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#1
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About a month ago, my dr placed me on 5 mg. Abilify for my bipolar disorder and I have experienced some good results. I am much calmer and not nearly as out-of-control as I was before. However (and this is a big however) I am now so restless that I can barely hold still and sleep is difficult because I feel the need to constantly move.
I also take Adderall for ADHD and I thought, in the beginning, that the mixture of Adderall and Abilify could be the reason for the restlessness, so my dr took me off the Adderall for 2 weeks to see if the symptoms would improve. Not only did they not improve, they got worse without the Adderall. Turns out the Adderall was the only thing keeping me from being on the move all the time. On one even during those 2 weeks, I paced for hours. I was incredibly sleepy yet I couldn't stop moving. I went for another check-up on Monday of this week, and told my dr about the 2 weeks. Much to my surprise, instead of taking me off the Abilify, she upped the dosage to 10 mg. and lowered the Adderall from 20 mg. to 15 mg. Am I stupid or does this seem counterproductive to anyone else? She explained it to me, but the explanation was long and complicated and I missed most of it because I was thinking about how dumb it seemed to up the dose. Has anyone else had this experience? If so, does the restlessness and other side effects go away after a while? I'm really hoping that they'll go away after a couple of months. If not, I'm taking myself off the Abilify because this restlessness is driving me bat-crap insane.
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![]() Anonymous59125, raspberrytorte, sonjaward809, Wild Coyote
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#2
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I had the same problem with abilify and actually went into a mixed episode. It was not good and it did not lessen over time. If you've already been on it a month I doubt the situation will improve, but it could. Cogentin might help, but it might be wise to go off the abilify altogether. But make sure you discuss with your doctor before you do.
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Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
![]() Tsukiko, Wild Coyote
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#3
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I was put on Abilify IP. The doc gave me valium or something short term to deal with the restlessness.
I just saw a commercial on TV about a drug which worked for restlessness on Abilify. Sorry don't remember the name of it.
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Lamictal Rexulti Wellbutrin Xanax XR .5 Xanax .25 as needed |
![]() Tsukiko, Wild Coyote
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![]() Tsukiko
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#4
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I get really restless after I take my Abilfy and am currently on 10mg. It feels like I HAVE to move, like tension is being built up in my muscles then I kind of snap into weird movements to help relieve the tension. It's a horrible feeling, it's kept me up sometimes too. I hate it!! It's mainly in my arms, but sometimes travels down to my legs. It hasn't gotten any better for me, so I'm not sure if it will ever go away. I'm going to see if my doctor will change my medications around as I'm also having involuntary muscle movements. My body will spasm and jerk like crazy when I'm sitting or laying down. One part after the other.
I hope you get some relief!! You can try taking benadryl when it happens, that's what I do and it calms down the feeling quite a bit. your doctor shouldn't of increased the dose cause that could possibly make it worse. I believe they're supposed to give you something to "counteract" the side effect. It's a form of EPS, Extrapyramidal symptoms, from what I've looked up. It's called akathisia.
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Bipolar 1 GAD C-PTSD BPD |
![]() Tsukiko, Wild Coyote
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#5
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I take 5 mg of Abilify and fortunately haven't had this problem. I was on another medication last year (can't remember what it was) and felt the same restlessness and constant movement. My pdoc prescribed propanol and it stopped all of that. Sending big hugs.
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![]() Tsukiko, Wild Coyote
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![]() Tsukiko
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#6
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thank you for commenting! I think I'm having mixed episodes as well. Despite not being nasty or aggressive, I have been irritable. I've been putting that down to lack of sleep, though. On other hand, I am fine one moment and then a complete mess the next then back up again the moment after. So, yeah, I'd say I'm having mixed episodes.
I will look into Congentin. Thank you very much for the suggestions. ![]() Quote:
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![]() Wild Coyote
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#7
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Thank you for taking time out to reply.
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#8
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YES! Thank you! I am so glad other people understand what I'm talking about, though sorry that you go through the same experience.
![]() My dr has put me on Klonopin to take when I have these random, huge anxiety attacks and I've been taking half of one of those in the evening. It seems to help somewhat with the sleeping issue. When it is taken during the day, though, I'm sleepy and jittery at the same time. The combination is miserable. ![]() Quote:
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#9
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I am glad to hear that you aren't having the restless side effect, Jennifer!
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#10
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Sorry, IP is "in patient" or in the hospital
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Lamictal Rexulti Wellbutrin Xanax XR .5 Xanax .25 as needed |
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#11
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Abilify was the first AP I was put on, many years ago. I had the same problem. My provider at the time took me off of it. I hope your situation resolves soon! I'm not sure if it's a side effect that will go away over time. Has your doctor put you on a med to help with it?
