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Tart Cherry Jam
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Default Nov 15, 2022 at 11:57 PM
  #1
Is there anyone with narcolepsy on here?
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Lokebee
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Default Nov 17, 2022 at 07:40 AM
  #2
This is a test
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Default Nov 17, 2022 at 07:44 AM
  #3
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Originally Posted by Tart Cherry Jam View Post
Is there anyone with narcolepsy on here?
I worked with a lady who has it in a call center. She would fall asleep on a call.
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Tart Cherry Jam
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Default Nov 25, 2022 at 04:38 PM
  #4
My symptoms are not that bad. I can only imagine, to fall asleep while on a call.
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Tart Cherry Jam
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Default Jan 12, 2024 at 12:09 AM
  #5
So apparently I have it, it probably started as a result of Covid I had in August 2022, but luckily it responds to amphetamine.
Dextroamphetamine Sulfate TABLET 5 MG which is the lowest dose of it. I have been on it for 5 days. It works like a miracle.

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Bipolar I w/psychotic features
Last inpatient stay in 2018

Geodon 40 mg
Seroquel 75 mg
Lybalvi 5 mg as a PRN

Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects)

Long term side effects from medications some of them discontinued:
- hypothyroidism
- obesity

Suspected narcolepsy

Treated with Ritalin 5mg
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Tart Cherry Jam
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Default Feb 03, 2024 at 04:30 PM
  #6
Quote:
Originally Posted by Tart Cherry Jam View Post
So apparently I have it, it probably started as a result of Covid I had in August 2022, but luckily it responds to amphetamine.
Dextroamphetamine Sulfate TABLET 5 MG which is the lowest dose of it. I have been on it for 5 days. It works like a miracle.
Unfortunately, side effects piled up after that initial "like a miracle" effect and I cannot tolerate taking Dexedrine continuously. I might still take it as a PRN, infrequently, when I cannot afford taking a midday nap.

Will be looking for other solutions.

__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Geodon 40 mg
Seroquel 75 mg
Lybalvi 5 mg as a PRN

Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects)

Long term side effects from medications some of them discontinued:
- hypothyroidism
- obesity

Suspected narcolepsy

Treated with Ritalin 5mg
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Default Feb 03, 2024 at 05:55 PM
  #7
I think you wrote that Nuvigil didn't work at all. I hope you find something quickly!

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Major Depressive Disorder; Sleep Apnea; possibly on the spectrum
Nuvigil 50mg; Effexor 37.5mg; meds for blood pressure & cholesterol
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Thanks for this!
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Default Feb 03, 2024 at 09:16 PM
  #8
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Originally Posted by SquarePegGuy View Post
I think you wrote that Nuvigil didn't work at all. I hope you find something quickly!
No, unfortunately, Provigil and Nuvigil did nothing at all. I could wake up with an alarm, feeling sleepy, take one of them, as instructed, and go straight back to bed for several more hours of sleep.

My psychiatrist wrote to the state disability office (I was on temporary disability at that time) that I was "resistant to Modafanil".

__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Geodon 40 mg
Seroquel 75 mg
Lybalvi 5 mg as a PRN

Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects)

Long term side effects from medications some of them discontinued:
- hypothyroidism
- obesity

Suspected narcolepsy

Treated with Ritalin 5mg
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Default Feb 05, 2024 at 09:38 AM
  #9
i have sleep apnea. the machine is bothersome but it does help in the long run.
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Tart Cherry Jam
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Default Feb 05, 2024 at 10:42 AM
  #10
Quote:
Originally Posted by avlady View Post
i have sleep apnea. the machine is bothersome but it does help in the long run.
My sleep apnea is well treated with the machine. I still need naps during the day and overall sleep excessively. So it is not sleep apnea but a different disease.

I am glad CPAP is helping you.

__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Geodon 40 mg
Seroquel 75 mg
Lybalvi 5 mg as a PRN

Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects)

Long term side effects from medications some of them discontinued:
- hypothyroidism
- obesity

Suspected narcolepsy

Treated with Ritalin 5mg
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Tart Cherry Jam
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Default Apr 18, 2024 at 03:52 PM
  #11
So Ritalin is working for this. And very gently, with no side effects at the lowest dose. I tried two tablets (not at the same time) last week and got terribly dizzy. It felt as if something inside my head were spinning. I then look up dizziness and it is a common side effect of Ritalin. Luckily at the lowest dose I do not get dizzy.

For now I am in a state of (happy) disbelief that a solution has been found that works so very gently.

__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Geodon 40 mg
Seroquel 75 mg
Lybalvi 5 mg as a PRN

Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects)

Long term side effects from medications some of them discontinued:
- hypothyroidism
- obesity

Suspected narcolepsy

Treated with Ritalin 5mg
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SquarePegGuy
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Default Apr 18, 2024 at 08:47 PM
  #12
Such great news! Good for you, you deserve it!

__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum
Nuvigil 50mg; Effexor 37.5mg; meds for blood pressure & cholesterol
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Thanks for this!
Tart Cherry Jam
Tart Cherry Jam
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Default Apr 18, 2024 at 11:32 PM
  #13
Quote:
Originally Posted by SquarePegGuy View Post
Such great news! Good for you, you deserve it!
Thank you, my friend! You know how I went through despair and disappointment before landing safely.

__________________
Bipolar I w/psychotic features
Last inpatient stay in 2018

Geodon 40 mg
Seroquel 75 mg
Lybalvi 5 mg as a PRN

Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects)

Long term side effects from medications some of them discontinued:
- hypothyroidism
- obesity

Suspected narcolepsy

Treated with Ritalin 5mg
Tart Cherry Jam is offline   Reply With QuoteReply With Quote
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