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  #26  
Old May 29, 2016, 06:16 AM
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Haha. No. I don't mind.

I refer to everything as a situation, when there is a situation of course, like, "Oh. I better do that or she's going to have a situation.", or ,"We're having a really big hornet problem on our patio." (that would be just one hornet by the way and you can hear it buzzing from a mile away, which I just did by the way!)

I don't think I'm doing that bad right now. I mean, as in, I'm not doing anything wrong right now! I'm not totally out of control. I really think my husband is exagerating. I feel not right, but I think he's wrong. I don't know. I'll be alright. Some positive self talk and I'll be fine.
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  #27  
Old May 29, 2016, 06:18 AM
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Oh, and I'd rather buy a giant bottle of vodka and start drinking again than go on an AP. They'd have to strap me down and inject me.

NOT HAPPENING.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
  #28  
Old May 29, 2016, 08:37 AM
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Icare dixit Icare dixit is offline
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Quote:
Originally Posted by raspberrytorte View Post
Oh, and I'd rather buy a giant bottle of vodka and start drinking again than go on an AP. They'd have to strap me down and inject me.

NOT HAPPENING.
Alcohol is just like benzodiazepines. It creates more anxiety eventually than it does away with for the moment.

Antipsychotics are your only hope.
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Mania kills cells. Brain cells die. Memories become more reduced conceptually, making more efficient use of limited means. Memories shape our reality. Our memories are more or less split in two by abstractions, conceptual reductions. Mood states with memories, concepts, attached. Memories of pain and those of joy. It causes instability, changeability. Fearing that will leave an emptiness between pain and joy and a greater divide.
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  #29  
Old May 29, 2016, 02:27 PM
Anonymous59125
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I really feel your pain and I am sorry.
  #30  
Old May 29, 2016, 03:25 PM
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ComfortablyNumb5 ComfortablyNumb5 is offline
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Quote:
Originally Posted by Icare dixit View Post
Alcohol is just like benzodiazepines. It creates more anxiety eventually than it does away with for the moment.


Antipsychotics are your only hope.


True. Benzos and booze cause rebound anxiety. I've been on APs for over ten years and function just fine. APs are usually a staple in a cocktail for BP and they work wonders for bringing you back to earth.

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  #31  
Old May 29, 2016, 04:02 PM
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I'm not actually going to start drinking. I hate alcohol. Alcohol and I parted on bad ways. My point is that I hate APs so much I'd rather become a drunk again than take one.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
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  #32  
Old May 29, 2016, 04:04 PM
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In fact... I'd choose to have one of my toes amputated rather than take an AP.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Hugs from:
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  #33  
Old May 29, 2016, 04:44 PM
Anonymous59125
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I felt the same about AP's, but turns out they work ok for me. I'm only committed to taking them for short periods. But I understand, I felt the same as you very recently.
  #34  
Old May 29, 2016, 04:52 PM
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They do not work out for me. My body hates them. For me they are like poison.

(And no that's not delusional crazy lady talk!)
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
  #35  
Old May 29, 2016, 04:54 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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Why are you so opposed to APs? I know I should know but I can't even remember if you have done them. Oh, I know you've done Seroquel. But the others? Not trying to say you should, just curious.

I fought tooth and nail against them. Then I agreed to go on them because I was desperate and had no other real options (ran through everything else). So then I took them but had nasty reactions to one after another. I had always asked to avoid 2 of them-Seroquel and Zyprexa (b/c I worked where the psychiatrist snowed people with Seroquel and I was scared of an effect it doesn't have when used responsibly and for Zyprexa I have a scary family hx of diabetes). Eventually I ran out of options and had to go on Seroquel which worked really well for me for a long time (until it didn't). Clozaril was terrifying but has saved me. I doubt I'd still be here if I hadn't gone on it.

I totally understand not choosing to use certain drugs. I wouldn't if I hadn't pretty much been forced to by non-responsiveness to all other treatments and I think that's reasonable for anyone.
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Bipolar 1, PTSD, GAD, OCD.
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  #36  
Old May 29, 2016, 05:16 PM
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I've been on all the ones I can afford and with nasty side effects and after weaning off seroquel and how mean my last pdoc was about them, I swore I would never go on one again and I'm not going on risperdal.

I can't put my body through that again. I just can't. I mean I really can't! I'll get through this on my own.
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Hugs from:
Icare dixit
  #37  
Old May 29, 2016, 05:21 PM
Anonymous59125
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I've had terrible side effects too. Just got out of my 2nd ER visit last night for allergic reaction. Possibly to RISPERDAL or Latuda. Side effects are terrible and make me want to go med free again but that never ends well for me.
  #38  
Old May 29, 2016, 06:03 PM
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And besides that the world should change to accomodate me. I shouldn't have to change to accomodate the world.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Hugs from:
Icare dixit
  #39  
Old May 29, 2016, 06:05 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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All I can say is hang in there. It's too soon to be positive but it looks very promising that my 71st cocktail (I forget how many meds but well over 40) is the one that is at least getting me back to able to survive day to day without major symptoms. That's huge. Getting there is so hard and being told to hang in there doesn't help but if it happened (may be happening) for me it can for you as well. I had given up hope because I knew that clozaril was my last option and I just assumed something would go wrong but aside from sedation, hand tremors, drooling at night and minor things it's gone very, very well. It's the best I've felt in years and that includes some time I thought I was doing pretty well.

