Bipolar check in #37

@Nammu I mistakenly got on IH35 this morning... I got off after one mile! Headed over to Lamar. It was backed up all the way to Parmer!

Diagnoses:
PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain

There's just too many cars! I swear when I first started useing Lamar is was less crowded but it seems like many other people had the same idea. With so few roads going north/ south what can ya do? There's only 4 main ways to go north/ south and congress has downtown in the middle of it. Are they still talking of putting a tunnel under 35?

There's occasionally talk about it, but not much.

Diagnoses:
PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain

Wow! You are getting a lot done! I enJOY my Roku. It is older and does not have the all of the features you have mentioned (or if it does, I am oblivious). it might help if I would put an SD card in it.

Lately, I have been watching shows on my tablet at night because it gives off much less light in the room than does the big TV.

How is it going now that you have restarted the AP med?

Glad to read you are doing so well!

Sorry you have had such a difficult night.
It must feel great to have the respiratory illness behind you?

EnJOY the day!

Yeah bluebicycle, what you are doing is awesome. Fixing the cox, wow that's impressive. Working on the apartment and cleaning.is inspired. I really need to dust my bedroom and try to get my clock working again.

So glad you are sleeping!
Sorry about the dream/nightmare! yikes!

Never knew they could take SD cards. Hmm. I bought a 500GB external SSD for its high read, write, and transfer speeds. 4K is a lot of data to push through a wire if you're trying to read from a device and then display it on a TV, so you need something that can push data through at a fast rate. Otherwise, you get frame stuttering and lag, and sound may be off. And you really do need a 4K HDMI 2.0 cord at the bare minimum for true 4K.

There are solid state flash drives you can get if you want something that provides SSD speeds in a smaller, more compact body, but they kinda suck at this point in terms of technological development in 2019. Lots of them are unreliable. Though if you have a 1080p Roku, then I wouldn't bother with anything more than an SD card. Not really needed IMO.

And yeah, I like tablets too.

I'm doing okay going back on my AP. I hate being on an AP, though, because I'm getting brain damage from it.

Hello to all!

I did not sleep very well last night. I have a lot going on and some days/nights are more challenging than others.
I don't have a very clear head this morning, which is problematic with all I have to do today. This is my second day of trying to catch up on paper work and calls.

Now that the SSA has seen their way clear to admit I exist and am who I say I am, they are also starting to investigate my claim, which is fine with me. There continues to be a misunderstanding which desperately needs to be cleared up! They are processing my claim as new claim, stating they cannot find any prior claim. My claim is quite old, has a very long history of approval and of payment of benefits. I have not yet been successful in getting this issue cleared up. I am still working on it.

What on earth is going on where a governmental agency like the SSA cannot find any record of a claim which was approved and was paid for many years?
I have also lost Medicare, according to them, and will have to wait for the "waiting period" to expire again, which is a 2 year waiting period. I have already completed my 2 years long, long ago!
Ihave faith this will eventually get sorted out. I will keep working on it! I will enlist the help of a disability attorney if need be.

Despite my very foggy head, I intend to get things done today.
Love ot All

Yes, this is an old Roku. I have 2 in the house, even though I think it is possible to use one for the household. There are 3 floors here and the units are 2 floors apart. Yes, the old Rokus take SD cards.

I am glad you are doing so well!

It would be great if the drug companies could find an APwhich did not cause such scary side-effects.

I am starting Enbrel this weekend for Psoriatic Arthritis. It is supposed to stop, or slow down, any permanent joint damage.I have put this off for 2 years because of the potential side-effects, which are many and include conditions like "lymphoma." My rheumatologist says she has neve known anyof her patients to get lymphoma from Enbrel,despite the warnings. This does not really reassure me as I am so often her one patient that has something unusual occur in regards to treatment trials.

Anyway, things are getting bad enough that I am wiling to try it and see if it helps. If it helps, then I will have to decide whether or not to continue it and take my chances. If it does not work, then the decision is made.

I guess I have mentioned this to affirm the fact that many meds have some potentially severe side-effects and it would be most helpful if meds could be helpful without so many potentially serious side-effects!

I guess we will all keep doing what's best for our daily functioning for today and worry about tomorrow when it gets here?

Sounds like SS assigned you a new number and therefore can't find preexisting info on you. I'm glad your taking this so calmly I'd be very upset to lose Medicare. I was very pleased to find out my QMB covered my eye dr appointment bill and that all I had to pay for was glasses. But Medicare is my main insurance. What a pain in the patooty.

WC, you are pure inspiration. I mean that very sincerely. I would have lost my **** a long time ago dealing with what you have. Heck, much less than that would do it! You are a strong and amazing human being and don't let anyone ever tell you one iota differently!!

Best of luck in getting it all straightened out. It's astounding the bungling...

*********
Mr. Robot

Makes me sick to the heart, Oh I feel so tired. And the way the rain comes down hard, that's how I feel inside.

--The Cure

HI!

Well, it helps that i have additional medical coverage through my H's coverage. However my access to that coverage is going away soon.

