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  #1  
Old Sep 06, 2019, 08:36 PM
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Victoria'smom Victoria'smom is offline
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My parents know. They use to hide my medication. They've even offered to pay to see pdoc 1x. They don't know about the psychosis, hospitalizations, 99% of the mood swings. I'm always "good" when my family asks. I feel like a liar. The only time they know is when they see me on FB without sleeping. My mom will ask when the last time I slept was but other then that I'm the daughter they don't have to worry about. I'm debating telling the truth (or at least partly) but I'm unsure.

So who REALLY knows in your life?
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Dx:
Me- SzA
Husband- Bipolar 1
Daughter- mood disorder+


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  #2  
Old Sep 06, 2019, 08:45 PM
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Blue_Bird Blue_Bird is offline
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My family and my best friend. That's it and that's how it will stay most likely
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“All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi


Diagnosis:
Schizoaffective disorder Bipolar type
PTSD
Social Anxiety Disorder
Anorexia Binge/Purge type
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  #3  
Old Sep 06, 2019, 08:52 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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Practically everyone. Not everyone gets it but they do know. I am pretty open about it, always was, but once I went on disability it was obvious something was wrong and when I moved into this little house on my mom's property is was obvious things were bad enough I couldn't live alone so again, obvious.

I just don't care. If they have an issue with me or my illness then that's really their problem. Sometimes they are coming from a position of love, like a close family friend who thinks if I just had a schedule and took a computer job working from home I'd be fine. But the reality is that I can't have a schedule because my meds control my sleep and I need a ton of that and I'm not coming off the only med that ever really helped me. I don't want some computer job that made me lose my SSDI and I know I couldn't be a consistent employee anyway. I don't even volunteer because I wouldn't be consistent and I wouldn't want anyone to count on me. But that's hard for some people to understand and as I have been better on clozapine I think it's harder because aside from sleeping so much I do seem better and this med does help greatly. So I look better and "should be able" to do more. I do the most i can though.

When it isn't from a position of love I break things off (or ghost the person. Not proud of that but I've done it).
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Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
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  #4  
Old Sep 06, 2019, 09:09 PM
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wiretwister wiretwister is offline
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only my wife and work manager have been told directly . . . but many know I see a pdoc . . . the story is being treated for stress and depression . . . those are socially acceptible . .
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  #5  
Old Sep 06, 2019, 09:12 PM
yellow_fleurs yellow_fleurs is offline
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My closest friends, boyfriend and siblings. My parents too, but not all the details. My mom has enough anxiety and I know she'd just worry in ways that aren't that helpful for either of us. I am lucky that everyone is pretty open minded and no one has made me feel weird about my mental health issues. I used to cover it up more. People knew I had some depression and anxiety, but I kind of pushed down the worst of it, like the OCD stuff and tried to carry on.
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  #6  
Old Sep 06, 2019, 09:23 PM
fern46 fern46 is offline
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My family and a lot of my extended family knows. All of my good friends know. I need their support and they all love me even if they don't understamd completely. My husband and children also need their support. I couldn't ask them to keep this secret for me.
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  #7  
Old Sep 06, 2019, 09:23 PM
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Moose72 Moose72 is offline
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Friends and family know but I got bad vibes when I told people at church. My choir director always gives me this fake "awww! Im so sorry..." face. Really makes me feel like cr*p. I assume my mom has told other family members but im not sure. I'm not happy about that, either.
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Mania Sept/Oct 2024
Mania (July/August 2024)
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  #8  
Old Sep 06, 2019, 09:28 PM
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Nammu Nammu is offline
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Family and extended family.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



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  #9  
Old Sep 06, 2019, 09:29 PM
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Pookyl Pookyl is offline
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Quote:
Originally Posted by fern46 View Post
My family and a lot of my extended family knows. All of my good friends know. I need their support and they all love me even if they don't understamd completely. My husband and children also need their support. I couldn't ask them to keep this secret for me.
I’m the same. I also have acquaintances in my life that know. My hairdresser knows because I only want bright blue hair when I’m manic. The local barista knows. He has bipolar as well, although BPII. He’s had the same job now for 7 yrs and I admit I’m a little envious.
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BP1, GAD, Panic Disorder, Agoraphobia, Claustrophobia

