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~Christina
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Default Oct 29, 2019 at 11:49 AM
  #181
I hate to know your suffering. Maybe just let yourself cry it out? Helps me sometimes.

Sending you many hugs , much love and positive vibes

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Heart Oct 29, 2019 at 01:19 PM
  #182
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Originally Posted by bpcyclist View Post
Well, a small achievement overnight. I slept all the way until 2ish AM, which might not sound like a lot, but for me, is quite an achievement. I really have to get this sleep thing under control because it really exacerbates my bipolar stuff. Am sure it's why I got psychotic the other day. Plus, I've been reading about insomnia in general and it is not encouraging for folks like me. The all-cause mortality rate for people who don't sleep well is way, way higher than it is for people who sleep. Most of it is not cardiac. It's cancer. And I worked for years in a field where I was up all night all the time. So, I'm already behind the eight ball. Anyway, trying to stay positive. Maybe things are getting better.
Congrats on this achievement!
Sleep is so very important. So many of us intend to overcome these challenges.

While the studies/info on the effects of chronic insomnia tend to point toward a "potential" for a shortened life span and/or "potential" illness, hopefully this does not apply to you! It is always possible this is true.

Maybe you aren't "behind the eight ball?"
Maybe you the "eight ball" is behind you?
In fact, if you look around, maybe there is no eight ball?

I hope your sleep improves drastically asap!
It's a treat to have you posting!

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Heart Oct 29, 2019 at 01:23 PM
  #183
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Originally Posted by BirdDancer View Post
Thanks, Christina. They said they would move him as soon as a bed was available. I'm sure my brother or sister will let me know later.

I'm not doing well at all. I felt like crying several times today and had anger outbursts. It's a shame. My husband long ago designated today as my "name day". It's supposed to be a nice day for me.
(((((( BirdDancer ))))))

Happy Name Day, BirdDancer!
I am sad that you are sad today.
Maybe postpone your Name Day to another day, just this one time?
Much Love

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Heart Oct 29, 2019 at 01:28 PM
  #184
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still sick. thought it was getting better but its not. I feel worse than I did when this all started. going to be passing this back and forth with mom and my stepdad. that's usually how things work around here. we all give each other our colds. its cold and rainy here in the south. so its hoody weather and long pants. I got my bday presents early. I got some nice things that I actually needed. one of which was a new fitbit. mine died last week. its showing me more details about my sleep and other stuff. which is cool because I like tracking that. mentally I am still not well. I am trying though. but its hard when being sick also. my head feels like its going to explode from all this stuffiness. cough hack sniffle cough groan.
Quite a challenge, being unwell both physically and mentally.
I find this a very difficult challenge. My heart goes out to you!

I hope you can get enough rest, fluids and some chicken soup!
I hope you get a reprieve asap!

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Default Oct 29, 2019 at 01:52 PM
  #185
I finally got my GI follow-up scheduled. I have a feeling that should have been done at my appointment after they scheduled my procedures. Now I have to wait 6 weeks. That's longer than I had to wait for my initial appointment.

Oh well. Maybe things will heal spontaneously while I'm waiting.

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Heart Oct 29, 2019 at 02:12 PM
  #186
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Originally Posted by BeyondtheRainbow View Post
I finally got my GI follow-up scheduled. I have a feeling that should have been done at my appointment after they scheduled my procedures. Now I have to wait 6 weeks. That's longer than I had to wait for my initial appointment.

Oh well. Maybe things will heal spontaneously while I'm waiting.
These long waits can be so very disheartening!
There seems to be a very long wait almost everywhere in health care.

It surely seems like you have waited far too long as it is.
I can only hope that, somehow, this is a blessing for you?
You must be so frustrated!

I hope you get better with each passing day.

How are you doing?
How is Charlie?

Much Love and Healing!

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Default Oct 29, 2019 at 03:07 PM
  #187
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Hoping, trying, intending to remain as stable as possible.

Am feeling exhausted. In pain.

Accompanied my mother to an emergent Orthopedic appt. yesterday.
She has torn BOTH rotator cuffs.

Surgical repair is not an option.

She continues to live with the hip joint infection which came from hip replacement surgery almost 2 years ago. This infection (and control thereof) has been tenuous. Specialists predict the infection will last for the rest of her life. (It's a deadly infection if not kept under control. Leads to sepsis, which has already happened once. She was very, very close to losing her life. She continues on daily antibiotics in hopes of suppressing the infection.)

My mother lives with me.
I do not yet know what all of this means. Putting one foot in front of the other.

Love to All
Bless your heart! You’ve been through so much. Bless your mom’s heart! I hope she isn’t in too much pain from the rotator cuffs and the infection. You’ve been doing an incredible job putting one foot in front of the other.

