Would you continue the med in this case?

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Originally Posted by MuddyBoots A lot of them, yeah. Right now I'm thinking Abilify or Vraylar. I never gave Abilify a chance and when I tried Vraylar I was on 4 APs total so I don't really know what it did. Zyprexa, Clozaril, Risperdal, Haldol, Thorazine, and Seroquel have unbearable side effects (but other than Risperdal they worked). Geodon and Latuda didn't work. Haven't tried Rexulti, Fanapt, Caplyta, or Saphris.

I agree with your idea for AP options. Vraylar seems to be a good one for many people. So does Abilify. My med dude swears by Caplyta.

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Originally Posted by MuddyBoots F**k it. I'm just not going to show up for my injection. The rash is now on my face, arms and legs, and the itching is driving me insane. I've been taking 50mg of Benadryl every 4ish hours and it's not doing shyt. Hmm... Possible trigger: die of metabolic side effects (Seroquel, Zyprexa, Clozaril), die of allergic reaction (Risperdal, Invega), or kill myself (Latuda, Haldol, Thorazine, Geodon, nothing.)????

I so, so feel you. And I wouldn't go for the shot, either. God, I would resent such a situation.

I even just woke up from a dream about this stupid rash. I went to the doc's to get it checked out, but the dr just laughed at me and said I deserved it.

So idk if that even happened because I've been hallucinating a lot lately and apparently don't realize when it's happening unless it's super obvious (like hearing people talk to me in the shower loud and clear with the door shut and locked).

This dream about the dr who said you deserved the rash... sounds to me similar to psychotic voices who say bad things to people in psychosis, such as that people should hurt themselves or that they deserve the misfortune that has happened to them. Maybe I am overinterpreting.

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Originally Posted by MuddyBoots So idk if that even happened because I've been hallucinating a lot lately and apparently don't realize when it's happening unless it's super obvious (like hearing people talk to me in the shower loud and clear with the door shut and locked).

Well, there's that weird space, like when you have a fever, in which you might have a feeling that may or may not be a dream. The thing is, even that could be a result of your body reacting to the source of the rash.

But if you have been hallucinating a lot lately, it means Invega is not working effectively as an AP. So all the more reason to ditch Invega.

I find some doctors can be very dismissive about side effects. I've been having GI problems from beta blockers, and I can't even get the doctors to believe me (even though it is a listed side effect).

How aggravating and disrespectful!

I talked to someone from ACT today and she said I "should give it a few more months to see if it starts working and the rash goes away." Yeah, no thanks. Been on the injection for four-ish months if I remember correctly and the pill even longer.

My symptoms this summer have been some of the worst I've ever had and I know some of that has to do with substance use, but I feel like I wouldn't be using if I were sleeping, not impulsive, not agitated, not blacking out, and not desperate to get away from my head. Other than the tail-end of my last manic episode I wasn't even using all that much.

I'm sorry your team isn't listening to you.

I would go to ER if the rash is on the face, which is so serious. Also careful with steroid creams, not all of them are approved to be used above the neckline. A dermatologist would know. Can you afford going to ER and seeing a dermatologist?

Seems like the rash is getting worse, not better. I'm sorry the doctors aren't taking it seriously.

I have some leftover steroid cream from when I had poison ivy that can be used on the face, just not on the eyelids. Didn't think to use it until just now. I'll test it out on my chest first to see if it works.

ER is out of the question because I already brought it to their attention weeks ago and they didn't say anything about it (I was there for something else though, but I imagine if I go now it'll just be a waste of time just the same as it typically is every time I go these days).

I am very, very concerned about the rash. Every time, without exception, that I've had a med-related rash I was told to stop the medication immediately. That has been true for any kind of medication, not just psych. I suspect they tend to minimize your symptoms and concerns because you're an addict. I saw my sister go through that for decades. It was horrible.

You're probably right. I see my dad go through the same thing (it's gotten to the point he only goes to the oral surgeon my cousin works for when a tooth needs pulling). I'm at the point where I'm thinking I'll just say the "trigger words" to the ER department to go IP the day before my next injection if new pdoc doesn't take me off. The unit I typically go to usually listens (unless I have a specific doctor that I nicknamed "Noodles" which he took offense to).

I agree re the rash.

I've experienced a SEVERE rash all over my face from meds, as it was on my face this was intolerable and scary.

ORAL steroids were prescribed for the rash.

Nature does what it does for a reason, I guess... Nature wants fuzzybear not to take any of the meds she has tried... (apart from one long ago which I eventually became allergic to, a long and sub optimal story related to that which I will not share. I didn't do anything ''wrong'' to cause this to happen.

Sorry about the rant, I feel strongly that a severe rash is nature's way of saying NO to a med.... (food allergies, other allergies, etc also...)

I just wrote a post in this thread saying pretty much the same thing (but deleted it)

I too would resent such a situation

I wouldn't go for the shot