[Inny2009]

Im in so much pain it hurts too move or even think of moving half the time. I wish someone could help me. Im not crazy this pain is very real...to the point where the pain actually makes me confused...and very quiet..sometimes i cry..not because the pain is soo bad but because its soo terrible and people think im crazy. How can something be so painful you can barely walk and be thought to be all in your head? I dont understand. I wish it would go away...if im crazy youd think i wanted the pain...to get attention...i just want it to go away...i want to be able to do things that i used to...this is terrible.

[bebop]

inny honey I am so sorry you are going thru this. I know when I first injured my back alot of people treated me that way too and even now since they found all the torn disks people don't understand how disabling it really is. I hope they find the cause of your pain and can do something about it for you.

[Crew]

Hi Inny...

I am so sorry you are in so much pain! ((Inny)) sounds like you need to find another doctor. There are doctors out there that don't think your crazy and I don't think your crazy and I do understand where your coming from. Finding a Pain Doctor or a pysical medicine Rehab doctor helped me and many others that are truly suffering.
I am sorry the doctors havn't obviously done anything for you, keep on posting here everything your feeling because ppl here CARE! They Care about You and there is NO REASON why you should be not cared for.

But have you tried a pysiatrist or pain specialist and hearing from others that your NOT CRAZY!!! Crew trys to take pain away from (((InnY))) PM private message me if you ever need anything.
Take care, ThaCrew

[Inny2009]

Thank you so much for all of the kind words and support. I am going to see a Rhuematoglist Oct 1 to see what he says..hopefully he wont make fun of me like my last doctor did. Im hoping i make it till then though...I can no longer actually eat anything more than half a sandwhich and that lasts me two days...its cuz my stomach burns so bad and im sooo naseated that even the least little bit of food makes me sick. Im not anorexic like some believe...i simply cannot eat..all that i can keep down without feeling sick is fluids. My anemia pills arent helping ..im still exhausted all the time....and pills for my stomach acid still dont help (alittle bit but not completely). I have lost 12 pounds in 2 weeks and if i continue at that rate i will be 105 pounds come October 1 ( i started out at being 127 pounds) 105, i cant even imagine what ill look like people already tell me to "eat a sandwhich" Lol I WISH. I want to eat one hundred sandwhiches...sorry this is supposed to be about pain...but it really is a pain...a physical pain that i cant eat...even when i really want to (not cuz im hungry cuz i lost that but because i miss it lol). Im going bald..im loosing clumps of hair (even before the major weight loss) I just hope this doctor finds out whats wrong with me before i end up in the hospital a bald malnurished patient that cant stop crying from pain. Thanks for listening to my rant. Im sorry. Thanks again for all of the support.

[cuddlebear]

I too know am not new to chronic pain. Have been living with it for years tried different meds etc. Now i am waiting to go to PT and have gotten treatment from a Pain Clinic which wasn;t helping at the best i was only getting a few hours of mild relief then it be back with vengens sorry for the spelling but im here if you need to talk have you been for any tests it almost sounds like Fibro look it up on the internet ask your doc questions until you have answers, it could take a while before they know but in the end you should get something ya know.

[arcanum]

I know where you are coming from i have EDS, fibro and CFS. Some days i just cry from the pain too and miss all the things i used to do, i love the outdoors and used to go camping and climbing alot and maintained a large garden but thats past and i hate it. Had to move to a ground floor flat to maintain some kind of independance. I have big trouble eating sometimes too and it really doesnt help when people say 'you should just eat something' it isnt that easy is it?? I agree with cuddlebear it does sound like you may have fibro, there is lots of info about it online. If you do have fibro just reading about it will make a lot of sense to you, i diagnosed myself from reading and my doctor confirmed it. GPs dont know everything and are not specialists, my doc had not heard of EDS when i was diagnosed either, she knows all about it now tho.

I hope you get some relief soon, i take pregabalin, amitriptyline and tramadol for my pain but they dont always work sometimes the pain is just too intense. Warm baths with a muscle relaxant help as do heat pads or pain gels when the pain is specific. Its not much comfort i know, i wish i had something better to tell but you are not alone, some people do understand and rant too lol doesnt take the pain away but maybe a little of the frustration.

Hope you can get some relief soon.

[billieJ]

I think it is a good idea to go to a rheumatologist. I have an arthritis and osteoporosis specialist that treats my back disorder, but he also treats fibromyalgia. Do you think you could have fibromyalgia. I sounds like it except for the stomach trouble. It seems like maybe you should get tested for the stomach trouble. Do you think you have gastroesophegeal reflux. I have a lot of trouble eating bread, and, in fact, it's useless to try - it will just come back on me! Try slicing up some sandwich meat - turkey possibly, and eating it with cheese on crackers. Or try sunflower seeds. Sandwiches do not go down so well with some people. I would bring up the subject of fibromyalgia with you next doctor's appt. They can actually test for that fairly easily by checking the placement of trigger points. I know about pain from personal experience, but each person is different. I pray that you get some relief, Inny ~ billieJ

[lynn09]

Hi, ((((Inny)))). Okay - I have just gone back and read through all of your threads.

Most definitely, you need to see a rheumatologist and a good gynecologist to start. I have and/or have had every single one of the symptoms you have described. I first diagnosed with fibromyalgic and chronic fatigue syndrome in about 1984. I have been tested for RA, lupus, other connective tissue diseases - everything. They still have not figured out what the underlying problem is, but they think it is connected to my immune-system disorder.

At the time, I was also extremely anemic and, was having difficulties with my periods. Long, long story short - I ended up having a hysterectomy when I was 34 years old - I was having the same problems you have described with the black flow plus bright red flow (bright red means FRESH blood - the lining of your uterus is NOT fresh blood). You are obviously passing clots. I essentially hemorrhaged for 8 months - they tried hormones, D&C, cauterization, everything - nothing would stop it. I finally changed doctors and got a really good gyno - he wanted to operate almost immediately - had to build my blood back up first. They never did find out what caused the problem. I don't want to scare you, but you are already showing signs of this kind of hemorrhaging and you really need to see a doctor ASAP.

If one doctor won't listen to you, then find another, and another until someone takes you seriously. I don't want to go in to things too much deeper until you are able to be evaluated by the rheumatologist and gynecologist. But, I can tell you this, I don't think you're nuts - I believe every word you are saying because I have been dealing with all of what you have described and more for most of my life. I can give you some tips on dealing with the pain when nothing else works, so if you want to PM me, that would be fine.