something. I found a pack of cigarettes in the pocket of my non-smoking mother's jacket she gave to me. I went in there to tell her I was going to smoke it, and she totally said "Nope!!" so that I wouldn't smoke again.She took the cigarettes from me......

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Old May 29, 2022 at 11:19 PM
  #16
 
I did better most of today & yesterday. I actually managed to fulfill a few goals I had been putting off. So that lifted my outlook a little.

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Old Jun 01, 2022 at 02:08 PM
  #17
 
I'm okay. I'm just really anxious. I have a Pdoc appointment here in a little bit.

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Old Jun 01, 2022 at 02:09 PM
  #18
 
I want to try to get off of one A/P. I'm on three. I've been relatively stable except for like a week when I was having a lot of symptoms. So maybe Pdoc will let me try to not take one of them.

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Old Jun 01, 2022 at 05:42 PM
  #19
 
I'm ok at the moment. I followed through on a few goals today. I still have something harder I need to do & hoping I will do it.

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Old Jun 02, 2022 at 08:38 AM
  #20
 
I actually managed to do the harder goal this morning that I was worried about yesterday. I have harder goals I need to get to, but I should give myself a pat on the back for any amount of progress that comes from effort, so I'm doing that this morning. It's weird though, I feel sad at the same time.

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