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Default Jul 16, 2019 at 06:11 PM
  #961
HUGS @Angelique67 I'll try not to SH. I hope you get your appointments soon.

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Default Jul 16, 2019 at 06:17 PM
  #962
It's been a long day today but I managed to get into the accounting program at work by myself (I had to kick everyone out) so that way I could input all the sales tax information for the new company. I feel good about that. I feel crappy in general but I feel good that I got *that* done. Sometimes it is the little things that count. I'm stressed out some. IDK why. I have to teach tonight. I guess I'm ready. I would rather just hole up in bed and sleep but I have the month of August off so I shouldn't complain. Still having SH thoughts. Not hearing much from God this afternoon. He was talking to me this morning. I miss that. HUGS Kit

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Default Jul 16, 2019 at 06:20 PM
  #963
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It's been a long day today but I managed to get into the accounting program at work by myself (I had to kick everyone out) so that way I could input all the sales tax information for the new company. I feel good about that. I feel crappy in general but I feel good that I got *that* done. Sometimes it is the little things that count. I'm stressed out some. IDK why. I have to teach tonight. I guess I'm ready. I would rather just hole up in bed and sleep but I have the month of August off so I shouldn't complain. Still having SH thoughts. Not hearing much from God this afternoon. He was talking to me this morning. I miss that. HUGS Kit
I also used to hear from God, that's what got me through what I'm struggling with now 2 years ago, I miss it too. I heard him talk to me and it would stop me from doing stupid things

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Default Jul 16, 2019 at 06:20 PM
  #964
I feel miserable. I'm home alone and I'm not feeling too well. I'm lonely. I'm a mess... I can't stop crying. I'm making myself sick.
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Default Jul 16, 2019 at 06:23 PM
  #965
HUGS @Erti I'm sorry you are feeling so badly. Can you try to get yourself distracted? Watch TV? Take a walk? Bounce up and down =) Draw a picture? Color a picture? Squeeze a teddy bear? Take a nap? Sometimes getting distracted can help. I hope you feel a bit better soon. HUGS Kit

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Default Jul 16, 2019 at 06:24 PM
  #966
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I also used to hear from God, that's what got me through what I'm struggling with now 2 years ago, I miss it too. I heard him talk to me and it would stop me from doing stupid things
Yeah, I'm not sure if it is a hallucination or if it is real. I hope it is real.

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Default Jul 16, 2019 at 06:46 PM
  #967
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HUGS @Erti I'm sorry you are feeling so badly. Can you try to get yourself distracted? Watch TV? Take a walk? Bounce up and down =) Draw a picture? Color a picture? Squeeze a teddy bear? Take a nap? Sometimes getting distracted can help. I hope you feel a bit better soon. HUGS Kit
I'm currently talking to my sister on facebook. I'm letting it all out to her. I'm trying to listen to some music and such. I have the dogs next to me. Surely they're begging my for attention but I'm more focused on being lonely miserable ****. I'm in need of human contact. I crave it.
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Default Jul 16, 2019 at 06:47 PM
  #968
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I feel miserable. I'm home alone and I'm not feeling too well. I'm lonely. I'm a mess... I can't stop crying. I'm making myself sick.
I’m so sorry Erti, you haven’t been feeling well for a while now, must be very stressing and exhausting

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Default Jul 16, 2019 at 06:54 PM
  #969
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I’m so sorry Erti, you haven’t been feeling well for a while now, must be very stressing and exhausting
Yeah... It is. I'm like begging my mom over the phone to make it stop... she said she's feeling everything I'm feeling. She has to work though so I can't keep texting her.
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Default Jul 16, 2019 at 06:58 PM
  #970
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Yeah... It is. I'm like begging my mom over the phone to make it stop... she said she's feeling everything I'm feeling. She has to work though so I can't keep texting her.
How do you feel about going to the hospital?

