Confused (long)

I'm sorry your dad is/will have trouble adjusting hopefully he will understand why he needs them. I don't blame him for not wanting it but the whole situation just sucks. Hopefully he won't need restraints in the nursing home.

More big hugs, BeyondtheRainbow. What a very trying situation. Your most recent post sure made a good case for advance directives (I have one, not ever wanting to be in that situation). It is so very hard sometimes these days with so many machines. I'm sorry he keeps ripping the tubes out --ouch!

Please take good care of yourself...

I did some research on the nursing home and I feel better about it. I still think he'll absolutely loathe it but it seems to be a nice place with tons of nursing care (which you'd expect with vents but the vent place I worked was awful so I don't trust). They use portable vents so patients can be up and active. The people they showed did not seem to have confusion but I'm sure in the number of beds they have that at least some do. It won't be perfect but it hopefully it won't be a horror show.

Hopefully he'll like it once he gets use to it.

I'll be thrilled if he tolerates it to the point he stops pulling his tubes out. That would be great if every time I call to check on him he hasn't had to have tubes replaced. The hospital where he is now seems very good and attentive and he's still pulled tubes every chance he's had. My hope for him is that he relaxes about the tubes and doesn't have to e restrained all the time and that he finds one thing pleasurable about the nursing home. I wish I knew what that might be. We'll see I guess.

I called to check on him today and actually got positive news. He is off the vent and breathing through the trach. now without support (I think just oxygen?). He's been talking more and doing better in therapies.

I'm glad but confused even more. He keeps doing the opposite of what I prepare for and what they prepare me for. He seems to have decided to fight so I guess that's what will happen. If that's what he wants good for him. I can't believe 3 weeks ago they had no hope at all and now he's suddenly making progress.

This has been quite the 4 weeks.

Hope things continue to improve.

I swear I'm not making this up. I feel like this sounds like I was overdramatic at first and back-talking since trying to make up for it. It really has happened this way. It's how how lived his whole life: contrary. Who knows what he'll do next.

Oh, BeyondtheRainbow, what a rollercoaster for you!! Your confusion is VERY understandable. What a ride...

Are you taking good care of yourself?

Glad to hear he’s making progress.

I believe you though. My grandpa kinda acted that way, although he wasn’t ever on a ventilator. He just had the same behavior/thought-process. Such people make me confused as well.