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Old Apr 02, 2014, 03:39 AM
Anonymous200280
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Quote:
Originally Posted by Curiosity77 View Post
Saw my pdoc today and i asked to stop the saphris. She said i need to be on an AP pretty much forever, so if not saphris i'll have to pick another. I don't see any point in changing because saphris is fine, i want off all of them not a switch to another one. She gave me the typical "if it were diabetes would you want to stop your meds" talk, which i understand but i also find highly annoying and oversimplified. So i said if it were diabetes i could try lifestyle management to bring down the glucose, the treatment is not always insulin. I said that i think it was a series of very stressful events that triggered my major episodes, and as long as i keep my stress level low i should be fine. So she said that there are always stresses in life and bad stuff happens unpredictably, but that my reactions to things are too extreme when off meds. She said that most people don't require hospitalization to cope with stress. She told me i need to have more acceptance and stop being so hard on myself. She said i will always have a vulnerable brain, and the combo of lacmictal, wellbutrin, and an AP is probably permanent. She said if i don't like saphris we can try latuda.

Anyways, it wasn't what i wanted to hear. I don't like to think of my brain as vulnerable. I think my brain is pretty strong and resilient to have bounced back from some pretty extreme states and still br functioning pretty well. I don't likd being told i am sick. She said accept the chronic condition, but don't let it define me.

I guess part of me hasn't accepted it yet. I have a really hard time distinguishing the libe between my regular life experiences and illness. It's so blurry. I don't want to medicate my life away, but i don't want to be hospitalized or get sick enough to require other people to take care of me.

How do i get to acceptance? How do i lower my expectations for myself and what is possible for my life?

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I've had a similar experience. I am still working on acceptance and testing the boundaries of what I can deal with.

There is a type of therapy called Acceptance and commitment therapy (ACT), which I am looking into. It seems to be tailored mindfulness and self observation from what I can gather so far. Both of which I do a lot of so Im not sure if it will be helpful to me. I know there are self help books on it so I might seek out one of those instead of finding an expensive group or therapist. Next step of the journey.

Today has been another "get through it one hour at a time day". I am not enjoying life at all, but keep on going because thats what "they" want me to do. I still have to go to work soon, which feels impossible, but I know I will put one foot infront of the other and just do it. I have no reward or relief.
Hugs from:
Hbomb0903, swheaton
Thanks for this!
Curiosity77