Someday this may be thrown back in my face if clozaril causes a problem but so far it is just easy to handle and after trying so many meds I thought that was impossible for me.
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Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Thanks for this!
raspberrytorte
  #40  
Old May 29, 2016, 06:09 PM
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Originally Posted by raspberrytorte View Post
I've been on all the ones I can afford and with nasty side effects and after weaning off seroquel and how mean my last pdoc was about them, I swore I would never go on one again and I'm not going on risperdal.

I can't put my body through that again. I just can't. I mean I really can't! I'll get through this on my own.
Have you tried Geodon, or Saphris? I tried Seroquel, Risperdal, Latuda, Abilify, and Risperdal, and they all gave me side effects I couldn't deal with, or they had no effect on me. Then my Dr tried Saphris. From the first day it made a huge difference. It did however cause some swelling in my legs, so my Dr prescribed a diuretic, and it also caused restless leg syndrome in me, so my Dr prescribed Requip. I'm stable now for nine months. If you haven't tried Geodon , or Saphris maybe ask your Dr about them. Unfortunately I don't think there are any antipsychotics out there that don't have some kind of side effect. God bless

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I'm bipolar 1, agoraphobic, ocd, and gad. Fairly happy go lucky.

Prozac 20mg
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  #41  
Old May 29, 2016, 06:13 PM
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Understand. Just know that if the day comes you find yourself trying one that it's ok. I had a hard time believing that after I fought it so long (and then had it emphasized when a family dr refused to take a patient on APs on even though I had a pdoc and the family dr wouldn't have to deal with the APs).

I liked risperdal. It raised my blood pressure to 200/100 and that caused me to gain 30 lbs of fluid weight for my sister's wedding (we didn't know this until after the wedding and the pictures of me are awful; my dress doesn't fit and I look fatter than usual and by the end of the night my plastic shoe had ruptured from my swollen feet) but it worked well.

Again, not trying to say you should take APs, just interested. I think I wonder what would have happened if I hadn't gone on them since APs did make work a LOT harder. I don't think I could have worked without APs but I also think I couldn't work with them, if that even makes sense.

Now I'm just grateful. My mom told me today that I was so sick in Dec/Jan that she doesn't think I was eating except when she made me dinner every night. My therapist says I was down to weekly showers. I have no recall of important things from that time. Clozaril is fixing that (not restoring memories but at least I am showering and eating and building new memories.

Bipolar is a scary, scary illness.

Quote:
Originally Posted by raspberrytorte View Post
I've been on all the ones I can afford and with nasty side effects and after weaning off seroquel and how mean my last pdoc was about them, I swore I would never go on one again and I'm not going on risperdal.

I can't put my body through that again. I just can't. I mean I really can't! I'll get through this on my own.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Thanks for this!
raspberrytorte
  #42  
Old May 29, 2016, 06:36 PM
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Quote:
Originally Posted by raspberrytorte View Post
I've been on all the ones I can afford and with nasty side effects and after weaning off seroquel and how mean my last pdoc was about them, I swore I would never go on one again and I'm not going on risperdal.

I can't put my body through that again. I just can't. I mean I really can't! I'll get through this on my own.
I don't have any situations to relate to this right now, but I really can understand not wanting to take a certain drug. You're the patient, you know yourself best, therefore it is your right. At the same time I hope you are able to find something that works for you. Take care
  #43  
Old May 29, 2016, 07:28 PM
Anonymous41403
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I understand about not wanting to take APs. I would ask others that are med free how they do it. I know you're not completely med free but you could probably learn a lot from them.
  #44  
Old May 29, 2016, 10:56 PM
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I take geodon and have for years. I take a hefty dose 80mg twice a day.
It is what keeps me sane. no side effects, no weight gain
bipolar 1.
geodon 80mg twice daily
lamictal 300mg
klonipin .5mg to sleep
  #45  
Old May 29, 2016, 11:04 PM
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I was on geodon for awhile and it actually made me lose weight, but it gave me heart problems and I had to go off it.
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Hugs from:
bizi
  #46  
Old May 29, 2016, 11:09 PM
MusicLover82 MusicLover82 is offline
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I love APs, and I don't feel like they take away my creativity. They help a lot with my anxiety and overall mood, too. Talk to your pdoc, ASAP.

Diagnoses: Bipolar 2, OCD, GAD
Meds: Lithium, Trileptal, Latuda, Abilify, Xanax PRN and Xanax XR
  #47  
Old May 29, 2016, 11:47 PM
boogiesmash boogiesmash is offline
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How's the meowing?
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Lactimal 175 mg
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Klonopin 1mg.


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  #48  
Old May 29, 2016, 11:52 PM
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She's meowing right now. lol!
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
  #49  
Old May 30, 2016, 12:38 AM
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Blaire Blaire is offline
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There is a lot I don't enjoy about seroquel (the only AP I've tried), but it really seems to work for me, so I'm sticking with it. Everyone is so different though.
  #50  
Old May 30, 2016, 08:30 AM
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Well, I got five hours of sleep last night and I think I'm coming down. Of course, this could change because it's most likely still too soon to tell. If I am, I'm sure I'll become far less entertaining. lol

Anyway, I woke up today with this uneasy feeling combined with an unraveling feeling that is morphing into an embarssed feeling. Some bad feels going on this morning. It reminds me of a night of heavy drinking and waking up the next morning a being like wtf.
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Hugs from:
Anonymous41403, Gabyunbound
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