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#1
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I began suffering (noticeably) from bipolar (or Manic Depression as I prefer to call it) at around age 19. I'm now 23. At first, I just thought I was doing exceedingly well in life. I was writing songs, making a ton of friends, and generally "ruling the world". After a few months however, I felt the downside. I was so depressed I could barely get out of bed. I no longer talked to any of the friends I had made and dropped out of school. When I came home, I quickly began feeling better and thought nothing of it. People get depressed, you know? Man, how wrong I was. God, I would do anything to go back knowing my diagnosis. How did none of the numerous counselors I saw even suggest this as a possibility when I told them exactly of my experiences? No doubt, I am very, very bitter. It's hard to help. Because this is what happened.
About a year (at 22) I began to "rule the world" again. I had a beautiful girlfriend. I was making incredible music, playing concerts twice every week in my city. I was making a tons of friends and contacts, and generally having a blast. I was living the dream. I was invincible... Seemingly. After a few months of feeling great I started getting delusional (instead of getting depressed like last time). I thought huge record labels were going to sign me, I thought I was on some sort of holy crusade for humanity. JUST EXACTLY the kind of (stereotypical, for lack of a better term) symptoms that are listed as psychotic symptoms in medical books or internet databases. And, it was a about to get a lot worse. My mom was terrified (no wonder) and called for me to be taken in for evaluation. I was taken to an intermediary facility, you know, while they find you a real psychiatric hospital. I actually had a normal conversation with one of the staff members there, compared to what was just about to happen. The first night I was in this nightmarish place, my worst nightmares came to fruition. I had the most horrific psychotic break (mental breakdown) imaginable. And it came very, very suddenly. To make a vast story short, suddenly, I witnessed the end of the world. Though I had the delusions before, it was literally crashing down all around me this time. And strangely enough, I often felt incredible from the manic avalanche that was happening in my brain. There was no stop to my mania or the fantastical hallucinations. I was creating so much havoc in my room that I had to be subdued by a police officer and pumped up with drugs to put to sleep. They shipped me off to an emergency room in a REAL hospital. Hallucinations still vivid beyond your wildest dreams. I was literally receiving visible "messages" from God (like from a chat room). It's completely absurd, I know. Anyways, I was so insane there they had to knock me out again. Next thing I know I wake up in a psychiatric ward with what felt like nothing more than a bad hangover. Hallucinations were gone. Of course I was still manic for about two and a half weeks there but I was put on lithium (that's it) and eventually I was normalized and very calm. I got out in a month. The doctors all thought I was doing great (they were wonderful). I thought I was great. Wrong. I suffered another psychotic break about two days after I came home. The second or third night I began to feel incredibly dysphoric like I have never felt in my life and then all of a sudden the next day the "messages" came again. The "messages" are the reoccurring manifestation of my delusions. I have hardly ever heard "voices". I don't even want to say what they claimed to be (and claim) because perhaps interesting as it is, I don't want scare people with my delusions. Unless someone asks, I think it's irrelevant. But yeah, I was back in the intermediary center (same place). Given no medications. They can't give them there. Though it wasn't as severe as the first time, it was a "depressive break" rather than a "manic break" and again I thought the world had ended, and this time I was not the hero. It was my fault. And again, please don't think I take the delusions as reality. I firmly believe they were (and are) just visual manifestations of my most grandiose hopes and fears. Again, I was moved back to the emergency room in a REAL hospital. Hallucinations still ongoing. And they never would have stopped. But they gave me some 'antipsychotics' and the hallucinations went away almost immediately. So now, almost a year after all this happened I am on 400 mg of Seroquel. And let me tell you, I am painfully made aware by my doctor that I will never get off of antipsychotics, and thusly, my life will never be the same. This medicine is awful. I hate it more than hate itself. It blocks dopamine and serotonin (happiness chemicals) in your brain, and I almost always have to sleep 12 hours to function. My 5' 8" 145 pound body just cannot handle the sedation of my dosage, and the "messages" never really stopped. Not even to mention the potential long term side effects which I'm not even going to name here. When I decrease the dosage, the "messages" are unbearable. Now they're faint, but they're still there, and they bug the living blank out of me everyday. In conclusion, I hope somebody learns from my story, DO NOT let your mania get too out of control or you could pay the severest of consequences. I will never enjoy life or be able to control my life the way I did. No doubt. A psychic in the psychiatric hospital told me I had entered my second life. He was right. But I didn't think my second life would be living in regret everyday for the wish of my former life. Love to all with this illness, I have great sympathy for what people are going through and I will try to be a help on these forums. Best wishes. Rob |
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#2
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Oh, Rob, I am so sorry this has happened to you. It sounds like a nightmare. Please know that this forum is a safe place to come to share yourself and talk about things like this. We will be as helpful as possible, too. Welcome aboard!
