Home Menu

Menu


Reply
Thread Tools Display Modes
  #26  
Old Apr 22, 2016, 11:13 PM
jd6266 jd6266 is offline
Member
 
Member Since: Apr 2013
Posts: 34
Always trust yourself! Listen to your body! Doctors are just the people you went to high school with. Do not put all your trust in them.

Lithium toxicity doesn't always show up in the blood work. You can have therapeutic levels and be toxic. This happens when your body is trying to compensate and absorbs it into your tissues. I know, I was toxic for 4.5 years and my blood levels were always good. My docs didn't pay attention to my clinical presentation and what I was saying. But, I trusted them and wanted to do the right thing and listen to them and take care of my mental health. Never put that much trust into someone who spends a few minutes with you every couple of months even if they have known you for years, like mine did.

I ended up at the Mayo Clinic with encephalopathy, involuntary jerking, kidney dysfunction, cognitive deficits, respiratory depression, allergic reactions, muscle spasms, etc and they said, "but she looks fine." That is what happens when doctors don't want to take responsibility for poisoning someone for so long and causing damage to her body. Yes even the great Mayo is unethical at times. They have refused to help me with my muscle and joint problems and won't put in writing what happened. Luckily I recorded my visits so they will have a hard time explaining themselves in court.

Do not end up like me. Question everything and everyone who you are trusting your brain with. They do not have to live with the consequences.

Ironically, I was misdiagnosed. They had pathologized a normal human behavior and gave me medication which induced mental illness. Then they gave me medication to cure what that medication was causing until I couldn't sleep anymore and told me I had narcolepsy and medicated me for that. I didn't have narcolepsy...I was being poisoned and therefore wasn't getting restorative sleep.

Our culture is good at pathologizing normal behavior. It is ok to be different.

Our healthcare system is not designed where doctors develop empathy for their patients, quite the opposite. You are ultimately responsible for your health and should consult healthcare practitioners with different training before putting your life in someone's hands.

I recommend reading this book written by a doctor: Don't let your doctor kill you.

This happened to me and I'm a highly educated professional...
__________________
JD
Bipolar II - mixed - rapid cycling + anxiety

1500 Lithium, 300 Lamictal, 50 Seroquel XR, Klonopin 1mg, Cymbalta 60

Thanks for this!
Trippin2.0

advertisement
  #27  
Old Apr 22, 2016, 11:17 PM
MusicLover82 MusicLover82 is offline
Grand Member
 
Member Since: Mar 2016
Location: USA
Posts: 971
Lithium has been a great mood stabilizer for me. I now take 900 mg XR (extended release) a day. It seems that if I'm on a higher dose, I run into side-effects. As long as your doctor checks your blood Lithium levels periodically, and you let him/her know of side-effects, you should be good!
  #28  
Old Apr 22, 2016, 11:22 PM
Nammu's Avatar
Nammu Nammu is offline
Crone
 
Member Since: May 2010
Location: Some where between my inner mind and the solar system.
Posts: 76,876
Doctors aren't out to get you. Do your research and ask a lot of questions and decide with the doctor. If there is a med you are really scared of tell them and work around it. There are lots of meds out there and even more med combos to try.
__________________
Nammu
…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



  #29  
Old Apr 23, 2016, 10:11 AM
zepchic's Avatar
zepchic zepchic is offline
Member
 
Member Since: Jul 2015
Location: United States
Posts: 226
Quote:
Originally Posted by 1278 View Post
At this point the main side effect I'm worried about is weight gain (I'm 1.56cm but over 100kg so I'm worried about diabetes and hypertension), but I'm at the end of my rope so I guess I just have to suck it up and deal with it. I guess you can't have it all.
I agree that lithium isn't bad. I have been on it for a few months maybe 6? I haven't gained any weight. It is more natural imo than other meds. And I would hands down recommend lithium over depakote. The only complaint I have is sometimes it gives me stomach pains, but I take it at night so mostly it is not noticeable.
__________________
"Forgiveness is the fragrance the violet sheds on the heel that has crushed it" -Mark Twain
  #30  
Old Jun 27, 2016, 06:44 AM
luvyrself's Avatar
luvyrself luvyrself is offline
Poohbah
 
