advertisement
Reply
Thread Tools Display Modes
Anonymous32451
Guest
Anonymous32451 has no updates. Edit
 
Posts: n/a
Default Aug 08, 2020 at 04:44 AM
  #21
thank you for the continued updates. I suppose now the key thing is to not overdo it

hugs
  Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut

advertisement
Discombobulated
Grand Magnate
 
Discombobulated's Avatar
Discombobulated has no updates.
 
Member Since: Oct 2019
Location: UK
Posts: 4,640 (SuperPoster!)
3 yr Member
11.5k hugs
given
PC PoohBah!
Default Aug 08, 2020 at 07:30 AM
  #22
Thinking of you daily ♥️♥️♥️♥️
Discombobulated is offline   Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut
*Beth*
catches the flowers
*Beth* is practicing healthy breathing for brain, mind, body, spirit.
 
Member Since: Jul 2019
Location: Downtown Vibes, California
Posts: 15,701 (SuperPoster!)
3 yr Member
23.7k hugs
given
PC PoohBah!
Default Aug 12, 2020 at 12:45 PM
  #23
How are you doing? Check in if you can.

__________________




*Beth* is offline   Reply With QuoteReply With Quote
 
Hugs from:
Discombobulated, happysobercrafter, TunedOut
 
Thanks for this!
Discombobulated, happysobercrafter, TunedOut
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Aug 12, 2020 at 03:03 PM
  #24
Quote:
Originally Posted by BethRags View Post
How are you doing? Check in if you can.
They said I am tolerating the treatment pretty well. The drugs they gave me are really controlling the nausea--just have to remember to take the as needed one when I get the wave. I don't know if it is something they give me in the IV drip, but as soon as I get in the car after the treatment, I go out and when I get home, I walk to the bed like I am sleepwalking then am out till morning. Got up, took meds, ate breakfast then out till lunch today. Made lunch then did laundry because all the sleep made me feel good. If it goes like last time, I will sleep a lot again tonight.

Though you couldn't tell if you looked, I am starting to lose my hair so I wear a scarf or hat when I cook. No walk yesterday or today. Laundry counts. And I am forgetting more, as in, having to put in passwords multiple times, etc. I call it chemo brain, but wait, I have always had chemo brain days, they are just happening more.

One of the cats that might have punctured my bed (I have the new mattress set up and under lots of protective layers now--here she is outside the dirty kitchen window -- due to her Puss and Boots looks someone eventually let her in and then she slept on a couch in the comfy AC for much of the day):
Breast cancer diagnosis
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Discombobulated, happysobercrafter, possum220, TishaBuv, Travelinglady, unaluna
 
Thanks for this!
*Beth*, Discombobulated, happysobercrafter
*Beth*
catches the flowers
*Beth* is practicing healthy breathing for brain, mind, body, spirit.
 
Member Since: Jul 2019
Location: Downtown Vibes, California
Posts: 15,701 (SuperPoster!)
3 yr Member
23.7k hugs
given
PC PoohBah!
Default Aug 12, 2020 at 03:41 PM
  #25
Hi TunedOut Thanks for the update. You're dealing with all of this amazingly well. Please know that we're here to listen if you need an ear

__________________




*Beth* is offline   Reply With QuoteReply With Quote
 
Hugs from:
Discombobulated, happysobercrafter, TunedOut
 
Thanks for this!
Discombobulated, happysobercrafter, TunedOut
TishaBuv
Legendary
TishaBuv It’s mostly them, and somewhat me.
 
Member Since: Dec 2014
Location: USA
Posts: 10,122 (SuperPoster!)
8 yr Member
1,857 hugs
given
PC PoohBah!
Default Aug 12, 2020 at 07:39 PM
  #26
“- due to her Puss and Boots looks someone eventually let her in”
I’m glad you are doing alright. This made me chuckle. You do have a great attitude and sense of humor.

__________________
"And don't say it hasn't been a little slice of heaven, 'cause it hasn't!"
. About Me--T
TishaBuv is offline   Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Aug 18, 2020 at 01:57 PM
  #27
Thought I was due to give an update. I have about 15 percent of my hair left. Maybe I won't become a cue ball? Sleep feels so good. Take naps everyday. Sleep hard most of the time. Wake up refreshed after sleep. Still cooking and processed a lot of basil from our garden into pesto yesterday. Froze most of it in an ice cube tray (freezes well so long as you leave the cheese out). Walking 3 miles instead of 4.5 and go very early in the morning because I am supposed to stay out of the sun. Have a lingering cough. My next treatment is on the 25th. The VA has treated me well but the hospital (where I get chemo) is two hours away.
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Discombobulated, happysobercrafter, possum220, Travelinglady
 
Thanks for this!
happysobercrafter
Anonymous32451
Guest
Anonymous32451 has no updates. Edit
 
Posts: n/a
Default Aug 18, 2020 at 03:10 PM
  #28
thanks for the update.

