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#26
Aug 09, 2024, 08:53 PM
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Have you checked to see if there are medical studies that would accept you as a participant?
For example, if you had a rare neuroimmune disorder, you could visit the SRNA website to see what trials are looking for participants. Have you tried to contact any researchers who study sleep patterns or attended symposia. (Some might offer free admission to patients.)
__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum Nuvigil 50mg; Effexor 37.5mg Wellbutrin 150mg; meds for blood pressure & cholesterol |
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#27
Aug 09, 2024, 09:24 PM
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I'm too busy navigating my local crap. I don't have 3 years of "perhaps", regardless of what my education and industry forefront is. Participants don't get lifetime administration. Trials are just that.
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#28
Aug 14, 2024, 06:41 PM
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So moving on, I'm finding I have a Narcolepsy Type 2 possibility. My GP is a temporary guy that's 100% government (Canada) and he's useless. But he's gone in 3 weeks, so my regular GP is coming back. I have more sleep tests (done 2 already) and my CPAP machine is horrible. It simply doesn't work for me.
Costs for meds for this, if it is this, are steep and apparently are severe meds like SSRIs. I don't want antidepression meds. That's introducing a horrible state of affairs. I'm just beside myself that this is happening. The sleep is SAD level of complete inclusion. At this point I don't know what to say or do. I've tried everything. If I get more advice on breathing techniques, I'll freak out. Any advice? |
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#29
Aug 14, 2024, 09:48 PM
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How about a couple glasses of wine
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#30
Aug 15, 2024, 12:36 PM
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I got into some beers last night.
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#31
Aug 15, 2024, 03:36 PM
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Did it help?
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#32
Aug 15, 2024, 05:01 PM
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It helped last night. I slept this afternoon, as per all this week and last week and before that.
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 Catsrock
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#33
Sep 08, 2024, 09:24 AM
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This disorder keeps changing. I'm in front of SAD season which is a normal horrible time, but now I'm getting more normal sleep. And since I'm type 2 narcolepsy (assumption), there is no orexin depletion, or minimal.
Three doctors appointments this week, and more sleep tests coming. |
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