I need my disability income and my medical benefits more than ever now.

The thing is: They do use my SSN. So where did the records go?
Where is the claim info? Where is the record of payment to me?
Don't they keep record on this stuff?

There seems to be no avenue by which I can appeal this idea of processing the claim as a new one. There is an appeals process for outright claim denial, but mine is now being investigated for approval. I may or may not be approved. Imagine that one! Even if I am approved, I still need to get this all straightened out.

I think I can get bank statements showing their direct deposits.
They should have records of having paid medical via Medicare..
What has happened to my Medicare info?

It is scary that so much info is collected by the government to begin with. Then they let their computer programs rule the world! No thought that information their computers are spitting out might be wrong.

They also claim they have records of me working when I was not working!
After all of these "mistakes," you'd think maybe they'd start thinking something was very wrong with their records? Yet, who gets paid to realize this and paid to handle this? The positions seem to be so compartementalized that nobody can/will reach out beyond the scope of their job description and help to get this resolved.

Enough on this happy stuff!

I will keep working on it and will contact a disability attorney if need be.

Thanks, Nammu!

I've been enjoying a game on my Xbox 360, Assassins Creed 3. Pretty much just relaxing till tomorrow cause I'll have to walk to the laundromat to do laundry.

I walked a lot. Might take another walk soon. Getting ideas for desserts to make

I had a very part time job as a ESL and ASL tutor and hand delivered to SS my new info. Then I was let go as the last hired when funding was cut. SS claimed I never let them know and want to cut my SSDI even tho I didn't make over the allotted monthly income. I went in person and the person I talked to said oh you reported to the wrong compartment! Thankfully she was nice and cleared it up or I would have been on the streets losing my only income and health insurance. I think it helped that I had a copy of the letter I gave them. They also wanted me to pay them the amount of money I earned! She took care of that too! I think it helped that I used an ASL interpreter and had that as a third party witness.

I wish they'd get their act together already at SS! You don't need this, WC! Hugs

HI IZ!

Thanks for your feedback!

I try to persevere. I don't want them to prevail, since they are wrong/mistaken!
I have heard of a lot of major issues people have had with the SSA, for a variety of reasons, but had not yet heard of this! I cannot imagine I am the only one. I am not that special! LOL!

I will do my best to not only resolve this for myself, but to at least make a dent in it for others, if at all possible.

It is extra trying right now, with the separation/divorce and so much else going on. I don't have a choice but to do my best to resolve it.

Your comments inspire me to continue to "party on" with the SSA and any other agency involved in this mess!

I want you to know I think the same of you, IZ! You have been thorugh a lot and have done a lot to get yourself in a better place so you can enJOY life. You have mindfully pushed through very challenging times! I admire you!

I'm glad to be back home from Philly! Luckily, hubby's eye is doing a little better this month. He didn't need the injection. I can't imagine having to have an injection in my eyeball

As usual, hubby wanted me to go to Wawa and pick up some hoagies. I just didn't feel like one. I bought him one, and waited with him as he ate it in the waiting room. Then, I must confess that I went across the street to a cafe for myself. I had a nice slice of quiche with a little side salad, a glass of wine (it was lousy so I didn't finish it), some coffee (brought 1/2 take out for hubby), and a mini apricot fruit tart (brought hubby half). Yea, I spoiled myself. I did feel a little bad doing this to hubby, but I couldn't stand the waiting rooms. They were like Penn Station in NYC at rush hour. If you've never experienced that, it's quite the madhouse!

Next Tuesday afternoon, I have an appointment to meet with the Director of Operations at my local NAMI (National Alliance On Mental Illness) chapter. I'm going to discuss volunteer opportunities. I told her that I'm not interested in the HelpLine, but there are other options. I didn't realize how far away they are. They used to have a location that is much closer to my house, but they recently moved almost twice as far. That's a bummer! Anyway, some or all of my first volunteer assignment will be much closer. They are having an Autumn Wellness Conference in a town that's only half the distance from my home.

I once briefly volunteered at the above-mentioned NAMI, at their old location. I had to quit somewhat abruptly because of severe anxiety, and then a mood episode. I told my psychiatrist, yesterday, that if they wouldn't forgive such departures, who would? He agreed.

So my left lung is still wheezing so I needed a chest X-ray and adding one more puff of Symbicort on top of my am and pm dose. She isn’t wanting me back on steroids unless we don’t have another option because it’s kicked my BP sideways

We discussed my feeling just so ill, long story short, full labs next week, also specific testing for vitamin D level ( I have taken supplements for a decade) and B12 etc.

There is a slight change in my EKG , so she wants a Holter monitor. I told her it’s difficult to know if I’m having chest pain or anxiety.. I have had tachycardia for years, it can often run 120-140 either up and moving or not, it was 118 -120 while we talked, I have no white coat syndrome , so it was what it was.

So once all this is done it likely I’m going to see a cardiologist for further testing....

Hugs everyone... I’ll try and come back later and get caught up here.