I hope that the treatments are going well for you. must be such a difficult time at the moment and so uncertain
  Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut
*Beth*
catches the flowers
*Beth* is practicing healthy breathing for brain, mind, body, spirit.
 
Member Since: Jul 2019
Location: Downtown Vibes, California
Posts: 15,701 (SuperPoster!)
3 yr Member
23.7k hugs
given
PC PoohBah!
Default Aug 20, 2020 at 05:32 PM
  #29
The basil pesto sounds delicious. Wish I had some right now


Thanks for the check-in. It sounds like you are adjusting to treatments really well.


__________________




*Beth* is offline   Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Sep 03, 2020 at 12:27 AM
  #30
Ok, here is my general check in. During my last chemo they said I am developing anemia but the Human growth hormone shots I have been giving myself was keeping my white blood cell counts in the good zone. Makes sense because I am not coughing but do tire more easily. Also am getting a bit of numbing in my wrists, hands and feet. This is probably nerve damage from chemo but I assume it isn't permanent because it is an on and off thing and I once had nerve damage but recovered from it after about two years. Still taking lots of naps and ordered some grass fed beef spleen pills on Amazon for the anemia. I eat eggs and spinach everyday but eating steak everyday doesn't work for our food budget. Still do everything I did before (though my family does all the shopping for fresh groceries) but for shorter periods of time. For example, I am walking 2-3 miles a day (except for the two days after chemo) instead of 4.5 miles. I do shop online (think it is prudent to keep my pantry stocked during these strange times) and bought everyone their Christmas presents and more just in case. One item that got delayed (I missed the calls) was my gene testing but it is back on track. In a group conference I learned that about 10% of the people they test register positive for a gene mutation. If you don't have a gene mutation then they assume the primary cause of your cancer was environmental (of course, there could be a few gene mutations out there that they haven't yet identified, they said there are about 20 known gene mutations and if you have one you have a 50% chance of passing it down to your children/there is a 50% chance your sibling could have the same one.) Anyways, I won't speak anymore about the results of my genetic test because I feel like telling my genetic information is also speaking about my children's and siblings information too. I am interested to find out though and the results will effect future cancer screenings (many genetic mutations put you at higher risk for multiple kinds of cancer). My next chemotherapy is on September 8th. It will be the last of the "dual" chemo I am on then the next four will be a different type which is supposed to be less harsh and more of a "maintenance" kind of chemo. Then when that is finished, on to surgery after my blood counts are healthy enough.
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Discombobulated, happysobercrafter, unaluna
 
Thanks for this!
*Beth*, Discombobulated, happysobercrafter
Discombobulated
Grand Magnate
 
Discombobulated's Avatar
Discombobulated has no updates.
 
Member Since: Oct 2019
Location: UK
Posts: 4,640 (SuperPoster!)
3 yr Member
11.5k hugs
given
PC PoohBah!
Default Sep 03, 2020 at 11:00 AM
  #31
You are an amazing lady. ♥️

Hope you can get on top of that anaemia, that can really tire you out. Dried apricots are good sources of iron too, especially for snacking when you aren't feeling up to full meals. Lentils also - lots of nice recipes for veggie meals, or even just soups if eating lighter.

Thanks for updating us and keep on in there, you are doing so well.
Discombobulated is offline   Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut, unaluna
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Sep 14, 2020 at 01:18 AM
  #32
Dizzy, nauseous, stuck in bed this weekend. Last treatment on the first type of chemo has been a doozy. Hope today is better.
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Discombobulated, happysobercrafter, TishaBuv, unaluna
 
Thanks for this!
happysobercrafter
Discombobulated
Grand Magnate
 
Discombobulated's Avatar
Discombobulated has no updates.
 
Member Since: Oct 2019
Location: UK
Posts: 4,640 (SuperPoster!)
3 yr Member
11.5k hugs
given
PC PoohBah!
Default Sep 14, 2020 at 02:45 AM
  #33
Quote:
Originally Posted by TunedOut View Post
Dizzy, nauseous, stuck in bed this weekend. Last treatment on the first type of chemo has been a doozy. Hope today is better.
Thinking of you and wishing you some better days. ♥️
Discombobulated is offline   Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut, unaluna
*Beth*
catches the flowers
*Beth* is practicing healthy breathing for brain, mind, body, spirit.
 