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The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "What if I can't get up and stand tall, What if the diamond days are all gone, and Who will I be when the Empire falls? Wake up alone and I'll be forgotten." 😢 - sleep token |
![]() Tsukiko, Wild Coyote
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#12
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For what it's worth, you might want to keep an eye on the Klonopin. It has the ability to cause short-term, mild depressive symptoms. If you're only taking it at night however, it's unlikely to be a problem.
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Meds: Latuda, Lamictal XR, Vyvanse, Seroquel, Klonopin Supplements: Monster Energy replacement. ![]() |
![]() Tsukiko, Wild Coyote
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#13
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Thank you for your response, Raspberry.
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#14
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Thank you so much for this information! I had no idea that Klonopin could cause mild depressive symptoms. I will do some research about that.
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#15
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Other than weight gain, I have not had problems taking Abilify, which is great considering that every other antipsychotic I've taken has been horrible for me in one way or another. I don't know if I'm restless from it but I'm easily bored so I'm not sure if Abilify is really the culprit. I've taken sleep meds before but I'm not currently on any.
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![]() Tsukiko, Wild Coyote
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![]() Tsukiko, Wild Coyote
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#16
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I am easily bored as well now that I'm on the Abilify. When I'm finally able to sit still for any amount of time, I can't focus for long and I lose interest quickly. Being a film buff, this is miserable.
And the weight gain...ugh! My appetite is ferocious now and I gained 5 lbs in a little over 2 weeks. Quote:
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#17
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I think 5mg of Abilify isn't a therapeutic dose, so that's probably why she increased it. Nonetheless she needs to do something for the restlessness.
Abilify gives me the shakes, so I'm on propranolol twice a day; maybe you can ask for that. It's helped me immeasurably. Good luck! |
![]() Tsukiko, Wild Coyote
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![]() Tsukiko
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#18
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I'm actually having a decent day in terms of my restlessness. I was able to sleep last night for a while and took a nap during the day today. In addition, I was able to read a book for about 15 minutes before losing interest. Maybe the raise in dosage will actually work! I'm keeping all appendages crossed.
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#19
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I take 15 mg of Abilify, just down from 20! My legs always feel like they have an electric current running through them. I can't sit still and pace all the time. I never made the connection between my restlessness and Abilify. Thank you for pointing it out.
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![]() Tsukiko, Wild Coyote
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![]() Tsukiko
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#20
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This is called AKATHISIA.
Abilify is notorious for causing this side effect. I have not taken it for that reason, because I am extremely prone to akathisia even on AP's that normally do not cause it. I currently take Atarax that attenuates most of my Seroquel-induced akathisia. As Atarax is mildly sedative with a very benign side effects profile and no habitation potential, I highly recommend you try it. I would try 25 - 50 mg for starters. Atarax is a strong antihistamine.
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Dx: Bipolar I w/Psychotic Features Rx: Seroquel ER 550 mg, Depakote ER 1000 mg, Melatonin 6 mg, Atarax 50 mg. |
![]() Tsukiko, Wild Coyote
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![]() sonjaward809, Tsukiko
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#21
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No problem, Woolly. I'm really sorry to hear that you are experiencing the same thing.
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![]() Wild Coyote
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#22
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Thank you for sharing this information, Mermaid. I have Zyrtec, which is also an antihistamine. I wonder if it would have the same effect as Atarax?
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#23
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I woke up this morning feeling horrible. It seems that the restlessness has improved some but now I'm experiencing flu-like symptoms. My throat is sore, I had the chills, and my body hurt this morning. I was wondering if the increase in Abilify had anything to do with this because I experienced similar symptoms when I first started the medication earlier in the Summer. At that time, I put it down to a cold, but I thought it bizarre that it would occur both times something changed concerning the Abilify. A Google search taught me that these flu-like symptoms are one of the more serious side-effects of Abilify, and I should stop taking the medication immediately, so I'm gonna skip tonight's dose and contact a doctor tomorrow (if I can find one available on a Saturday!) to see if I should cut it out completely.
(Forgive me for that last, run-on sentence but I'm feeling dreadful and my writing skills have gone out of the window.)
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![]() Anonymous59125, Wild Coyote
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#24
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The side effects you are having are unacceptable and not realistic to battle long term. I'm glad you are talking to your doctor about this and hope a new meds is tried with better success.
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![]() Tsukiko, Wild Coyote
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![]() Tsukiko
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#25
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My 16 (almost 17) year old son is starting abilify next week. I'm so nervous. I wish the pdoc would have prescribed a side effect med as well. I told him he will have to stay away from coffee and sodas or he might feel very restless and anxious. this will be hard for him since he loves red bull. But I will be monitoring him and his mood and actions. I'm glad he is on summer break and at home so I can keep a good eye on him.
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Bipolar 1 |
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