Roll Call 150

Angelique67 · Jul 04, 2019 at 10:43 PM

Quote:

Originally Posted by ofthevalley

Drop foot is caused by laying in bed and your toes basically leaning forward in a sleeping position but forever. He had months of PT to help because he couldn’t lift his feet at all. Then corrective shoes, braces, insoles...nothing worked.
So May surgeries because he was so sick. His colon, intestines, and some other stuff literally blew up. Stool spilled into everywhere internally. Just to save his life he had 5 surgeries within the first 72 hours of the procedure.
Then his lungs collapsed at different times so he needed needles in his lungs a few times.
When he left the hospital he had 6 INCHES of intestine left. The rest had to be removed. He was missing a smallish watermelon size chunk of his stomach. He had netting put in, taken iut, replaced a couple times. It was literally a gaping hole in his stomach. Took about 2 years for the grafts and mesh to take.
His incisions would split open and he’d end up in the ER getting bags of fluid and blood from bleeding so much.
Eventually he contracted MRSA. Took months to get a dx and he was literally almost dead when my husband decided to have him transferred to a bigger hospital. His pacemaker ended up being the source of the infection so he had surgery to remove it. Had a couple other minor surgeries because of the infection.
Then he was doing better so went and had his colostomy redone so that it was better situated. Then plastic surgery to repair his deformed stomach.

Then he died cuz he didn’t have the ******* pacemaker/defribulater anymore.

Oh my God. That is so horrible to go through. I'm sorry he had to experience all that.

Blue_Bird · Jul 05, 2019 at 03:05 AM

Got a couple more hours of sleep

childofchaos831 · Jul 05, 2019 at 03:19 AM

I can't sleep

Blue_Bird · Jul 05, 2019 at 03:37 AM

Going to make some coconut oil sugar scrub, never done it before. I like DIY stuff

childofchaos831 · Jul 05, 2019 at 03:46 AM

Quote:

Originally Posted by Blue_Bird

Going to make some coconut oil sugar scrub, never done it before. I like DIY stuff

That sound fun

Blue_Bird · Jul 05, 2019 at 07:50 AM

Good morning, picked up my meds at the pharmacy. Waiting for the bookstore to open

ofthevalley · Jul 05, 2019 at 08:04 AM

Morning!
Another beautiful day. God I love summer. Dont even care that I need 2 showers a day. Ut is SO worth it to have exposed skin and no freaking coats...or shoes. Ahhhhhh.
Going to go walking the beach before dinner with my daughter.
We may run out to get my husband some sneakers. Idk if I’ll go or not.
A few emails to do for work but that’s about it.

Drinking coffee then I have to get in the shower.
My dogs aren’t eating their new food. I’m kinda pissed about it

these are dogs that were literally starving when I rescued them...6 years later they have the balls to turn their noses up at $82 dog food

Blue_Bird · Jul 05, 2019 at 08:05 AM

I hate living on the first floor in a studio, my main room is my bedroom/living room so people are always walking past my window and now the maintenance is right outside my window mowing the lawn, my bed is right under the window. Makes me uncomfortable. Can't wait till there's a opening in the place I'm waiting on, I would get a one bedroom large beautiful apartment with a separate living room, nice big new kitchen, bathroom and a huge amount of storage space nearly the size of the bedroom

Blue_Bird · Jul 05, 2019 at 08:07 AM

I should get some of those blackout curtains

Blue_Bird · Jul 05, 2019 at 08:09 AM

Quote:

Originally Posted by childofchaos831

I can't sleep

Did you ever get any sleep? I finally did, I know it's frustrating

ofthevalley · Jul 05, 2019 at 08:13 AM

Quote:

Originally Posted by Blue_Bird

I hate living on the first floor in a studio, my main room is my bedroom/living room so people are always walking past my window and now the maintenance is right outside my window mowing the lawn, my bed is right under the window. Makes me uncomfortable. Can't wait till there's a opening in the place I'm waiting on, I would get a one bedroom large beautiful apartment with a separate living room, nice big new kitchen, bathroom and a huge amount of storage space nearly the size of the bedroom

Would it be first floor again?

I’ve never lived in anything but a single family. I’ve always worried about being 1st floor because of break-ins but the other floors must be loud. No?

junkDNA · Jul 05, 2019 at 08:22 AM

Quote:

Originally Posted by falcon09

To continue the convo from the last thread, my partial hospital doctor told me I had two options left - after looking at my medication history - Vraylar and Clozapine. I chose to go with Vraylar and I'm very happy that's been a great drug for me so far.

I got put on clozapine for a while . It sedated ms so much that I couldn't wake up from sleeping to go pee...like I peed my bed. I wasn't on it long bc of the really heavy sedation

Blue_Bird · Jul 05, 2019 at 08:22 AM

Quote:

Originally Posted by ofthevalley

Would it be first floor again?

I’ve never lived in anything but a single family. I’ve always worried about being 1st floor because of break-ins but the other floors must be loud. No?

No, it's very quiet here, probably because the police headquarters are across the street haha I don't know if it would be first floor again.

at the new place, the apartment they showed me was on the 2nd or 3rd floor, there's much more privacy there though, it's kind of an apartment complex where they help you with your goals and they work with your doctor, therapist and case manager with you. It's not exactly assisted living, you live in your own place there and are independent but they meet with you once a month to make sure things are going well, and there's community events and stuff to go to in their big rooms for residents to socialize and stuff. Plus it's very safe, there's security and you have a video screen in your apartment to see who's at the door on the main floor, they have to have a code and you have to buzz them in for them to even enter the building, plus there's always security on the main floor. You can choose to ignore and not allow anyone you don't want there. there's a lot of privacy

Blue_Bird · Jul 05, 2019 at 08:24 AM

Plus the apartments are indoor, like as in how rooms in a hotel are, so there's not random people walking around the street or anything. Where I am now when I open my door I'm outside

junkDNA · Jul 05, 2019 at 08:24 AM

Quote:

Originally Posted by newtus

Oh I hated seroquel for that. And the weight gain. Its impossible to lose weight on seroquel.