Psych meds: Saphris, Seroquel XR, regular Seroquel.
PRN Diazepam and Zopiclone
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  #10  
Old Sep 06, 2019, 09:31 PM
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Under*Over Under*Over is offline
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My family selectively knows. Meaning, Ive told them but they would prefer for me not to be sick so they pretend Im not and just ignore any symptoms that I have. Im not trying to bash them, thats just the way things are. I am on their insurance and they pay for my treatment though so they do know and they do care.

No one else knows except people online and therapists and stuff.
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  #11  
Old Sep 06, 2019, 11:39 PM
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~Christina ~Christina is offline
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Husband, the kids and my brother were it for a long time... one day I found the perfect picture to describe Bipolar and I posted it on Favebook and captioned” this is me and my Bipolar” about 2 or maybe 3 years ago.

I was surprised 3-4 people messaged me that they also have Bipolar. I got tons of positive feedback. If anyone was bothered they didn’t show it and there was never a change in our interactions.

Now that said , I don’t post about my Bipolar, but maybe a meme 3-4 times since then.

I also don’t overshare on Facebook regardless of my Bipolar or in general. So I never am concerned about that.
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  #12  
Old Sep 07, 2019, 06:21 AM
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Isolda van der Meer Isolda van der Meer is offline
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My parents and my sister. I feel like it was a mistake to talk to my sister about it, because she didn't accept it very well. I have also a brother, but he doesn't know yet. And my close friends know.
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  #13  
Old Sep 07, 2019, 08:00 AM
Anonymous46341
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Everyone in my immediate family, most in my extended family, closest friends, anyone any of them gossiped about it to, many in my childhood home town (because my dad shared my blog with many townie friends), my former neighbor, my past employer and many people I used to work with (long story), various doctors that my father has seen in the recent year, anyone that has stumbled upon my blog, and anyone I've come in contact with through forums like this one.

I, personally, told very few people. Most learned through word of mouth/gossip, my blog, or simply witnessing. Also, six area cops (long story) and my pharmacists and doctors and therapists. My husband told his family in Czech Republic. Surely more there and his half siblings in Germany know, too. His two siblings in Germany also have bipolar disorder, but his sister there is in denial. Their mother (different than hubby's) died as a result of bipolar disorder, suicide.

Even if some of the above don't know exactly what mental illness I have, they know I have one.

It really doesn't matter to me at this point. I am not one to fret about things that are done that can't be undone.

Last edited by Anonymous46341; Sep 07, 2019 at 09:10 AM.
  #14  
Old Sep 07, 2019, 10:33 AM
yellow_fleurs yellow_fleurs is offline
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Quote:
Originally Posted by Isolda van der Meer View Post
My parents and my sister. I feel like it was a mistake to talk to my sister about it, because she didn't accept it very well. I have also a brother, but he doesn't know yet. And my close friends know.
Sorry the didn't accept it well. Did they not believe you? Although my friends have been very supportive of my mental health issues overall, most (all?) said they don't think I have bipolar disorder including my friend who has bipolar disorder himself. I personally am not sure I think I completely meet the criteria for bipolar disorder.
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  #15  
Old Sep 07, 2019, 12:41 PM
fern46 fern46 is offline
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Quote:
Originally Posted by yellow_fleurs View Post
Sorry the didn't accept it well. Did they not believe you? Although my friends have been very supportive of my mental health issues overall, most (all?) said they don't think I have bipolar disorder including my friend who has bipolar disorder himself. I personally am not sure I think I completely meet the criteria for bipolar disorder.
My friends don't believe it either. It usually goes like this when I tell them.

