Home Menu

Menu


Reply
Thread Tools Display Modes
  #1  
Old Nov 27, 2012, 11:13 PM
Wren_'s Avatar
Wren_ Wren_ is offline
Free to live
 
Member Since: Jul 2011
Location: In a sheltered place
Posts: 27,669
What do you do to help manage it?
__________________

For those with fibro?




advertisement
  #2  
Old Nov 28, 2012, 01:30 AM
Rhapsody's Avatar
Rhapsody Rhapsody is offline
Wise Elder
 
Member Since: Jan 2006
Location: Florida
Posts: 9,946
Quote:
Originally Posted by tigergirl View Post
What do you do to help manage it?
My rheumy doctor treats it with my RA meds, Pain pills, and Message therapy that helps lessen some of the breaks through pains, but nothing is going to stop the pain all together. (((hugs)))
Thanks for this!
Wren_
  #3  
Old Nov 28, 2012, 04:10 PM
~Christina's Avatar
~Christina ~Christina is offline
Legendary Wise Elder
Community Liaison
 
Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
I have tried all the "fibro meds" , pain pills, neurontin, lyrica and muscle relaxers.. The whole ball of wax, It really didn't decrease my pain, just spent a lot of money on medications.

My T and I have done a lot of hypnotherapy and it has lessened my pain not every day but, some days it's a significant decrease. I'll take every minute I can get.

So my tools for Fibro are Hynotherapy, Yoga, Meditation and not letting myself get so "caught up the pain that I am in tears."

On a good day my pain is down to a 7, bad days its a 10.. Fibro is a wicked cruel illness.

I hope you can find ways to decrease your pain
__________________
Helping others gets me out of my own head ~
Hugs from:
beeutterfly
Thanks for this!
Wren_
  #4  
Old Nov 30, 2012, 07:04 AM
lizardlady's Avatar
lizardlady lizardlady is offline
Legendary
 
Member Since: Nov 2002
Location: Mid World
Posts: 18,089
Like the others said, meds have done nothing to help me.

I found a bath salt from Batherapy that helps. I fill the tub with HOT water and the salts and soak.

A friend suggested a heated throw. It's like an electric blanket, but you can wrap up in it. It is my first line of defense. I love it! I'll even use it in the middle of summer when it's 90 degress outside.

Other than that I remind myself the current flare won't last forever and try to survive.
Thanks for this!
Wren_
  #5  
Old Jan 15, 2013, 05:15 AM
wannabhappy2 wannabhappy2 is offline
New Member
 
Member Since: Jan 2013
Posts: 3
I have to say that like most with fibro I've tried all the traditional treatments, and all have failed.
However, it's not hopeless. My pain became so severe 5 yrs ago, I could barely get out of bed, I was desperate so despite my pain joined a local gym and hired the personal trainer. I never worked out a day in my life before this, I explained to my pt Ann my situation and she came up with a personalized plan for me. When I first started I was barely able to lift the 5 lb wt. and could do no more than 2-3 min. on cardio, the first 3 wks was pure torture but then it began to get better, slowly I noticed a decrease in my pain. (I was going to the gym everyday, and meeting Ann 2 x wk) I then started researching and discovered diet triggers, I became vegan and my symptoms diminished slowly. The whole process took me about 9-10 months before I started feelling human and virtually pain free.
I spent 2 yrs 99% pain free, but unfortunately my life now doesn't allow me the time at the gym, and I've since gained unhealthy eating habits once again. My new years goal is to get back on track and I'm 100% sure my pain will once again go away.
Bottom line is, it's the toughest thing initially to find motivation to stick with it because your pain is going to try to convince you to stop, but exercise daily and eat as pure as possible. No fats, fast food, nothing processed, eliminate as much dairy and wheat/gluten as you can and absolutely NO chemically engineered sugar. The rule is to shop the perimeter of the grocery store, that's typically where the healthiest food is. Fruits and vegetables, with little to no red meat, become a label watcher don't eat anything with chemicals such as nutra-sweet or high fructose corn syrup. Increase your water intake, no soda, or juice unless it's 100% pure, not from concentrate, and no juice from a bottle (at least that i've found) is good for us due to high sugar content. I'm even particular about my water, I won't drink bottled unless it's from a natural spring source, if it says purified it's nothing more than filtered tap water.
If you suffer from GI disturbance these things will help that as well.
Ok, so now I'm motivated to get back on track
I hope this helps you, oh, and read, education is the best tool.
Fibro doesn't have to keep us down, we can beat it, it's just time consuming, but well worth it.
  #6  
Old Jan 15, 2013, 08:27 PM
Pixie12 Pixie12 is offline
Junior Member
 
Member Since: Jan 2013
Posts: 17
I have not been diagnosed with fibro. Instead I have been diagnosed with neuropathy from a spinal injury. Just putting on socks can cause excruciating pain in my foot. I'm not sure that my diagnosis is correct. No muscle or nerve medication has worked for me at this point in time. I'm due for a physical in about 6 weeks so iI'll pester the doctor more at that time because the more I read the more I think I have fibromyalgia.
pixie
  #7  
Old Jan 15, 2013, 10:31 PM
wannabhappy2 wannabhappy2 is offline
New Member
 
Member Since: Jan 2013
Posts: 3
Quote:
Originally Posted by Pixie12 View Post
I have not been diagnosed with fibro. Instead I have been diagnosed with neuropathy from a spinal injury. Just putting on socks can cause excruciating pain in my foot. I'm not sure that my diagnosis is correct. No muscle or nerve medication has worked for me at this point in time. I'm due for a physical in about 6 weeks so iI'll pester the doctor more at that time because the more I read the more I think I have fibromyalgia.
pixie
Have you been to a rheumatologist? Other causes should be ruled out first, and a rheumatologist will check for fibro with the 18 pressure points, not that your primary doc couldn't a specialist generally has more detailed training. That's part of the problem when you have another known disease/diagnosis, they don't want to check other things thoroughly and just point fingers at the known diagnosis, however spinal injuries can certainly cause numerous problems and conditions.
My advice to you is to be persistent, no one knows their body more than the one living in it!
Thanks for this!
Pixie12
Reply
Views: 736

attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




All times are GMT -5. The time now is 05:20 PM.
Powered by vBulletin® — Copyright © 2000 - 2025, Jelsoft Enterprises Ltd.




 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.