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Magnate
Member Since Mar 2021
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#21
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Monster on the Hill
Member Since Sep 2020
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#22
F**k it. I'm just not going to show up for my injection. The rash is now on my face, arms and legs, and the itching is driving me insane. I've been taking 50mg of Benadryl every 4ish hours and it's not doing shyt.
Hmm...
Possible trigger:
__________________ Live life for nothing but that sweet sweet melody. Last edited by MuddyBoots; Aug 28, 2022 at 06:11 PM.. |
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*Beth*, downandlonely, Fuzzybear, Nammu
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*Beth*
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Legendary
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#23
Have you tried abilify or Lybalvi ?
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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Legendary
Member Since Mar 2018
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#24
I don't blame you for not getting the injection. The rash is getting worse. I hear that can happen.
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*Beth*, Fuzzybear
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Wise Elder
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#25
If the rash gets any worse you should see a doctor (you probably should see one as it is). You may need a steroid cream or something else besides benadryl and that would get the allergy documented.
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1700 mg & 100-2 PRN,. 1.5 mg clonazepam., 50 mg Seroquel |
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catches the flowers
Member Since Jul 2019
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#26
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I agree with your idea for AP options. Vraylar seems to be a good one for many people. So does Abilify. My med dude swears by Caplyta. __________________ |
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downandlonely, Fuzzybear
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catches the flowers
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#27
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I so, so feel you. And I wouldn't go for the shot, either. God, I would resent such a situation. __________________ |
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downandlonely, Fuzzybear
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Monster on the Hill
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#28
I even just woke up from a dream about this stupid rash. I went to the doc's to get it checked out, but the dr just laughed at me and said I deserved it.
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Monster on the Hill
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#29
So idk if that even happened because I've been hallucinating a lot lately and apparently don't realize when it's happening unless it's super obvious (like hearing people talk to me in the shower loud and clear with the door shut and locked).
__________________ Live life for nothing but that sweet sweet melody. |
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Magnate
Member Since Mar 2021
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#30
This dream about the dr who said you deserved the rash... sounds to me similar to psychotic voices who say bad things to people in psychosis, such as that people should hurt themselves or that they deserve the misfortune that has happened to them. Maybe I am overinterpreting.
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#31
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Well, there's that weird space, like when you have a fever, in which you might have a feeling that may or may not be a dream. The thing is, even that could be a result of your body reacting to the source of the rash. __________________ |
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Magnate
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#32
But if you have been hallucinating a lot lately, it means Invega is not working effectively as an AP. So all the more reason to ditch Invega.
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downandlonely, Fuzzybear, MuddyBoots
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Legendary
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#33
I find some doctors can be very dismissive about side effects. I've been having GI problems from beta blockers, and I can't even get the doctors to believe me (even though it is a listed side effect).
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MuddyBoots
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*Beth*, Fuzzybear
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Magnate
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#34
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downandlonely, Fuzzybear
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Monster on the Hill
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#35
I talked to someone from ACT today and she said I "should give it a few more months to see if it starts working and the rash goes away." Yeah, no thanks. Been on the injection for four-ish months if I remember correctly and the pill even longer.
My symptoms this summer have been some of the worst I've ever had and I know some of that has to do with substance use, but I feel like I wouldn't be using if I were sleeping, not impulsive, not agitated, not blacking out, and not desperate to get away from my head. Other than the tail-end of my last manic episode I wasn't even using all that much. __________________ Live life for nothing but that sweet sweet melody. |
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*Beth*, downandlonely, Fuzzybear, Nammu
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Legendary
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#36
I'm sorry your team isn't listening to you.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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Magnate
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#37
I would go to ER if the rash is on the face, which is so serious. Also careful with steroid creams, not all of them are approved to be used above the neckline. A dermatologist would know. Can you afford going to ER and seeing a dermatologist?
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downandlonely, Fuzzybear
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Legendary
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#38
Seems like the rash is getting worse, not better. I'm sorry the doctors aren't taking it seriously.
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*Beth*
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Monster on the Hill
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#39
I have some leftover steroid cream from when I had poison ivy that can be used on the face, just not on the eyelids. Didn't think to use it until just now. I'll test it out on my chest first to see if it works.
ER is out of the question because I already brought it to their attention weeks ago and they didn't say anything about it (I was there for something else though, but I imagine if I go now it'll just be a waste of time just the same as it typically is every time I go these days). __________________ Live life for nothing but that sweet sweet melody. |
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catches the flowers
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#40
I am very, very concerned about the rash. Every time, without exception, that I've had a med-related rash I was told to stop the medication immediately. That has been true for any kind of medication, not just psych. I suspect they tend to minimize your symptoms and concerns because you're an addict. I saw my sister go through that for decades. It was horrible.
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