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Default Jul 16, 2019 at 06:59 PM
  #971
@Blue_Bird : I know you might find this interesting. My cousin just told me something kinda awesome. I know PKD runs in your family too but my cousin who has PKD had said shes been selected to do a case study on certain treatment for PKD... something about increasing the kindney funtioning and she brought up something about someone getting a bionic kindey in the next 3 months.
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Default Jul 16, 2019 at 07:01 PM
  #972
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How do you feel about going to the hospital?
I really don't want to go. I can't do it anyways. at least not until my mom gets home at 11:30 and even then she'd be too tired to take me anywhere.
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Default Jul 16, 2019 at 07:17 PM
  #973
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@Blue_Bird : I know you might find this interesting. My cousin just told me something kinda awesome. I know PKD runs in your family too but my cousin who has PKD had said shes been selected to do a case study on certain treatment for PKD... something about increasing the kindney funtioning and she brought up something about someone getting a bionic kindey in the next 3 months.
oh wow, that's awesome!

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Default Jul 16, 2019 at 07:18 PM
  #974
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Talked to my Pdoc just now...


She increased my cogentin to 2mg twice a day. Hope it helps but at this rate I'll just keep having to increase my cogentin and it stop working all together at the highest dosage and I don't know what I'd do then.


So I told her about my paranoia... she asked me if I wanted to increase my saphris... told her that I didn't because of the dystonia symptoms on THIS dosage that I was having. I told her I'll just try to stick it out until then and try the injections when I see her. If all else fails.... I can call her back again or go to the hospital. I feel very discouraged right now.


Oh geeze that’s not overly helpful.

Those can’t be the only options. Saphris increase or hospital? WTH?

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Default Jul 16, 2019 at 07:43 PM
  #975
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Oh geeze that’s not overly helpful.

Those can’t be the only options. Saphris increase or hospital? WTH?
I guess I could of had an appointment and went in and tried the Abilify injections but to be quite honest as ****** as my case manager is... I probably wont have a ride there until I next see her next month for my next appointment.
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Default Jul 16, 2019 at 08:36 PM
  #976
I cant seem to write or do anything lately.

Just so much stress. Fiances been gone since morning. His dad is supposed to have the surgery but the risks are higher than normal because the doctors said 80 percent of his heart isnt working properly. Like 80 percent is blocked. I guess they mean arteries or something. Idk. I wont find out what he means until he gets home.

He said something about a heart transplant but I know his dad couldn't get one cuz he drinks and smokes and not just cigs. Apparently his dad was using K2 a few years ago.

And I have that job interview this friday and I'm just not ready at all. The dog chewed up my shoes I bought for work interviews not long after I got them. So idk what ima do.

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Default Jul 16, 2019 at 10:33 PM
  #977
I haven't posted here in a long time. It's been disaster upon disaster. On 6/8 my wife's heart stopped. (And stopped twice more. It has thankfully restarted) Various other medical disasters. I still go work, but i could give half a **** about it. All is bleak . I've made 3 back up plans.
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Default Jul 16, 2019 at 10:38 PM
  #978
Hearts hearts hearts..

Apparently not enough oxygen is getting to my mom's heart. She's out drinking. I'm going to text her right now to not drink as much.
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Default Jul 16, 2019 at 10:43 PM
  #979
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I haven't posted here in a long time. It's been disaster upon disaster. On 6/8 my wife's heart stopped. (And stopped twice more. It has thankfully restarted) Various other medical disasters. I still go work, but i could give half a **** about it. All is bleak . I've made 3 back up plans.


I hope the best for you and your wife. Sorry you're dealing with a medical mess and I can understand about not giving a **** about work.
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Default Jul 16, 2019 at 10:43 PM
  #980
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Hearts hearts hearts..

Apparently not enough oxygen is getting to my mom's heart. She's out drinking. I'm going to text her right now to not drink as much.
Sounds like the last thing your mom needs to do is to go out drinking.
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