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![]() That which does not kill me makes me stronger. |
#3
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I'm so sorry you're feeling this way, and I can completely relate, I'm in the hospital now for similar breaks and delusions. I hope you start feeling better soon, I'm on Zyprexa. I hear alot of white noise and sometimes messages that make me want to lash out and destroy my surroundings so I can find the portal home to my planet. Yes it's interesting when I have a break.
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#4
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What a nightmare, Rob! But have some faith in modern medicine - while you will have to stay on AN antipsychotic, it does not have to be Seroquel. There are quite a few drugs in this class. Not all cause as much sedation as Seroquel. Work with your doctor, complain. Try another antipsychotic. Or two. Maybe you and the doctor will find some middle ground.
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#5
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I'm trying Haldol for the first time and it's really helping me.
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![]() ![]() "I'm insecure, impatient, and a little selfish. I make mistakes, I am out of control, and at times hard to handle. But if you cant handle me at my worst, then you sure as hell don't deserve me at my best." - Marilyn Monroe |
#6
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Welcome to PC Rob ! Im sorry you have had such a rough road .
Hopefully this forum and all the kind wise loving people here can provide you support and help I know this place has beeen a life saver for me . Welcomeeee (((((( HUGS ))))))
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Helping others gets me out of my own head ~ |
#7
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Welcome. This board is great!
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Qui Cantat Bis Orat - He who sings prays twice Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 6 mg ![]() Gabapentin 600 mg Klonopin 1 mg 2x daily |
#8
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Welcome to PC, Sometimes we are dealt a bad hand but it is how we play it that counts. I believe you will find happiness just may have to look a little harder and finding joy in the small things can be real rewarding. Hang in there you may surprise yourself!
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#9
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Hi, Rob!!!!!! Welcome to the world of Bipolar Disorder!!!! My story is nothing like yours. But the result is the same in one respect. I lost my 'real life' too, and am now consigned to .... to .... to whatever the Hell THIS is!!!! I'm sorry that you have gone through all the things that you have. And that you're still having to deal with messages. There's so many meds out there. I hope that you can find something besides Seroquel that will do a better job with fewer side effects. I hope that, as time goes on, your 'new' life will consist of more and better things than just feeling regret for the life that you used to have. It can take a long, long time to find just the right med cocktail, sometimes. You're never going to get your 'pre-manic depressive life back, but you very well MIGHT get to a much, much better place than you are right now!!! This is NOT as 'good as it's gonna get'. If you are extremely unhappy with the quality of your life right now, be sure you stress that to your Pdoc. I guess if it came down to getting messages or feeling over-sedated, I'd choose the sedation -- but I doubt that those are the only two options!!! There are so many more drugs out there!!! I hope you find one that works better for you. (((((Hugs))))) |
#10
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Welcome....
Like the others have said, there are lots of meds out there, maybe you can find a combo that works better with less side effects. I'm on abilify and allegron but tried lots of different combinations to get where I am now.
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