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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,623
(SuperPoster!)
9 11.6k hugs
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#921
@raspberrytorte I'm having a lot of trouble with lethargy and no motivation since starting just 50 mg of Seroquel. I'm not depressed at all, I just can't do anything. The thing is that otherwise it makes a HUGE difference for me. I didn't even know my head could be quiet until I was on this combination. I talked to my pdoc about this and I'm tracking some things for a few weeks and then I'll probably be backing of gabapentin a little (like 100-200 mg) because I'm on a high dose of that and she said it could be the culprit as well as cause weight gain. I know going down on gabapentin didn't work for you recently and I'm scared to try it but I need to feel like doing things again. Today I went to Walmart by myself and that was a HUGE accomplishment.
I hope we can both feel better! __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 1.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
JaneOnceMore, LadyShadow, MuddyBoots, raspberrytorte
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Crazy Hitch, LadyShadow, raspberrytorte
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Poohbah
Member Since May 2018
Location: Toronto, Canada
Posts: 1,361
6 84 hugs
given |
#922
I skipped 2 doses of Vraylar and the swelling in my feet is improving. My knees and hands, too.
It's not gone yet, but improving. I'm really disappointed that Vraylar didn't work out. My anxiety is much better and I was looking forward to a dose increase to maybe get at my depression. __________________ * Dx: Unspecified Bipolar and Related Disorder * Rx: Remeron, Prozac, Klonopin My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016. |
BeyondtheRainbow, JaneOnceMore, June08, LadyShadow, MuddyBoots, raspberrytorte
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,623
(SuperPoster!)
9 11.6k hugs
given |
#923
Sorry @Scooter9 I had exactly the same side effects on risperdal both times I tried it and both times it was helping me.
So frustrating! I hope your next med is your solution. __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 1.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
JaneOnceMore, MuddyBoots, raspberrytorte
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LadyShadow, Scooter9
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,431
(SuperPoster!)
4 6,343 hugs
given |
#924
"I had a night, I had a day
I did one million stupid things I said one billion foolish things I'm not okay" Not a fan of that song, but I feel the lyrics __________________ [Insert thought-provoking and comedic quote here] |
BeyondtheRainbow, JaneOnceMore, LadyShadow, raspberrytorte, unaluna
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unaluna
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Elder Harridan x-hankster
Member Since Jun 2011
Location: Milan/Michigan
Posts: 40,881
(SuperPoster!)
13 68.6k hugs
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#925
My usual song is, hey i did one thing today.
Im going for a 100 pct improvement to two things per day. |
BeyondtheRainbow, JaneOnceMore, LadyShadow, MuddyBoots, raspberrytorte
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Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 38,636
(SuperPoster!)
8 9,693 hugs
given |
#926
I got some Align delivered from Walmart. My GI told me yesterday to try it. I was in the bathroom long enough to concern my mom so I took the first one tonight. I'm hoping I can get rid of my other stomach meds and just take this.
Mood wise things have been ok but my anxiety has been rough today. My mom was kind of annoyed that I was "protecting" my cousin who is not talking to my uncle because of a bad divorce from 2008. Its not that I was protecting her or sticking up for her, its just you can still like the person just not their behavior. Plus theres a lot of other people involved in this situation besides that one cousin. __________________ I'm Blue |
BeyondtheRainbow, JaneOnceMore, LadyShadow, MuddyBoots, raspberrytorte
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,163
9 8,756 hugs
given |
#927
@BeyondtheRainbow
Yeah. I absolutely CANNOT reduce my gabapentin dose. I feel so much better anxiety wise now that I'm back on 800mg 4x. As in, no anxiety at all anymore. It sucks seroquel is making me so fat and lethargic and lazy because I have zero psychosis on it. No paranoia. No negative entity. No questioning my reality. No snapping my wrists with rubber bands to make sure I'm not dreaming. No hallucinating my family being home when they're not. No fear of reflections.... you get the idea. I'm weaning my own fat *** off it though. I'm on 50mg of loxapine still. That's just going to have to be enough to keep the entities at bay. I'm too close to 200lbs for comfort. At this rate I'll be 300lbs by next year! Unacceptable. Not good. Not okay. I have to take matters into my own fat hands. __________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
BeyondtheRainbow, JaneOnceMore, LadyShadow, Mountaindewed, MuddyBoots
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BeyondtheRainbow, LadyShadow
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,108
(SuperPoster!)
16 2,699 hugs
given |
#928
Quote:
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 100 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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BeyondtheRainbow, LadyShadow, MuddyBoots, raspberrytorte
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Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 38,636
(SuperPoster!)
8 9,693 hugs
given |
#929
This morning around 2AM I threw up in my sleep. I was just dreaming about my hot PT when I all of a sudden needed to throw up and I had like sleep paralysis or maybe I got caught in my blankets, because I was stuck and starting to choke. Finally I was able to roll over on my side and I yakked the ensure I had at midnight all over my comforter. Then I sat up and started coughing. I went into the bathroom and threw up a bit some more. Then I cleaned up my bed the best I could but I'll have to wash my comforter. Then I fell right back to sleep until 6AM.
