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#1
Apr 30, 2017, 01:07 AM
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So I sent this to my mom, aunt and daughter....
To my loved ones, I wish I could tell you exactly what I need from you. But I can’t. Having bipolar disorder means my symptoms often change, so what I need from you one day may be different the next. I have bipolar I, which is to say that my manic episodes are severe and may include psychosis. This means that during those times, I am not myself and will not listen to reason. I may need to be put in a hospital, depending on the severity of the episode. I need for you to understand that the things I say and do while manic are not coming from me, but from a place of disordered thinking that is out of my control. I need you to love me anyway. I know that might be asking a lot. It scares me sh$tless, knowing that at times I may be psychotic and unable to control my thoughts and actions. Hopefully, my medicine prevents that, but … I wish I could tell you it will never happen again. When I’m depressed, I need you to understand that I can’t help my negative thinking. I’m trying as hard as I can, but it’s not always possible to work myself out of it. It takes time. I wish I could tell you things are good and I have a positive outlook on life, but the fact is I feel rather hopeless.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
 Anonymous50909, BeyondtheRainbow, BipolaRNurse, Wander, Wild Coyote
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 BipolaRNurse, Guiness187055, Plastic Fork, Wild Coyote
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#2
Apr 30, 2017, 01:14 AM
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That was very well explained. They need to know what you are going though so they can support you in their own way (if they are that way inclined) tHow do you think they will take it?
You are a brave woman. Stay strong and when you need to chat, we are all here.
__________________
Bipolar 1 with psychotic features PTSD  "Phew! For a minute there I lost myself." 'Karma Police' by Radiohead |
| Wild Coyote
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#3
Apr 30, 2017, 01:25 AM
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Thank you !! I hope it's plain enough for them to get a better understanding. Because I try to seem "well" around them. But a lot of times I'm really suffering from symptoms. I feel pressured to answer the phone or a text and "act" happy. I need to be able to be real
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Wild Coyote
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#4
Apr 30, 2017, 04:06 AM
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Good job...great letter.
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| Wild Coyote
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| Cocosurviving
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#5
Apr 30, 2017, 05:06 AM
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Great letter, coco. Explains it well.
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| Wild Coyote
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| Cocosurviving
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#6
Apr 30, 2017, 07:53 AM
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It's special that you trust them enough to invite them into your world.
I hope they accept the invite and relationships continue to grow.  WC |
| Cocosurviving
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#7
Apr 30, 2017, 11:53 AM
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My daughter enjoyed the letter and said she will be there for me.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
| Wander
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| BipolaRNurse
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#8
Apr 30, 2017, 07:39 PM
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Later my daughter asked if we could go out for food. My brother came. One of my sisters came (not the one I sent the letter to. She lives out of state). The meal went good. We even talked abt bipolar and some of the classic symptoms.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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#9
Apr 30, 2017, 08:15 PM
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Your letter brought tears to my eyes honestly. Simple, effective and beautiful. Thanks for sharing.
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| Cocosurviving
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#10
Apr 30, 2017, 08:19 PM
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TheSadGirl---Thank you. It took me some time to find the right words. But after re-reading my letter a few times. I knew it was ready. Take care
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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#11
May 01, 2017, 08:18 AM
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The things I love about this is that you don't apologize and that it's really brief and to the point. Awesome letter, Coco!
__________________
Julie Bipolar I Agoraphobia w/Panic Features Current Episode: Depressed beginning 11/16 Oxcarbazepine 1200 Tapering off Quetiapine Bupropion ER 300 Yoga and Meditation You are not your illness. You have an individual story to tell. A name, a history, a personality. Staying yourself is part of the battle. --Julian Seifter |
| Cocosurviving
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#12
May 02, 2017, 08:37 AM
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Thank you all for all the feedback. It really means a lot
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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