Me: 'Something happened to me and I had a psychotic break. The doctors think maybe I'm bipolar'
Friend: 'You? No way. You're so put together'
Me: ' I hallucinated and my children were disappearing before my eyes. I thought my husband was doing it and he was evil'
Friend: 'I still cannot believe that. You love him'
Me: 'Let me show you the pictures of what my hallway looked like after I kicked the walls in trying to find my disappearing children'
Friend: 'Woah. You went nuts'
Me: ' And that's why I was in the hospital for 10 days after my brain snapped.'
  #16  
Old Sep 07, 2019, 12:51 PM
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xRavenx xRavenx is offline
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My mother knows. She doesn't fully understand, but she is coming around. My brother has MH issues also, so I shared my diagnosis with my brother (plus he was well aware that I was having a lot of problems growing up, but now he knows specifically).

I mentioned my diagnosis to my cousin, who probably doesn't even remember me bringing it up, because I don't talk about it much. Plus, she has her own issues with addictions and was even diagnosed as Bipolar. I only talk vaguely about my mental health issues with very few friends and not all of them know my diagnosis.

My one friend knows my diagnosis, and I mentioned it at one point to another friend. But I could probably count on less than one hand the people outside of family and medical professionals that know.

I have mentioned it to past partners, and most were supportive. However, the last guy that I dated for only a very brief period of time was pushy about getting off medication. He seems to think cannabis is the answer to everything, which is why he is anti-medication. Needless to say, it rubbed me the wrong way, and that was one of the many reasons why I ended it. Now, I decided I won't open up about it once I've been in a relationship as soon as I did before.
  #17  
Old Sep 07, 2019, 02:47 PM
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Isolda van der Meer Isolda van der Meer is offline
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Quote:
Originally Posted by yellow_fleurs View Post
Sorry the didn't accept it well. Did they not believe you? Although my friends have been very supportive of my mental health issues overall, most (all?) said they don't think I have bipolar disorder including my friend who has bipolar disorder himself. I personally am not sure I think I completely meet the criteria for bipolar disorder.
My sister thinks I'm faking it in order to make my boring life seem less boring. I have no idea why I would do this but nevermind.

My friends weren't surprised when I told them that I have bipolar disorder. One of them (a psychologist-amateur) told me that she had thought so for quite a long time. I'm glad that my friends are so supportive.
  #18  
Old Sep 07, 2019, 02:53 PM
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Isolda van der Meer Isolda van der Meer is offline
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@BirdDancer This is totally off topic, but... your husband is from the Czech Republic? It's always surprising for me when somebody knows about the existence of my little and unimportant country...
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  #19  
Old Sep 07, 2019, 05:43 PM
Anonymous46341
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Quote:
Originally Posted by Isolda van der Meer View Post
@BirdDancer This is totally off topic, but... your husband is from the Czech Republic? It's always surprising for me when somebody knows about the existence of my little and unimportant country...
Ano, on je z Cech. It's not unimportant, and it's mighty big in our hearts


Dobro noc!
  #20  
Old Sep 07, 2019, 06:48 PM
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Aviza Aviza is offline
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My family, friends, boss, everyone really. Maybe not specific diagnosis but most have experienced an episode.
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  #21  
Old Sep 07, 2019, 07:18 PM
yellow_fleurs yellow_fleurs is offline
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Isolda van der Meer wow that must be pretty invalidating to have your sister say that. I am glad at least your friends are supportive.

Fern, I also sometimes get the impression people think I am too "put together" to have mental health issues and that that's part of it. When dealing with a mixed episode people mostly thought I was fine or just a bit stressed or depressed, but I felt very unstable and almost took myself to the hospital.
  #22  
Old Sep 08, 2019, 04:02 AM
Anonymous32451
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my parents (who disowned me for it), my teachers knew, my friend laura (or I should say my X friend laura), obviously doctgors/ therapists, and beth when she was alive.
  #23  
Old Sep 08, 2019, 10:23 AM
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saucygirl31 saucygirl31 is offline
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my parents, a couple friends, and everyone practically in the group home i live in.
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  #24  
Old Sep 08, 2019, 01:35 PM
TheSadGirl TheSadGirl is offline
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Everyone. It became too much of a burden trying to hide it all the time. Now people either accept me as is or they don't.
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