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#1
Apr 20, 2016, 02:20 PM
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I am finally going to see a new pdoc on May 2nd. I'm so thankful that she is a woman and that her online reviews are phenomenal. I can't wait!
On the other hand, she doesn't prescribe Clozaril so after all of that hassle, I will have to discontinue it. Wow! Someone please remind me that some day all of this will make since. 
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
 1278, Anrea, gina_re, Nammu, raspberrytorte, Wanderlust90, wildflowerchild25
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#2
Apr 20, 2016, 02:56 PM
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I am so excited for you!!!!!!!!!
Having to stop clozaril sucks but hopefully she'll have something that works better for you. Clozaril certainly hasn't made everything better for you so hopefully you'll get onto something without the side effects. May 2 is so soon!
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
 cashart10
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#3
Apr 20, 2016, 04:04 PM
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Quote:
BTW, you know how almost all who have read about my posts have had negative thoughts about my pdoc? Read the reviews at the site below (scroll to the bottom). It is uncanny! https://www.ratemds.com/doctor-ratin...sville-KY.html
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#4
Apr 20, 2016, 04:13 PM
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Those are about the worst reviews I've ever seen on a dr. Wow. It sounds like there are the people unhappy about the overmedication and the people who didn't mind the addictive polypharmacy (and I'm sure plenty between those extremes). Those are some big accusations though. And most of PC could have written those just from knowing you.
I think that you're going to have to go into the new pdoc prepared for some potentially difficult times because she's got to get you onto reasonable meds. And since most drs. do that one med at a time it may take a little bit to get you evened out. But I think you'll have great outcomes in the end. Hopefully one of the APs you've not tried yet will be great for you without the extreme sedation/drooling/etc. You deserve this to work out.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| cashart10
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#5
Apr 20, 2016, 04:29 PM
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Even if this new pdoc is an angel you should prepare for things to get worse before the get better. All the changes with meds might play havoc with your moods and over all health. So maybe prepare your husband by telling him not to expect instant improvement. It's a great step in the right direction though. Are you still in IOP? That might be very helpful as you deal with the changes.
Congratulations on the new pdoc!!! 
__________________
Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| cashart10
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#6
Apr 20, 2016, 04:44 PM
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Quote:
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
| Nammu
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#7
Apr 20, 2016, 08:21 PM
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Your health comes before trouble with babysitters.
__________________
Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| Anrea, cashart10
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#8
Apr 20, 2016, 09:10 PM
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SO glad your getting a new pdoc that hopefully will be able to help you more than your previous. Hugs, hugs & more hugs. I agree with nammu above, I can appreciate how stressful it must all be for your SO but really your safety & health is paramount!
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Dx: Bipolar II, GAD, past substance abuse, temporal lobe epilepsy. Rx: Lamotrigine 125mg, Sertraline 50mg, Clonazepam 0.5mg prn. |
| cashart10
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#9
Apr 20, 2016, 11:27 PM
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Why would a doctor blanketly refuse to prescribe a drug? Just too many bad experiences with it?
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#10
Apr 20, 2016, 11:48 PM
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I wondered that too. Perhaps because there is so much paperwork with the Clozapine registry requirements?  I knew a pdoc who said she does not bother with preauthorizations for her clients because they took so much time; I didn't care for her much.
__________________
The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well. anonymous |
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#11
Apr 21, 2016, 09:04 AM
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So happy you have an apointment with a new pdoc, cash! I have my appointment with my new one that week too. We'll have to let each other know how they go.
This new one will get your med situation sorted out I'm sure and you'll be feeling much better. Hugs!
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "What if I can't get up and stand tall, What if the diamond days are all gone, and Who will I be when the Empire falls? Wake up alone and I'll be forgotten." 😢 - sleep token |
| cashart10
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#12
Apr 21, 2016, 11:58 AM
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Quote:
Quote:
This is from the websites description: Prescribers •Must certify in the Clozapine REMS Program to prescribe Clozapine •Must enroll all patients in the Clozapine REMS Program •Must report patient ANC levels to the Clozapine REMS Program for every prescription of Clozapine
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
| Yoda
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#13
Apr 21, 2016, 12:08 PM
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Yeah, clozaril is a pain in the butt for drs. I think it helps when there is a big practice; I know my dr. covers other clozaril blood draws sometimes. But just getting the lab at my hospital to accurately send the results to my pdoc has been an adventure and I know that dealing with my labs takes about 5-10 minutes per week.
They also just re-vamped how they do it a few months ago and that may have increased the drs. not in the registry.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| cashart10
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| cashart10
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