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sjh66
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Default Jul 16, 2021 at 08:50 AM
  #1
This is a heartfelt plea for advice from anyone who has more experience than me.

My daughter has been having the following pretty much nonstop every day for the past 3 years:
Hearing voices, seeing things, feeling things, smelling and tasting things. Believing there are angels, demons and Gods inside her. Thinking her family and total strangers are trying to kill her. Inserting strange words into written sentences. Seeing our faces split into separate pieces. Wanting to stab us. Thinking we are trying to kill her.

She is suffering and it is getting worse and worse and worse.

Meanwhile she has been ‘treated’ by CAMHS for the past 3 years who claim this is PTSD. My GP refuses to prescribe anything without CAMHS approval.

The reason they say this is PTSD is because that my daughter is still ‘lucid’ and able to talk about her condition and ‘knows' she is hallucinating.

But the fact is that she does not know when it is happening. She is kind of being taught by her therapist to know these are hallucinations and is just repeating phrases such as: ‘I think it’s my past trauma coming out as hallucinations’ when she is assessed.

I feel with every bone in my body this is schizophrenia (my aunt had it) but every time I bring up an issue such as her hearing bombs in her head, or wanting to kill us, they keep insisting this is PTSD.

Therefore they are refusing to give my daughter anti-psychotic medication as she is “not psychotic’.

They are psychiatrists and ‘experts so I am expected to just believe them just because they say it is so. But my gut is telling me she has schizophrenia and has gone from bad to worse under their 'care'. I am just supposed to believe them because they say so and they are experts.

I am not expecting definitive medical advice, but hoping someone out there must have a ‘hunch’ on this. Am I just being a neurotic mother? Could they be right that this is 'just' PTSD?

Or have you heard tales like this before? Therefore I need to keep going looking for help, perhaps paying privately for another opinion on this.

This is a heartfelt plea: please help.

I just need to know whether to give up or whether to keep fighting on her behalf until they actually damn listen.

She is suicidal and suffering so much and I worry I will lose her if no-one helps.
Thank you for listening.
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WastingAsparagus
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Default Jul 16, 2021 at 03:14 PM
  #2
I am sorry to hear of this distress your daughter is in. Have you told the psychiatrists that your aunt had schizophrenia? It is usually genetic to some degree.

Also, have you considered reaching out to a support line or even a hospital?

There's a free support line called Samaritans (samaritans.org) in the UK (I am in the US and I use their email on occasion).

I am so sorry to hear what you're going through. It's probably similar to what my parents experienced when I was initially diagnosed with schizophrenia.

I of course cannot give you advice as a professional, but my feeling would be that it might be wise to seek out a second opinion of some sort, whether that's in a hospital or not. I am not sure exactly how the health system in the UK works. However, seeing a specialist might be your best bet.

Best wishes.

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Default Jul 16, 2021 at 04:54 PM
  #3
Hi there,

I'm really sorry you and your daughter is going through this. I'm not a doctor so I can't say but it sounds like schizophrenia to me (I have schizoaffective disorder myself). But I don't know her trauma background so I guess it could be PTSD. And I think you can have both. Thing is, it took me 20 years to get the "right" diagnosis of schizoaffective. Before then it was like, oh you have Major Depressive Disorder and ADHD and Autism and Anxiety. And then it was all that stuff but depression with psychotic symptoms. Now it's all that stuff but schizoaffective which I think it actually my disorder. I don't know how the UK system works but I do think a second opinion would be helpful even if you have to pay out of pocket for it especially as there is family history of it. My great grandfather had what was probably schizophrenia but it wasn't diagnosed back then. He lived in an institution for 50 years. He died in the 1980s. And he was still institutionalized. Which I think is a shame. Thankfully we don't do that today!


Has your daughter been hospitalized when she is in these psychotic breaks? That might be the only way to get the correct diagnosis. (It was for me. Although it was a hellish experience to be sure.) I hope that she can get some relief and that you can get some answers. Feel free to keep posting here. We are listening and we will try to help you as much as we can!

HUGS if wanted, Kit

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