Sending hugs, prayers and supportive vibes.
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Default Oct 29, 2019 at 03:27 PM
  #188
I just wanna give everyone a HUG
I Hope things get better for you.

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Default Oct 29, 2019 at 03:27 PM
  #189
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Originally Posted by Wild Coyote View Post

I hope you get better with each passing day.

How are you doing?
How is Charlie?

Much Love and Healing!
Thank you! I certainly hope this just goes away. By the time I see the GI again it will be over 5 months. My own fault for not being assertive about scheduling a post-procedure appointment when I scheduled the procedures.

I'm just tired. Between having had a cold and the procedure/anesthesia last week I just can't seem to bounce back yet. But it will happen. My cold is already getting better so hopefully the rest will improve soon. I was up sick much of the night last night so I am tired from that too today. But now I'll get some "free" days from taking a lot of immodium.

Charlie is doing really well right now. He's been off steroids for several days and antibiotics a week and his latest wound is nearly healed. It just needs the scab to come off. He seems to be feeling good and is even chasing his sister around the house. He's so big it sounds like a stampede but I'm glad he feels well enough to run and play. They're also taking turns "owning" an empty box their food came in. They'll be sad when it disappears into the recycling in a day or two.

I'm sorry you're feeling so tired and that your mom got tough news. Is she going to have PT for her rotator cuffs? I know it can help sometimes and sometimes makes a big difference. Does she use a walker for her hip? That certainly wouldn't help the shoulders.

I hope you've gotten some rest, both physically and mentally.

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Default Oct 29, 2019 at 03:39 PM
  #190
I saw a nutritionist today. She wants me to pick back up exercising- walking and to eat more green beans and no granola- too much sugar, substitute oats instead.

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Heart Oct 29, 2019 at 03:46 PM
  #191
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Originally Posted by BeyondtheRainbow View Post
Thank you! I certainly hope this just goes away. By the time I see the GI again it will be over 5 months. My own fault for not being assertive about scheduling a post-procedure appointment when I scheduled the procedures.

I'm just tired. Between having had a cold and the procedure/anesthesia last week I just can't seem to bounce back yet. But it will happen. My cold is already getting better so hopefully the rest will improve soon. I was up sick much of the night last night so I am tired from that too today. But now I'll get some "free" days from taking a lot of immodium.

Charlie is doing really well right now. He's been off steroids for several days and antibiotics a week and his latest wound is nearly healed. It just needs the scab to come off. He seems to be feeling good and is even chasing his sister around the house. He's so big it sounds like a stampede but I'm glad he feels well enough to run and play. They're also taking turns "owning" an empty box their food came in. They'll be sad when it disappears into the recycling in a day or two.

I'm sorry you're feeling so tired and that your mom got tough news. Is she going to have PT for her rotator cuffs? I know it can help sometimes and sometimes makes a big difference. Does she use a walker for her hip? That certainly wouldn't help the shoulders.

I hope you've gotten some rest, both physically and mentally.
I am very concerned about you.
It has been a long, drawn out process thus far.

I am so sorry for what you are going through.
I do hope this condition will heal up and go away asap.
You deserve for this to leave you alone!

Wow! Charlie and his sister must both be very happy playing together!
I have heard today is National Cat Day!!!

My mom is scheduled for PT. She tends to get impatient about this and tends to quit quickly. I have had a long talk with her this time, again. It is critically important she follow through on this one.

She has not used a walker since her surgery, almost 2 years ago. She was lifting items that were way too heavy f or her. I had no idea she was doing that or I would have stopped her.

Oh, yes! You've rehabbed people as a part of your career.
You must miss your work?

I hope you will feel better soon!
Keep us posted.
Much Love to You and to Your FurBabies!

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Heart Oct 29, 2019 at 04:08 PM
  #192
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Bless your heart! You’ve been through so much. Bless your mom’s heart! I hope she isn’t in too much pain from the rotator cuffs and the infection. You’ve been doing an incredible job putting one foot in front of the other.

Sending hugs, prayers and supportive vibes.
Hi Jennifer!

I know you deal with much of the same.
I am thinking of you and hoping things improve asap!
Thanks!
Much Love

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Default Oct 29, 2019 at 04:12 PM
  #193
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Ugh. Got maybe 5 hours of sleep. See the doc at 7:45 tomorrow morning. Right in the middle of my sleeping hours.


You so need more sleep time ... is this a Doctor that can possibly help you with sleep ???

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Default Oct 29, 2019 at 04:13 PM
  #194
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Originally Posted by BeyondtheRainbow View Post
I finally got my GI follow-up scheduled. I have a feeling that should have been done at my appointment after they scheduled my procedures. Now I have to wait 6 weeks. That's longer than I had to wait for my initial appointment.


Oh well. Maybe things will heal spontaneously while I'm waiting.