Member Since: Dec 2015
Location: Phoenix
Posts: 1,310
Quote:
Originally Posted by 1278 View Post
I've been to three psychiatrists in the last 2 years (not out of choice, the first 2 flaked out on me), been on 10-15 different meds and even had ECT. Nothing has worked. I'm really skeptical of my doctor because she didn't even consider I was rapid cycling until I mentioned it and didn't even bother taking me off antidepressants until last year December when I had a serious mixed episode and tried to kill myself!! My head is spinning right now at the possibility of another medication going wrong and URGH!!! She says its up to me, but i don't know what to do.
Finding the right team to help you may take more changing docs. I found it extremely helpful to write up my history including meds for a new doc. Then you can update and reuse it. It saves a lot of time, they have all the info, and take you much more seriously in what little time they are now allotted to a visit. I am new in a town and it has been hell to find the right team, but I think I have the right people now. If you had all those toxicities something was truly wrong. I took lithium for a long time and never had one. Do you have a pillbox to be sure you are not doubling up on doses? drug interactions are also something I know is a factor.
There are now plenty of other stabilizers. Write up your history, get the right doc (talk therapists can recommend people), choose your main stabilizing drug, etc
  #31  
Old Jun 27, 2016, 06:48 AM
franz kafka's Avatar
franz kafka franz kafka is offline
Poohbah
 
Member Since: Apr 2016
Location: NY
Posts: 1,168
I didn't have any weight gain on lithium. It brought me out of a brutal up-down cycle. I continue to be side effect free onit (as long as I stay hydrated).
__________________
dx: schizoaffective bipolar type; OCD; GAD
rx: clozapine, clonazepam PRN
  #32  
Old Jun 27, 2016, 06:53 AM
luvyrself's Avatar
luvyrself luvyrself is offline
Poohbah
 
Member Since: Dec 2015
Location: Phoenix
Posts: 1,310
Quote:
Originally Posted by jd6266 View Post
Always trust yourself! Listen to your body! Doctors are just the people you went to high school with. Do not put all your trust in them.

Lithium toxicity doesn't always show up in the blood work. You can have therapeutic levels and be toxic. This happens when your body is trying to compensate and absorbs it into your tissues. I know, I was toxic for 4.5 years and my blood levels were always good. My docs didn't pay attention to my clinical presentation and what I was saying. But, I trusted them and wanted to do the right thing and listen to them and take care of my mental health. Never put that much trust into someone who spends a few minutes with you every couple of months even if they have known you for years, like mine did.

I ended up at the Mayo Clinic with encephalopathy, involuntary jerking, kidney dysfunction, cognitive deficits, respiratory depression, allergic reactions, muscle spasms, etc and they said, "but she looks fine." That is what happens when doctors don't want to take responsibility for poisoning someone for so long and causing damage to her body. Yes even the great Mayo is unethical at times. They have refused to help me with my muscle and joint problems and won't put in writing what happened. Luckily I recorded my visits so they will have a hard time explaining themselves in court.

Do not end up like me. Question everything and everyone who you are trusting your brain with. They do not have to live with the consequences.

Ironically, I was misdiagnosed. They had pathologized a normal human behavior and gave me medication which induced mental illness. Then they gave me medication to cure what that medication was causing until I couldn't sleep anymore and told me I had narcolepsy and medicated me for that. I didn't have narcolepsy...I was being poisoned and therefore wasn't getting restorative sleep.

Our culture is good at pathologizing normal behavior. It is ok to be different.

Our healthcare system is not designed where doctors develop empathy for their patients, quite the opposite. You are ultimately responsible for your health and should consult healthcare practitioners with different training before putting your life in someone's hands.

I recommend reading this book written by a doctor: Don't let your doctor kill you.

This happened to me and I'm a highly educated professional...
WHAT BOOK?? I SO EMPATHIZE WITH YOUR LAMENT ABOUT THE SYSTEM. The new 15 minute interval pdocs are using is ridiculous. THIS MADE ME WANT TO CRY, AND IM NOT A CRIER. POST NAME OF BOOK ON MAIN PAGE. THANKS
Reply
Views: 2284

attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




All times are GMT -5. The time now is 09:43 AM.
Powered by vBulletin® — Copyright © 2000 - 2025, Jelsoft Enterprises Ltd.




 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.