[Hbomb0903]

I'm frankly a little scared. I'm doing review and I just took my first dose, but she indicated that it could be used in place of the mood stabilizer. She indicated she has done this with many other patients and it has worked well.

What do you think? Any experiences and feedback is appreciated.

[Capriciousness]

I have no idea HBomb but thought I'd say I'm glad you are maybe going to find some relief. I have not been on Latuda. I like the commercial though

[Hbomb0903]

I need to contact my insurance to see if it's covered. The doc gave me a month's worth of samples, but it would be devastating for it to work and then to not be able to afford it!!!

I've heard that the drug company has a help program, so I will check this out too. Still feeling overwhelmed doing stuff though.

[Capriciousness]

Yeah

Good point about the insurance. It would suck to be left high and dry.

Are you on anything else?

[gayleggg]

I took it for a few months and couldn't tell it did anything. No side effects or anything. Hope it works for you. It is pretty expensive if your insurance doesn't cover it.

[TheatreKid]

My pdoc considered it for me but said it was good with psychosis but not so much for mood. Seems your doc says something different. I've never tried it, so I don't know who is right.

[madrikh]

I have been on it for a month. Seems like I was doing somewhat better (mildly depressed instead of severely depressed) with it, until he added fetzima. I think the fetzima freaked me out. When I see pdoc next week I will ask about increasing the Latuda. I have one leg that tremors from it, but no other SE. I hope it helps you. Keep us posted.

[Curiosity77]

I haven't tried it, but my pdoc wants to switch me over to it from saphris. I think it's probably better, but i've been hesitant to go through the upheaval of a med change. I'm interested in how you find it.

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[Hbomb0903]

Took first dose and am now incredibly sleepy. But the doc said it would likely do that.

[Hbomb0903]

I'm also confused by the fact that even though she said the lithium levels in my blood aren't even theraupeutic, she still wants me to take it??? She didn't increase the level, just said stay on it?? And she didn't take me off the wellbutrin either.

I'm becoming more and more uncomfortable with all this the more I think about it.

[nbritton]

Originally Posted by Hbomb0903

I'm frankly a little scared. I'm doing review and I just took my first dose, but she indicated that it could be used in place of the mood stabilizer. She indicated she has done this with many other patients and it has worked well.

What do you think? Any experiences and feedback is appreciated.

You have nothing to worry about, in 2013 the FDA approved it for the treatment of bipolar depression. The stuff works great, honestly the only downside I can think of is its cost.

[nbritton]

Originally Posted by Hbomb0903

Took first dose and am now incredibly sleepy. But the doc said it would likely do that.

Your suppose to take it at night, one to two hours before bed time. The prescribing information also says to take it with food.

[Lobster Hands]

My doc have me samples too, but by the time I was on week 2 I was already having terrible side effects.

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[Hbomb0903]

Originally Posted by Lobster Hands...

My doc have me samples too, but by the time I was on week 2 I was already having terrible side effects.

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What were your side effects???

Also I just looked it up and my insurance does not cover it!! It projects a cost of $4030 for a year's supply!

Pretty disappointing. Now I dont know what to do.

[nbritton]

Originally Posted by Hbomb0903

I'm also confused by the fact that even though she said the lithium levels in my blood aren't even theraupeutic, she still wants me to take it??? She didn't increase the level, just said stay on it?? And she didn't take me off the wellbutrin either.

I'm becoming more and more uncomfortable with all this the more I think about it.

Lithium at basically any dose has therapeutic effects. Several studies have been done on this, here is one:

J Psychiatr Res. 2013 Mar;47(3):407-11. doi: 10.1016/j.jpsychires.2012.12.002. Epub 2013 Jan 9.
Lithium in the public water supply and suicide mortality in Texas.
Blüml V1, Regier MD, Hlavin G, Rockett IR, König F, Vyssoki B, Bschor T, Kapusta ND.
Author information

Abstract
There is increasing evidence from ecological studies that lithium levels in drinking water are inversely associated with suicide mortality. Previous studies of this association were criticized for using inadequate statistical methods and neglecting socioeconomic confounders. This study evaluated the association between lithium levels in the public water supply and county-based suicide rates in Texas. A state-wide sample of 3123 lithium measurements in the public water supply was examined relative to suicide rates in 226 Texas counties. Linear and Poisson regression models were adjusted for socioeconomic factors in estimating the association. Lithium levels in the public water supply were negatively associated with suicide rates in most statistical analyses. The findings provide confirmatory evidence that higher lithium levels in the public drinking water are associated with lower suicide rates. This association needs clarification through examination of possible neurobiological effects of low natural lithium doses.