Member Since: Jul 2019
Location: Downtown Vibes, California
Posts: 15,701 (SuperPoster!)
3 yr Member
23.7k hugs
given
PC PoohBah!
Default Sep 16, 2020 at 12:16 PM
  #34
Thank you for the updates. You are incredible!

__________________




*Beth* is offline   Reply With QuoteReply With Quote
 
Hugs from:
Discombobulated, happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut, unaluna
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Sep 17, 2020 at 01:49 AM
  #35
Beginning Tuesday, I have been able to get out of bed and actually walked yesterday (the first real walk since chemo). If past patterns hold, I will begin feeling very good on Saturday or Sunday. The new chemo will begin on Tuesday, September 22nd. I lost 8 pounds on this chemo and my blood pressure (bp) is much lower (in a good way) than before though I discovered on Monday afternoon during a telehealth appointment that my bp was very low that day and we concluded that it had probably been extraordinarily low all weekend. Next time that I feel too dizzy to get out of bed, I will be taking my bp.

Last edited by TunedOut; Sep 17, 2020 at 02:05 AM..
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Discombobulated, possum220, unaluna
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Sep 23, 2020 at 08:22 PM
  #36
When I went to my treatment yesterday, I suspected that I had a sinus infection; however, my doctor said, "Let's go ahead with the treatment because if we let up we now, we might not knock it out. I said OK then was ecstatic this morning because I was not nauseous and was able to do lots of things then took a four hour nap. Unfortunately, a little while after the nap, I developed chills followed by a fever. Though I am supposed to go to the emergency room if I have a fever of 100.4 (isn't that kind of low, fevers mean your immune system is working) or above, I am currently watching it (101.3) and took a Tylenol to bring it down. Would rather go in the morning and if it comes down to normal, I will just message my Primary Care Doc with all the details in the morning.

PS. Noticed the fever three or four hours ago. Drank a lot of water and just finished sweating a lot--two hours after taking that Tylenol (I was going to take a Naproxen then if it was still high), my fever is already down. My POV is never go to an emergency room unless you have to -- make an appointment at an office instead. Now I can go to bed.

Last edited by TunedOut; Sep 23, 2020 at 08:49 PM..
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Discombobulated, unaluna
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Sep 24, 2020 at 03:05 AM
  #37
Dreamed and sweated all night. Woke up with chills and a fever. Took Tylenol and drinking a Propel (pounding the clear liquids). Hoping to get the fever down again so I can just work with my doctor's office on this today......

In a mere hour, I got that temperature down and then messaged my Primary Care Doc. It is nice that I am able to message my docs, look at my records and refill my prescriptions via the VA's MyHealtheVet. I am not that worried about the fever since it is so controllable.

Last edited by TunedOut; Sep 24, 2020 at 04:41 AM..
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
*Beth*, Anonymous32451, Discombobulated, happysobercrafter, unaluna
 
Thanks for this!
happysobercrafter
Anonymous32451
Guest
Anonymous32451 has no updates. Edit
 
Posts: n/a
Default Sep 24, 2020 at 02:37 PM
  #38
I am glad you are able to get the fever under control
those things are horrible

thanks for the continued updates
  Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut, unaluna
Discombobulated
Grand Magnate
 
Discombobulated's Avatar
Discombobulated has no updates.
 
Member Since: Oct 2019
Location: UK
Posts: 4,640 (SuperPoster!)
3 yr Member
11.5k hugs
given
PC PoohBah!
Default Sep 24, 2020 at 03:01 PM
  #39
Sending you lots of love Tuned Out, this sounds like a very rough storm to ride.
Discombobulated is offline   Reply With QuoteReply With Quote
 
Hugs from:
happysobercrafter, TunedOut
 
Thanks for this!
happysobercrafter, TunedOut
TunedOut
Grand Poohbah
 
TunedOut's Avatar
TunedOut has no updates.
 
Member Since: May 2019
Location: USA
Posts: 1,523
3 yr Member
6,983 hugs
given
PC PoohBah!
Default Sep 24, 2020 at 04:11 PM
  #40
My primary care doc said that though my symptoms (am still dealing with chills, temp fluctuations, sleeping a lot, feeling a little dizzy so I checked my BP and it was 82/60) are probably just due to chemo in order to be safe and since I am immunocompromised, I should get a call scheduling me for a drive-up COVID test as a precaution. They must be busy testing people since I haven't been called yet.
TunedOut is offline   Reply With QuoteReply With Quote
 
Hugs from:
Discombobulated, happysobercrafter, unaluna
 
Thanks for this!
happysobercrafter
All times are GMT -5. The time now is 01:14 PM.
Powered by vBulletin® — Copyright © 2000 - 2024, Jelsoft Enterprises Ltd.



 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.