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  #1  
Old Jul 07, 2018, 11:42 PM
MusicLover82 MusicLover82 is offline
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Anyone here with medication induced RLS? I think I have developed it but i have no idea which medication I take is causing it.

All of the doctor's appointments I've had to make lately are getting expensive, so I'm frustrated. I have a bad shoulder, back spasm issues, and my joints are feeling slightly swollen. If I could figure it all out on my own through trial and error of taking vitamins or changing my diet or something, that would be preferable.

I've looked up tingling sensations in legs and arms (plus my other symptoms), and I've narrowed it down to these possibilities:

1. Iron deficiency (I'm a vegetarian)
2. Vitamin D deficiency (has been low in my blood work before)
3. Diabetes (please God, NOOOO!!!)
4. RLS from medication

YES, I will see my doctor before things get worse, but I'm just curious if there is one of my meds that is more likely to cause RLS than others.

Thanks!!!!
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  #2  
Old Jul 08, 2018, 12:48 AM
*Laurie* *Laurie* is offline
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I wish I understood RLS better.
I have had an experience in very recent months in which I lie in bed trying to fall asleep and feel like I have to keep changing the position of my legs. Almost like...I cannot keep them still. But there is no tingling. I have wondered of a certain med causes the "restless" feeling. I think it was Gabapentin I was concerned about.
  #3  
Old Jul 08, 2018, 06:17 AM
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Miss Laura Miss Laura is offline
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I have Restless Leg Syndrome. I think it's from the Depakote I take and added more when I took Serequol. My legs are on the go all the time and have tingling sensations and ache. I don't let it get me down I've managed 8 years without a med to treat it. Sometimes it's troublesome other times it's ok.
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  #4  
Old Jul 08, 2018, 10:05 AM
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Blueberrybook Blueberrybook is offline
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I have restless leg syndrome, but I don't think it's caused by meds. It hardly bothers me if I take a calcium supplement along with a magnesium supplement before bed. If you try this, go easy on the magnesium, especially at first, it can cause diarrhea. I was on a medication once it treat it, and it didn't seem to help. If I don't take the supplements, after a few days, it gets bad though drinking milk & eating a banana can help it enough to fall asleep. Acupuncture helped with it though.

Another possibility is you can also get vitamin toxicity, in which case you might have to see a neurologist. I had a lot of that tingling sensation, numbness, swelling, and it turned out I had too much vitamin B6 in my system, like by a thousand times or more. I was taking a women's multivitamin from a health store that had high B6 levels (high levels of most of the vitamins & minerals, I think), drinking a before or after workout shake with more B6, and then of course, things like cereal are fortified with vitamins, including B6. The kicker about B6 toxicity, is no one knows how long it can last. It can go away a few weeks after stopping the B6, it can go on months or years or even for life. I have finally gotten to the point where I can take a normal women's vitamin (not something all fortified with high levels of vitamins) and eat cereal again, but it took my over a year before all the symptoms went away and I could do this. I saw a neurologist who diagnosed it.

Hubby had numbness & tingling and his turned out to be low B12. He had to have a series of 4 B12 injections in a month, and now one injection once a month for 3 months, and then they are going to check again. One of my sisters, though, has something like pernicious anemia caused by low B12 (somehow not caught by a normal CBC) and has to get B12 injections either once a week or every two weeks basically for life. They don't know what causes it.
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  #5  
Old Jul 08, 2018, 10:10 AM
Anonymous45023
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Tingling in your arms too though. Hmmm. Might not really be RLS then(??)
You'll want to get your iron and vit D levels in range regardless of what's going on. I found out I had very low vit D a couple years ago and Dr. gave me a high dose course of treatment to be followed by regular strength doses (like one gets w/o prescription) to maintain. For iron, I've always had good levels. Currently it's just part of my multivitamin, but for years (7 of which were vegetarian), I cooked a lot in a cast iron pan, which can be a significant help to one's iron levels, so that is something simple you can do if you don't already.

As far as RLS, I've had it for years before any psych meds, but during the time I've been on them, the only med that really sent it through the roof was Saphris. I couldn't take it. That's not one you're on though.

Well that's a bunch of rambling that comes down to a cast iron pan recommendation, lol!
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Thanks for this!
bizi, MusicLover82
  #6  
Old Jul 08, 2018, 11:53 AM
MoodyMountain MoodyMountain is offline
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Member Since: Jun 2018
Location: Reno, NV
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I have medication induced RLS, although it is treated now with 30mg propanolol. It was pretty bad before, but the doctor treated it like akethisia and now it's not a problem.
  #7  
Old Jul 08, 2018, 04:06 PM
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cincidak cincidak is offline
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I have med induced rls from Saphris and Geodon. My pdoc treats it with requip and Gabapentin
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  #8  
Old Jul 08, 2018, 04:11 PM
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eye2797 eye2797 is offline
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I have RLS med induced. It is from seroquel and maybe a bit of depakote. I take requip to stop my RLS
  #9  
Old Jul 14, 2018, 12:03 AM
MusicLover82 MusicLover82 is offline
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Thank you to everyone for your input. Turns out it’s not RLS. It’s low T4 levels probably from Lithium... I’m going to talk to my pdoc about maybe switching off Lithium.
__________________
...Out of night and alarm
Out of terrible dreams
Reach me your hand!
This is the meaning that we suffered in sleep:
The white peace of the waking.
~Edna St. Vincent Millay, "Song of the Nations"~

Diagnoses: Bipolar 2, OCD, Chronic Worrywart
Meds: Lithium (reducing), Trileptal, Latuda, Risperdal, Klonopin and Xanax PRN
Hugs from:
Anonymous45023
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