[Piraeus]

Tardive Dyskenisia is from taking anti-psychotic drugs. I really hate it.
I can't sit still for 5 minutes. I take meds for it twice a day, but the meds don't work. I guess I'll just have to live with it the best way I can. I'm going to my pdoc soon so I will ask him if there is something I can take that will help.Does anyone else have this condition? I would like to know if there are different meds I can take. Right now I take benzotropine.help plz

[fishsandwich]

I got it, I still have it even though I haven't been drugged in almost four years.

There are other drugs you can take to calm the TD, but honestly you should tell your doc because they will probably want to take you off before it becomes permanent.

[volatile]

I had it for a short time, just two days before stopping the meds. I decided I would rather shoot myself in the face than go through that agony.
Are you on the antipsychotics now? I don't know anything about drugs for TD. But if you are still on antipsychotics and they are causing it maybe you should try other meds?

[fishsandwich]

Sorry, the drugs used to treat TD are usually Parkinson's drugs.
They can also use benzos, but I doubt they would -- too addictive.

[Piraeus]

The drugs I take are Invega for paranoid schizophrenia.
Clonazapan for anxiety, and Benzotropine for TD
I also take trazadone for depression.

[fishsandwich]

Does the benzotropine help for the TD? If it doesn't, it's definitely something you have to speak to your doc about.

[eskielover]

I was suffering from major depression & horrible anxiety.....& just before going in to have a neck fusion operation (from a previous fall off a horse years before) my pdoc gave me Thorazine to help me get through the horrible stress I was feeling.......along with the Thorazine, & was having nausea from the continual migrain headache's I was having so I was taking compozine for that. Don't remember how long after that it was, but all of a sudden, I couldn't walk, or even feed myself (get my food to my mouth). It was the scariest feeling I have ever had & didn't know what was causing it.

Went to the ER & they caught that the thorozine was probably the cause, so I stopped that & still had the problem.......finally went back to my neurologist I had first gone to about my migraines & he said that the compozine was also causing the problem. I got that med stopped & it took about a month before I could function normally again. Thanking God that it wasn't a permanent condition.

I think it's horrible to HAVE to live with that kind of side effect......& then have to take another med to get rid of a side effect that could be gone by not taking that other med in the first place......something is just wrong with this picture.

I've been taking Abilify for a while now - I'm unsure if I'm experiencing TD, but my tongue keeps moving by itself sorta. Where do I go to find out? I'm kinda freaking out about it.

[eskielover]

Start off with your pdoc.....I would definitely go to your pdoc about what you are experiencing.....then if not satisfied....to a neurologist.

Is this temporary or something that could be permanent? I couldn't sleep last night because my tongue kept twitching/moving around. I see my pdoc Friday, but I don't know if I can wait that long. This is a weird sensation.

[fishsandwich]

You need to make sure you ask your Pdoc. TD can be temporary -- ending whilst on OR when you go off the drug -- but it can also be permanent and remain even after you stop taking the drug.
If you can't make it until Friday, there are some natural remedies you could try? I don't know whether or not they work (or how quickly), but I remember people taking fatty oils like fish oil or vitamin E to try to help it when I was a social worker. Never tried it myself, though.

I most likely don't have it (I am hoping here), but I'm making myself worried about it. The twitching started yesterday afternoon and has been going on and off til today. I guess it wouldn't hurt to ask my pdoc still. I take a multi-vitamin (contains B6, which I heard is good for TD) and flaxseed oil; hopefully they help. I just need to calm down I think -- I'm a bit of a hypochondriac I believe. I heard Benzodiazepines were also good for TD; I have a rx for Ativan, so maybe I will try that to relax myself.

[fishsandwich]

Yep, definitely ask your pdoc. Legs twitching can be lots of reasons (like dehydration or not enough calcium) but tongue/facial twitching is pretty characteristic of TD.
I always thought exercise helped me with TD, but that's like the cure for everything these days

[ratchet219]

Benzodiazepines worked for my TD, but its only short term solution to the problem. As benozdiazepines can become addictive.

I will try to hang in there until Friday, but will probably make a call tomorrow because it is making me really worried. Does anyone else deal with tongue twitching/movements and if so, what do you do to control it besides meds? I am starting to get tired of it and my mouth is getting dry. I am freaking out about it seriously.

I just took a 1mg Ativan, hopefully this will calm me down. I am sorry for panicking.

[fishsandwich]

Would chewing gum help?

Maybe - I'll have to give it a try.

My tongue has quit twitching, but now at night my teeth are chattering/grinding. It seems to be worse at night. I have stopped my meds just in case. I think I am highly stressed and worried.

[fishsandwich]

Did you ask the doctor about it?