Its not impossible but does take a lot of viligence and hard work...more so than someone not on seroquel

junkDNA · Jul 05, 2019 at 08:32 AM

Quote:

Originally Posted by Angelique67

Yes! When I was a teenager I used to get it all over my body. Horrendous. It hasn't been so bad for the most part here. I used to dream of going swimming when I had it to get rid of the electricity, as I called it.

Last night I forgot to raise the foot of the bed, which sometimes relieves it. The only two things that help me are some benzos and opioids. The np at the clinic a few years ago asked me if I wanted a fentanyl patch lol. I wish I'd said yes! She was replaced by the one who forced me to cold turkey in 2013.

Have you found anything that seems to help? Another thing that helps me is to eat a hard-boiled egg before I go to sleep.

I've read that magnesium helps akathisia

childofchaos831 · Jul 05, 2019 at 08:32 AM

Quote:

Originally Posted by Blue_Bird

Did you ever get any sleep? I finally did, I know it's frustrating

Nope. The demons kept me awake all night...

newtus · Jul 05, 2019 at 08:33 AM

Morning

I'm a bit tired but I got a bit of good sleep.

junkDNA · Jul 05, 2019 at 08:34 AM

Quote:

Originally Posted by Blue_Bird

Made the decision to stop the seroquel. I generally don't mess with my meds myself but this is something I'm doing for my safety. The agitation last night was so severe I was having

Possible trigger:

severe impulsive urges to kill myself to stop it

It was very concerning looking back at it and it's just not safe to continue taking that because I couldn't really control myself, and I don't want to hurt myself, I'm not depressed and certainly don't want to die. It was very bizarre and has gotten worse over the past week so I'm not risking it again. The other AP is the one controlling my psych symptoms anyway and my moodstabilizer and antidepressants as well so I think I'll be fine. I did leave a message with my doctor.

600mg of seroquel is pretty high as a dose maybe u could try cutting it in half to 300mg?

junkDNA · Jul 05, 2019 at 08:37 AM

Quote:

Originally Posted by Blue_Bird

No agitation last night after stopping seroquel. Finally. Got only an hour of sleep but it's better than nothing. I expected my sleep to be messed up after that for awhile anyway, hopefully it gets back to normal over time as my body adjusts

I've been on varying doses of seroquel for 16 years now... from 600mg to 25mg. Currently I take 100mg at night and a 50mg as a prn. But my sleep is dependent on jt now. I cannot sleep if I dont take a seroquel. It sucks

Menu

My Support Forums - Mental Health Support Groups

Get emotional support and friendship from others like you!

Roll Call 150

My Support Forums

Blue_Bird Legendary Wise Elder Member Since Jun 2013 Location: Hogwarts Posts: 36,743 (SuperPoster!) 10 14.3k hugs given	Jul 05, 2019 at 03:05 AM #202 Got a couple more hours of sleep __________________ My Blog: https://livingwithachaoticmind.wordpress.com/ R.I.P mom 8/6/55-1/15/16 “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
	Reply With Quote

childofchaos831 Elder Member Since Nov 2016 Location: Texas Posts: 5,037 7 15 hugs given	Jul 05, 2019 at 03:19 AM #203 I can't sleep __________________ Diagnoses: PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain
	Reply With Quote

Blue_Bird Legendary Wise Elder Member Since Jun 2013 Location: Hogwarts Posts: 36,743 (SuperPoster!) 10 14.3k hugs given	Jul 05, 2019 at 03:37 AM #204 Going to make some coconut oil sugar scrub, never done it before. I like DIY stuff __________________ My Blog: https://livingwithachaoticmind.wordpress.com/ R.I.P mom 8/6/55-1/15/16 “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
	Reply With Quote

Blue_Bird Legendary Wise Elder Member Since Jun 2013 Location: Hogwarts Posts: 36,743 (SuperPoster!) 10 14.3k hugs given	Jul 05, 2019 at 07:50 AM #206 Good morning, picked up my meds at the pharmacy. Waiting for the bookstore to open __________________ My Blog: https://livingwithachaoticmind.wordpress.com/ R.I.P mom 8/6/55-1/15/16 “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
	Reply With Quote

Blue_Bird Legendary Wise Elder Member Since Jun 2013 Location: Hogwarts Posts: 36,743 (SuperPoster!) 10 14.3k hugs given	Jul 05, 2019 at 08:07 AM #209 I should get some of those blackout curtains __________________ My Blog: https://livingwithachaoticmind.wordpress.com/ R.I.P mom 8/6/55-1/15/16 “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
	Reply With Quote

newtus The Dopamine Flux Member Since Jun 2010 Location: Ardenweald Posts: 43,644 (SuperPoster!) 13 867 hugs given	Jul 05, 2019 at 08:33 AM #218 Morning I'm a bit tired but I got a bit of good sleep. __________________ "We're all born to broken people on their most honest day of living" The Dopamine Flux www.thedopamineflux.com Youtube channel https://www.youtube.com/user/MozePrayIII
	Reply With Quote