Today I feel decently I guess. My stomach is a bit off though. Mood wise I'm ok. I'm eating less and throwing up but gaining weight. Which doesn't make a whole lot of sense. Does anyone know what this could be? __________________ I'm Blue Last edited by Mountaindewed; May 16, 2024 at 12:31 PM.. |
BeyondtheRainbow, LadyShadow, MuddyBoots, raspberrytorte
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,163
9 8,756 hugs
given |
#930
Quote:
Ugh!!! Can't win. I think I'd rather be back on more loxapine and less seroquel if I'm being honest. Or SOMETHING that's not going to turn me into a lethargic whale!!! If only Haldol hadn't stopped working. Sigh. __________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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BeyondtheRainbow, JaneOnceMore, LadyShadow
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,163
9 8,756 hugs
given |
#931
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
LadyShadow, Mountaindewed
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,431
(SuperPoster!)
4 6,343 hugs
given |
#932
Quote:
__________________ [Insert thought-provoking and comedic quote here] |
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LadyShadow, Mountaindewed
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,431
(SuperPoster!)
4 6,343 hugs
given |
#933
I don't like this. I think I'm okay, and then all of a sudden it's like a ghost takes any life out of me and I'm just a shell. I've been on some crazy rollercoaster for so long, and in one moment BAM I'm floating as nothing more than an idea in a vacuum.
I have to go call my CM because I do NOT feel safe right now. edit: I have not stopped crying for like two hours now
Possible trigger:
__________________ [Insert thought-provoking and comedic quote here] Last edited by MuddyBoots; May 16, 2024 at 07:07 PM.. |
BeyondtheRainbow, JaneOnceMore, LadyShadow, raspberrytorte, unaluna
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,570
20 2,808 hugs
given |
#934
Im enjoying my death and grief class. its an intensive 3 week course. i went to ones friends funeral last night and have another to attend on sunday. so sad. and my friend lost her baby at 36 weeks. its awful.
__________________ schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
BeyondtheRainbow, JaneOnceMore, June08, LadyShadow, MuddyBoots, raspberrytorte, unaluna
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,163
9 8,756 hugs
given |
#935
My husband and daughter kidnapped me this afternoon and took me to the park with them, when all I wanted to do was isolate in the bedroom. They made me walk up a really steep hill. I was like, "You guys have got to be kidding me! I can't walk up that steep hill!" And my husband was like, "Come on. You can do it!" And I did it. And felt like I was going to die.
But it was fun 😁. Ugh. I'm so pissed at myself. My metformin and 200mg seroquel tablets look very similar, and I wasn't paying close enough attention last night and accidently didn't take my metformin instead of my seroquel! I thought I fell asleep too easily. Fudge. So TONIGHT I'm not taking my seroquel. I actually paid attention. Hopefully I'll be able to fall asleep okay. I'm still taking my 100mg during the day for now because I don't want to get sick. I've gone off seroquel before. I know how nauseating it is. __________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
BeyondtheRainbow, JaneOnceMore, LadyShadow, MuddyBoots
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,623
(SuperPoster!)
9 11.6k hugs
given |
#936
I just got my lab results in the patient portal. I have had slightly elevated glucose and A1C levels for about 18 months. I dropped my A1C to a good level in the fall and he didn't order a repeat of that. But I got my fasting glucose results and I'm diabetic. My glucose was still just over normal but he had told me that I couldn't keep sliding. So I guess I'm enjoying carbs from now until I see him next week.
I'm so sad. I have worked so hard and lost a lot of weight (which stopped when I needed Seroquel) and have exercised and I still didn't fix this. With my family history combined with APs this was very likely but I hoped to delay it longer. Oh, and my meds keep me numb enough I can't cry which is all I really want to do right now. This sucks. __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 1.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
JaneOnceMore, June08, LadyShadow, Moose72, MuddyBoots, raspberrytorte
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,163
9 8,756 hugs
given |
#937
@BeyondtheRainbow
I'm sorry to hear that. 😔 It really sucks when your meds make you too numb to cry. __________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
BeyondtheRainbow, LadyShadow
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BeyondtheRainbow, LadyShadow
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,623
(SuperPoster!)
9 11.6k hugs
given |
#938
Quote:
I understand completely. I had to cut my clozaril dose in half this year because my levels were toxic and that's why we added the Seroquel, just to get a little boost and (mostly) to help me sleep. But the combination of APs has done something no other med alone or in pairs has done. But even the 50 mg is causing problems. I'm going to try the gabapentin reduction if that's what she decides knowing that I can use what I taking as a PRN (I assume, gotta clear that with her). I wish there were one magic pill that covered all APs, ADs, mood stabilizers and anxiety. It would be a pretty color too instead of my dull meds. __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 1.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,431
(SuperPoster!)
4 6,343 hugs
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#939
They have a med like that. Not a pill. Propofol no psychosis, mania, depression, or anxiety on that stuff
__________________ [Insert thought-provoking and comedic quote here] |
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,623
(SuperPoster!)
9 11.6k hugs
given |
#940
@MuddyBoots well, I guess that's true.....I was thinking of something without my own personal anesthesiologist (or in Michael Jackson's case random unqualified doctor).. But it's true that does give you a break for a bit
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 1.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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