 |
| FAQ/Help |
| Calendar |
| Search |
|
#1
May 27, 2015, 03:08 PM
|
||||
|
||||
|
Am I alone in that there are SO many meds I *cant* take?
Geodon-ocular dystonia Risperdal and Latuda-akathesia Seroquel-rage and horrible weight gain Abilify-allergic Lithium-bad side effects Tegretol and topomax-complete zombie Crazy huh? Most anti p it seems I can't take. I'm taking zyprexa right now and gaining weight. It makes me feel discouraged that so many have effected me negatively. I really thought Latuda was helping til the bad akathesia hit.
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
 Anonymous200325, Anonymous59125, Crazy Hitch
|
|
#2
May 27, 2015, 03:34 PM
|
||||
|
||||
|
No, I'm the same way. Lithium worked the best for me but could not handle the constant nausea, acne and massive weight gain. All the atypicals I've tried give me akasthesia. Lamictal gave me horrible insomnia despite taking Ambien at night. I hate meds.
|
| HALLIEBETH87
|
|
#3
May 27, 2015, 03:36 PM
|
||||
|
||||
|
Does it make you feel like giving up sometimes?
I currently tAke: gabapentin, trileptal, lamictal, zyprexa
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
|
#4
May 27, 2015, 03:43 PM
|
||||
|
||||
|
I feel like giving up everyday. I've been trying different meds for 24 years. Occasionally something will work for a short period, then stop working and I am back to square one. Right now I am taking subtherapeutic doses of Prozac, Seroquel and Topamax because the side effects suck.
|
| HALLIEBETH87, Toodles333
|
|
#5
May 27, 2015, 03:46 PM
|
||||
|
||||
|
Last week I wNted to flush all the pills! Today I'm happy!!!!
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
| Toodles333
|
|
#6
May 27, 2015, 03:56 PM
|
||||
|
||||
|
I just mentioned this in my thread. It's like they all have some side effect I can't take. Lithium was the worst for side effects and I'll never take it again. Lamictal have me blurry vision. I've gotten akathesia from a couple of APs. And SSRIs usually send me into mania. I though I had it figured out with Wellbutrin and Invega but now I'm so depressed I can't move. It's ******** and I certainly feel like ditching the pills and missing my next injection appointment. I hate it.
__________________
Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
| HALLIEBETH87
|
 HALLIEBETH87
|
|
#7
May 27, 2015, 04:21 PM
|
||||
|
||||
|
I've been on 64 cocktails in 20 years and am about to go on #65. Risperdal causes very high blood pressure. Geodon caused extrapyramidal syndrome which makes all APs risky and old ones really risky. Abilify and Prozac (plus something random from surgery, probably Reglan) have caused serious akathesia. Abilify also caused double vision that lasted 4 weeks after taking just a few very low doses. That landed me in an emergeny room. I had the lamictal rash in a pattern that meant I couldn't try again. Zyprexa was useless even in combination with a fairly high dose of Seroquel (emergency). I had lithium toxicity 3 times badly and that was the end of what I could tolerate. Depakote was a mess; my blood levels never hit therapeutic until I was on an enormous dose and the dose kept having to increase to stay therapeutic. Weaning off it was the best thing ever, after being on it 6 years. Trileptal was so sedating that I was taking 1/32nd of a pill and still was knocked out. ADs were all disasters on some level until I had been on pretty much all of them and went on an MAOI which works very well although it is too stimulating when manic. I am forgetting plenty but I have tried nearly everything and what I haven't tried is either related to things that are bad (a few ADs and Invega) or contraindicated with other meds. I'm maxed out on Seroquel now to the absolute max it can be pushed. One more dose level can be done but I am not tolerating this one so well so I don't want to do that. I am hoping that things will be in place to try Latuda starting in June as a 2nd, back-up AP that lets me get my Seroquel down to 900 mg or so. If it works. I tried before and didn't have a good experience.