[swheaton]

Well, I've heard really good things about it, but it made me too groggy.

[nbritton]

Originally Posted by Hbomb0903

What were your side effects???

Also I just looked it up and my insurance does not cover it!! It projects a cost of $4030 for a year's supply!

Pretty disappointing. Now I dont know what to do.

Out of pocket, lutuda costs $800/mo. The manufacturer has a saving card program that will contribute $75 for each fill for the first year: LATUDA® (lurasidone HCl) Savings

They also have a patient assistance program for individuals making up to 300% of the Federal poverty level, so you'll probably qualify for that. Here is the link: http://www.sunovionsupport.com/docum...pplication.pdf

Keep taking it, if you respond to this medication your doctor most likely can find an alternative that doesn't cost as much. Additionally, you can split the pills in half, so you would be able to cut your projected costs in half.

[Hbomb0903]

Originally Posted by nbritton

Out of pocket, lutuda costs $800/mo. The manufacturer has a saving card program that will contribute $75 for each fill for the first year: LATUDA® (lurasidone HCl) Savings

They also have a patient assistance program for individuals making up to 300% of the Federal poverty level, so you'll probably qualify for that. Here is the link: http://www.sunovionsupport.com/docum...pplication.pdf

I looked at the same thing. My insurance says it will cost me $340 a month which is unacceptable. The savings card says you pay $25 and save up to $75. Those numbers don't seem to add up???

[nbritton]

Originally Posted by Hbomb0903

I looked at the same thing. My insurance says it will cost me $340 a month which is unacceptable. The savings card says you pay $25 and save up to $75. Those numbers don't seem to add up???

You can split the pills in half, so two months worth is $340. Then the savings card kicks in $75 per fill, so you're looking at $132.5 per month. My doctor supplied me with samples for over six months, he gave me 120mg pills and I cut them in half... your doc might be able to do the same.

Also 300% poverty level for a single person is $35k per year, you should qualify for their patient assistance program.

[Hbomb0903]

Originally Posted by nbritton

You can split the pills in half, so two months worth is $340. Then the savings card kicks in $75 per fill, so you're looking at $132.5 per month. My doctor supplied me with samples for over six months, he gave me 120mg pills and I cut them in half... your doc might be able to do the same.

Also 300% poverty level for a single person is $35k per year, you should qualify for their patient assistance program.

I'm going to ask my doc about samples and how long she can give them to me. The assistance program requires that you don't have insurance, which I do though. She already gave me a month supply.

[Lobster Hands]

Originally Posted by Hbomb0903

What were your side effects???

Also I just looked it up and my insurance does not cover it!! It projects a cost of $4030 for a year's supply!

Pretty disappointing. Now I dont know what to do.

I got so restless from it that I was basically a revved up zombie. I couldn't think about anything except moving. This led to me getting in some dangerous situations at home and in public.

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[nbritton]

Originally Posted by Hbomb0903

I'm going to ask my doc about samples and how long she can give them to me. The assistance program requires that you don't have insurance, which I do though. She already gave me a month supply.

Tell them you don't have insurance, theses guys are gouging us $800/gram for their drug, do you really think we should give a crap about ethics here? Google says you can buy cocaine for $80/gram.

[BlackSheep79]

I'm scared also, I'm getting ready to switch from Haldol to Latuda tomorrow. I will keep you posted on how I am doing as well, and we can compare notes on how we are doing.

BP 1 with mixed episodes/OCD

Lamictal 400 mg
Haldol 4 mg
Klonopin 1 mg
Lunesta 3 mg

[BlackSheep79]

I replied the other day and would let you know how I'm doing. I've been on it for two days now and I had read that a lot of people had dealt with nausea, I have not. I am taking half of my dose of Haldol still for a week until I am off of it. I feel a little blah today and not much of an appetite. I put a post out there to know how long it takes to get into your system so I can definitely know what I am truly feeling, and hopefully no allergic reaction since I have had such good luck with that.

[lonely43]

I was on it for while seemed to work good then one day just freaked out on every body lost it had to change meds

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