Could they possibly have a cancellation list?? Good grief a 6 week wait

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Default Oct 29, 2019 at 04:27 PM
  #195
So my GI. appt went very well he thinks its just fatty liver, he’s doing more specific liver testing. He does want a ultrasound to compare to the one I had in Florida. So they are going to call me with appt

I was happy he didn’t immediately talk about weight and diet/ food lifestyle.

He said watch sugar mainly, if i can lose weight that would be great but he said psych meds are notorious for unwanted weight gain. So at least he does understand the very strong connection.

Got my lab work done. I’ll hear about that in 3-4 days.. unless something totally unexpected shows up on ultrasound we can do results on the phone !! Yeah no addl co pays needed!

I’m wore out from just being up so early and the over 3.5 - 4 hours driving.

My stupid refrigerator has frozen up again its every 3/4 weeks we have to unplug, and sit a freaking fan blowing into the damn freezer side and thaw it out. All my refrigerator foods are surrounding a huge tub of solid ice so I don’t have to throw out foods. It’s unbelievably annoying af ! But we can’t afford to buy another.

Things could always be worse.

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Default Oct 29, 2019 at 04:29 PM
  #196
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You so need more sleep time ... is this a Doctor that can possibly help you with sleep ???
Only got the one doc, he's a PCP, an internist. There is no pdoc available here, there's one for a three county area and he's beyond booked. They're trying to hire a second one but have had no luck.my PCP is very nice and he does listen. According to the newspapers mental health care is extremely limited in this area. They are building a critical care mental health unit but they are building it in the city to cover 5 counties and it will have only 12 beds, should be open sometime 2021. There's a mental health hospital in Rochester 45 minutes away and one in a town about 30 minutes away but they are always at capacity all the time. The police routinely take people out of state for care.

My PCP consulted with the pdoc when I first moved here and agreed to keep my meds the same. Even the double dose of Ambien that made him nervous cause the pdoc said bipolar's need their sleep. But it's beyond time for an adjustment.

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Default Oct 29, 2019 at 04:33 PM
  #197
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Could they possibly have a cancellation list?? Good grief a 6 week wait
I need to call back and ask this. I meant to but they had so many questions I got overwhelmed and forgot. It's like my doctor only works a few days/week. I think that is really it; he does scopes 4 days/week in the mornings so he has less patient time, just like all the GI staff probably. So it's hard to get in. It's still frustrating. But it could be worse; it could be months or I could not have insurance or access to medical care at all. I just have to keep remembering that.

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Default Oct 29, 2019 at 04:38 PM
  #198
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Only got the one doc, he's a PCP, an internist. There is no pdoc available here, there's one for a three county area and he's beyond booked. They're trying to hire a second one but have had no luck.my PCP is very nice and he does listen. According to the newspapers mental health care is extremely limited in this area. They are building a critical care mental health unit but they are building it in the city to cover 5 counties and it will have only 12 beds, should be open sometime 2021. There's a mental health hospital in Rochester 45 minutes away and one in a town about 30 minutes away but they are always at capacity all the time. The police routinely take people out of state for care.


My PCP consulted with the pdoc when I first moved here and agreed to keep my meds the same. Even the double dose of Ambien that made him nervous cause the pdoc said bipolar's need their sleep. But it's beyond time for an adjustment.


There is a huge gap in Pdoc providers. There’s 3 options in the 2 counties for me.

Trazadone, Lunesta, if you have been off ambein a awhile , maybe give it another try, what about a benzo at bedtime ? That what helps me get any sleep.

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Default Oct 29, 2019 at 04:40 PM
  #199
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I need to call back and ask this. I meant to but they had so many questions I got overwhelmed and forgot. It's like my doctor only works a few days/week. I think that is really it; he does scopes 4 days/week in the mornings so he has less patient time, just like all the GI staff probably. So it's hard to get in. It's still frustrating. But it could be worse; it could be months or I could not have insurance or access to medical care at all. I just have to keep remembering that.


Hope you can get in sooner ! Hurry up and waiting is maddening

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Heart Oct 29, 2019 at 04:42 PM
  #200
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Originally Posted by Nammu View Post
Only got the one doc, he's a PCP, an internist. There is no pdoc available here, there's one for a three county area and he's beyond booked. They're trying to hire a second one but have had no luck.my PCP is very nice and he does listen. According to the newspapers mental health care is extremely limited in this area. They are building a critical care mental health unit but they are building it in the city to cover 5 counties and it will have only 12 beds, should be open sometime 2021. There's a mental health hospital in Rochester 45 minutes away and one in a town about 30 minutes away but they are always at capacity all the time. The police routinely take people out of state for care.

My PCP consulted with the pdoc when I first moved here and agreed to keep my meds the same. Even the double dose of Ambien that made him nervous cause the pdoc said bipolar's need their sleep. But it's beyond time for an adjustment.
(((((( Nammu ))))))

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