My pdoc somehow keeps me from wanting to give up on meds. I think it's because she's very honest and matter-of-fact that yes, there are not good options left and the less appealing options have risks but there are certain ones that will reduce my risks a bit and she is never giving up. She's told me that so many times that I believe it. She promises that new drugs that will do new things are coming and that something will work for me, not just patch me up but work. HallieBeth, you've helped me because after you had akathesia on Latuda I read about it, learned it is common and I'll be requesting a cogentin script to go with it so I have it the second I need it if I start developing akathesia.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| HALLIEBETH87
|
|
#8
May 27, 2015, 04:29 PM
|
||||
|
||||
|
Yes Hallie... it can be so frustrating when you really want that magic med, and all it does it makes you feel even worse. Hope you find a "mix" that works for you
 Hugs
|
| HALLIEBETH87
|
|
#9
May 27, 2015, 04:39 PM
|
||||
|
||||
|
Every single med I've ever been on has had bad side effects. I definitely feel like flushing the pills today.
|
|
#10
May 27, 2015, 05:02 PM
|
||||
|
||||
|
I feel amazing today
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
|
#11
May 27, 2015, 05:09 PM
|
|||
|
|||
|
Yes, side effects are so disappointing. I feel ya.
I'm finally on a cocktail that is working *somewhat* But for how long? Best of luck to you. I hope you continue to feel well. |
| HALLIEBETH87
|
|
#12
May 27, 2015, 08:59 PM
|
||||
|
||||
|
Im feeling very happy and hyper today
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
|
#13
May 28, 2015, 02:32 AM
|
||||
|
||||
|
Yeah I totally agree with what you said Hallie - it's crazy that there are some meds that we can't take - there are meds I can't take either so I totally relate to what you have said.
Oh yes, to answer your question - does it make you feel like giving up at times? Sure, I've had this intrusive thought too but really then I have to remind myself I'm strong and I'm not going to give up now - and you are too - you're a pretty amazing person! Glad to hear you feel amazing today Hallie Guess what! I feel amazing too High 5 you're awesome Hallie 
|
| HALLIEBETH87
|
|
#14
May 28, 2015, 11:59 AM
|
||||
|
||||
|
Once I was on effexor, took it for like three days, started making me manic, ****** side effects, so I stopped it.
Found the mostly full bottle of it under the sink. Laughed maniacally while dumping it it in the toilet and flushing (there was a spare xanax in the bottle that I didn't notice until it was floating around in the bowl. Felt bad for it). Upon reflection, I should have returned it to the pharmacy. I feel bad now that it's in the water supply and people are going to be drinking subtle hints of evil effexor. Sigh.
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "What if I can't get up and stand tall, What if the diamond days are all gone, and Who will I be when the Empire falls? Wake up alone and I'll be forgotten." 😢 - sleep token |
| HALLIEBETH87
|
|
#15
May 28, 2015, 01:20 PM
|
||||
|
||||
|
Quote:
I'm on the up swing even t said so haha He's happy I see pdoc next Wednesday!
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
|
#16
May 28, 2015, 02:15 PM
|
||||
|
||||
|
All of the atypicals (and typicals for that matter) cause me massive weight gain (even the so called "weight neutral" ones like Abilify and Geodon), and emotional and cognitive dulling. I've been on ALL of them. Geodon has been the most tolerable so far because I haven't had too many episodes while on it, and the episodes I had weren't that bad, but there's still the weight gain that I'm counteracting by starving myself, and the brain fog that's killing me in school and has me worried about starting grad school in the fall. Oh and being on more than one atypical at a time causes my prolactin to go out of whack to the point where my period stops.
As far as the mood stabilizers go: Lithium - insipid diabetes, weight gain, cognitive dulling Topamax - dopamax Lamictal - weight gain, massive cognitive dulling. I can't stand live with weight gain and cognitive dulling. I feel like so fat and stupid. I haven't had any drug allergies thank goodness, but the side effects are almost worth wanting to go med free. I have a lot of ambivalence about being on bipolar meds. On the one hand I'm thankful my episodes aren't as awful or as long as they used to be, but on the other hand I feel like they almost do more harm than good. I sometimes stop taking my meds for up to a week, but inevitably come back to them after I get sick of being awake for 3-7 days in a row and just want to be knocked out.
__________________
Diagnoses: Bipolar I, GAD, binge eating disorder (or something), substance abuse, and ADHD. “No great mind has ever existed without a touch of madness.” ― Aristotle |
|
#17
May 28, 2015, 04:32 PM
|
||||
|
||||
|
I told my t today I have lots of songs in my head playing like a radio and asked him if he has that sometimes too. He said no he only gets one. lol Then he said he thinks my mind is moving too fast and I tol dhim yes! its quick! lol
hes happy I see pdoc next Wednesday. he said it seems likes it right on point I see him soon. hahaIm supposed to watch my thoughts, actions and impulsivity. No getting tattoos and piercings! hahaha ive only been UP for a couple days now so...doesn't mean im gonna be super up much for long..but I hope!
__________________
schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
| Reply |
This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
|
My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
Linear Mode
