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Legendary Wise Elder
Member Since Sep 2010
Location: North Carolina
Posts: 49,204
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Nov 28, 2023 at 12:11 PM
#1
Woman, 25, with ovarian cancer recalls symptoms that doctors dismissed: 'You’re fine'
I hate that horse rather than zebra idea. By the time docs rule out common causes you're dead from a rare one. My sis had ovarian cancer which had spread. She lived. It was a miracle. I still advocate female gynecologists. I think they are more understanding and cautious. |
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Junior Member
Member Since Nov 2023
Location: usa
Posts: 10
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Nov 30, 2023 at 11:54 AM
#2
I am so grateful that your sister lived! You are right, what a miracle! Ovarian cancer is a tough cancer to fight.
I think each person is unique and so is each symptom. |
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Legendary Wise Elder
Member Since Sep 2010
Location: North Carolina
Posts: 49,204
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Dec 01, 2023 at 02:54 PM
#3
My sis asked a doc to check for cancer recently and he threw a patient gown at her. Shame on him!
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Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
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Dec 01, 2023 at 03:03 PM
#4
Oh, that’s horrible. I had had foot surgery and the surgeon put a steel rod in my foot. A few days later the pain was awful,so I went to the emergency room. They did an X-ray and said the rod was working its way out. They sent the X-ray to the surgeon and he told me nothing was wrong, it was in my head. So I went to a different hospital ER and the doctor there told me the same thing. He then started to shout at me for using resources when he found out I’d already gone to one ER. I calmly explained that the surgeon wouldn’t do anything and I was getting a second opinion. Then he got on the phone demanding to talk to the Dr who operated and yelled at him. I had remedial surgery the next day. Not the same as cancer but yeah you have to demand respect and treatment sometimes.
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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Poohbah
Member Since Jun 2020
Location: U.S
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Dec 05, 2023 at 11:28 AM
#5
Quote:
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Veteran Member
Member Since Aug 2020
Location: LA
Posts: 585
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Dec 05, 2023 at 06:50 PM
#6
Agree but, I will do you one better...
get your own tests. You can get a CA-125 test at quest and you don't need your doctor's ok. Just buy it yourself. You can also test for many blood cancers at quest... I would recommend doing a Serum protein electrophoresis (SPEP) which can tell you if you have some blood cancers early. Multiple Meyloma. I purchase my own blood tests at Quest / Ulta Labs. They are pretty reasonable priced. Also, I am considering getting this test.. https://www.galleri.com - tests for a whole bunch of them via liquid biopsy. It is 1K for you to pay but honestly seems like that might be worth it. |
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Legendary Wise Elder
Member Since Sep 2010
Location: North Carolina
Posts: 49,204
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Dec 06, 2023 at 10:30 PM
#7
What is CA125? Is that ovarian cancer? If so, that would be wonderful!
My sis's abdominal pain got so bad she could hardly straighten up, Then she went to the doctor. I'm not sure what happened at that point. I'll ask her. She was having bloating and spotting, but she thought it was the ending of her periods. |
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Nammu
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Veteran Member
Member Since Aug 2020
Location: LA
Posts: 585
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Dec 07, 2023 at 06:52 AM
#8
Quote:
That being said, it is accurate enough to give you a warning. My mom thought she had ovarian cancer. The doctor did the CA 125 test and it came back negative. Mom went on to have an ovarian cyst removed -- and that was biopsied for ovca. Negative. If I was having any bloating symptoms i would get the CA 125 immediately and if it was positive present it to doctors. |
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Legendary Wise Elder
Member Since Sep 2010
Location: North Carolina
Posts: 49,204
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Dec 08, 2023 at 03:51 PM
#9
Great idea!
 Thanks so much for telling us.
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Veteran Member
Member Since Aug 2020
Location: LA
Posts: 585
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Sep 21, 2024 at 07:50 AM
#10
In my travels I came across this... GASTROClear for HC Professionals - Gastroclear
It is a blood test for gastric cancer. My mom passed of that and generally it is excessively difficult to find until you are end stage. There usually aren't symptoms until that time. This test is new so it might not be available here yet, but, in Asia (which has more gastric cancer than the west) the tests sold out. It is considered pretty accurate. It found 60% of early gastric cancers. Think how many people that could save. |
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